How to stop “Discrimination” in the Corona era! a call by Public policy scholars.

Addressing discrimination and inequality in the global response to COVID-19

In the short time since the start of this new decade, life has changed dramatically across the world. COVID-19 has now spread to more than 185 countries. The number of recorded cases has surpassed 3.5 million. Families and friends across the globe are mourning the loss of more than 240,000 people. With the stated intention of controlling the spread of the virus and protecting lives, States are implementing unprecedented restrictions on movement both within and between countries (“lockdowns”), with significant and wide-ranging impacts on societies and economies.  

As these measures have taken effect, it has become clear that, while the virus is indiscriminate, the impacts of state responses are not. In late April, launching a new report, United Nations Secretary General António Guterres stated that the pandemic is a public health emergency “that is fast becoming a human rights crisis”. As that UN report highlights, there is clear and growing evidence that state responses in delivery of healthcare, in the implementation of lockdown measures and in policies designed to mitigate economic impacts are having disproportionate and discriminatory impacts. These effects are being experienced by all groups exposed to discrimination, including, but not limited to, older persons, children, persons with disabilities, women, ethnic and religious minorities and indigenous peoples, persons, persons living with HIV and AIDS, and migrants, refugees and stateless persons. They are impacting upon the enjoyment of rights ranging from freedom of movement to access to education and from access to information to an adequate standard of living, together, of course, with the rights to life and to health. 

These discriminatory impacts are occurring despite the fact that almost every State in the world has accepted international legal obligations to ensure the equal enjoyment of human rights, without discrimination. At a bare minimum, these obligations require that the State – whether through law, policy or practice – does not discriminate in its actions. They also create a duty to provide effective protection from all forms of discrimination by private actors and to make reasonable accommodation when required. These obligations apply to all: citizen and non-citizen, irrespective of their identity, status or beliefs. They are “immediate and cross-cutting”. They apply in respect of all civil, political, economic, social and cultural rights. Crucially, while international law recognises that in states of emergency, States can limit the enjoyment of certain human rights, their obligations to ensure nondiscrimination remain – emergency measures must not discriminate either in their purpose or their effects.

As this unprecedented global crisis unfolds, it is clear that States are failing to meet their nondiscrimination obligations. Their responses – largely driven by a stated intention to protect lives – are having a wide range of discriminatory impacts. While many of these effects may be unintended, the lack of intent does not limit States’ obligations. Moreover, with new evidence emerging each week, it is clear that we cannot yet foresee the full range of discriminatory impacts which this crisis will engender. 

State obligations to assess and address equality impacts

We call on all States to incorporate equality impact assessment as an integral element of their ongoing public health, economic and social policy responses to the crisis. It is only through assessing the equality impacts of their policy responses that States can ensure that their actions comply with their binding non-discrimination obligations under international law. Equality impact assessment is the only way that States can anticipate and eliminate the discriminatory effects of their policy responses, including those which are unintended or unforeseen.

Equality impact assessments must be aimed at identifying and eliminating the actual or potential discriminatory effects of State policies. They should also ensure that policies and programmes respond to and accommodate the different needs of diverse groups with due consideration to intersectionality and that they do not create or exacerbate inequality. 

In order to ensure that States comply with their international legal obligations, equality impact assessments should be pre-emptive, coming before new policy measures are adopted and before any changes are made to policies which are already in force. Where measures have already been adopted, equality impact assessment should be undertaken as an urgent priority. Where discriminatory impacts are identified, measures to eliminate any discrimination or inequality of impact should be taken with immediate effect. States must ensure that they involve and consult all groups at risk of discrimination and experiencing inequality in conducting equality impact assessment. States must ensure that equality impact assessment is an essential element of their monitoring and review of policy responses to the pandemic and of their on the ground effects. Both initial assessments and ongoing monitoring must be informed by the collection of data on the experiences and outcomes of groups exposed to discrimination

All policy responses to the crisis must be subject to assessment, including those relating to the management of healthcare and other resources, the restriction of civil liberties, closure of businesses and educational establishments, adaptation of support services, economic and social protection programmes, immigration and border control and the use of new information technologies. The actual or potential equality impacts of actions by both state and private actors must be assessed.  

A renewed commitment to the creation of an equal world

Furthermore, we call on all States to emerge from the current crisis with a renewed commitment to the elimination of all forms of discrimination and the creation of a world in which all are “free and equal in dignity and rights”. The wide range of unintended discriminatory consequences of state responses to the crisis – ranging from the increased exposure to the virus amongst ethnic minority populations to the rise in domestic violence – only serve to underline the deep inequalities within our societies and the failure to address the systemic discrimination which feeds them. 

This crisis has shone a harsh and unforgiving light on these existing inequalities. We must emerge from it ready to forge a world in which all can participate equally. Arundhati Roy has described this pandemic as a portal, “a gateway between one world and the next”. We call on States to ensure that we walk through this portal leaving no one behind, and with a shared determination to create an equal world.

Hope beyond COVID-19 Author Mugambi Paul

Africans with disabilities are largely left out of the African governments. coronavirus response despite being uniquely affected by the disease, as discussed by the international disability alliance, several disability experts and Views expressed in different social media platforms.

 

Palpably, The COVID-19 pandemic has disrupted many aspects of our daily lives, but its impacts are especially acute for disabled persons, who may

struggle with challenges like finding reliable and safe in-home care or physically adapting to enhanced hand-washing guidance.

But the coronavirus outbreak has also created opportunities for more equitable inclusion after the pandemic ends.

How might the pandemic disturb those who have disabilities?

For disabled persons, all the general challenges that come with the pandemic certainly apply, but there are additional barriers. The first is communication—getting

information can be more difficult for people with vision, hearing, and even cognitive disabilities, as popular news sources may not be accessible, especially

when information is changing quickly. I’m Blind and can attest to that. Keeping all of us informed is key to the COVID-19 public health response,

but information is not always accessible to the disability community, for instance data visual charts are not understood.

The second barrier involves adopting recommended public health strategies, such as social distancing and washing hands. For example, frequent hand-washing

is not always feasible for people with certain types of physical disabilities. As a public scholar I know the value of these strategies, but public health

policies often do not consider people with disabilities, leaving a gap in guidance. Those who have personal aides like sighted guides for Deaf blind and Blind individuals, and caregivers also need to be considered,

as they cannot participate in social distancing in the same way that others are.

The third, equitable access to health care, is a long-standing barrier worsened by COVID-19. This ranges from getting a coronavirus test to being seen

in an emergency room. For instance, drive-up testing may be impossible if you rely on state mobility services. There are also existing barriers in health

care settings that are exacerbated as the industry aims to meet the surge of COVID-19 cases. For example, the use of personal protective equipment, including

masks, can make communication more difficult for patients with hearing loss.

Additionally, the allocation of medical resources is a concern. There’s fear that medical resource allocation, including ventilators, may be discriminatory

against patients with disabilities. In Europe and united states of America some organization of persons with disabilities and human rights bodies have filed complains about these rationing policies. This issue echoes an underlying misconception

that people with disabilities can’t have a high quality of life and therefore the lives of disabled people may not be prioritized.

What lessons can African government learn from inclusion in Corona response for disabled persons?

in some countries, there has been a shift toward telehealth for nonurgent medical visits. That has provided challenges but also future

opportunities for the disability sector. We must ensure that telehealth visits are accessible to patients with vision or hearing loss or other disabilities

in order to maintain equity in health care delivery. If accessibility is prioritized as we make this change, a transition to telehealth could open the

door to a more accessible health care system.

Several studies have underpinned, THE ISSUES OF PRE-PANDEMIC CARE DELIVERY ONLY BECOME MORE URGENT IN A TIME OF CRISIS BECAUSE PEOPLE WITH DISABILITIES HAVE OFTEN NOT BEEN CONSIDERED IN

A DISASTER OR PANDEMIC PLANNING.

While there’s a lot of pressure and certainly a high demand to meet the COVID-19 surge, it is still crucial to make sure that the organizations of persons with disabilities and disability experts

is being considered. It’s truly a remarkable and challenging moment for African health system, but the needs of the disability community can’t fall through

the cracks. The issues of pre-pandemic care delivery only become more urgent in a time of crisis because people with disabilities have often not been considered

in a disaster or pandemic planning. We need to learn from this crisis and ensure disability is part of future pandemic planning.

For those in the disability community who require in-home care or essential services when away from home, what steps can be taken to minimize the risk

of spreading the coronavirus while still receiving necessary care and assistance?

People who use in-home support care need to make sure that they have contingency plans for their care needs in case a caregiver becomes ill. Caregivers and community

organizations should also consider changing their staffing to the best of their ability in order to minimize spread. For instance, instead of three rotating

caregivers being assigned to an individual, assign one for a longer period of time. For people with a primary caregiver in the home, more flexibility in

paid time off or sick leave can minimize exposure while also meeting the care needs of the individual. What’s really important is to engage the individual

and the disability community at the policy level.

Furthermore, MANY disabled persons ARE AT HIGH RISK OF COVID-19, BUT THEIR PERSPECTIVE IS NOT BEING INCLUDED IN THE EFFORTS TO ADDRESS INEQUITIES IN THE RESPONSE.

For instance, most Kenyan policy directives are not disability inclusive.

 

In a moment when many providers have had to alter their operations due to the pandemic, what are ways to advocate for essential services and treatment

for the disability community?

The best approach is to ensure that whenever we’re talking about inequity or differences in the COVID-19 response, disability is part of the discussion.

Many people with disabilities are at high risk of COVID-19, but their perspective is not being included in the efforts to address inequities in the response.

This includes understanding the unique challenges of this community during this crisis.

We also need disability data. There is currently no systematic reporting of COVID-19 testing, infection, mortality, or outcomes by disability status.

This is evident by the daily media updates from different countries.

For example, in east Africa important differences in this data by age, geographic location, underlying health condition, estate location and race have emerged. These data have been

critical for allocating resources and directing policies, as well as highlighting underlying disparities and elevating discussions around these health

gaps. But for people with disabilities, an often-ignored health disparity population, we don’t even get counted. And this is not just the case for COVID-19.

Disability data is infrequently collected in this type of public health and medical surveillance, which limits opportunities to address disability inequities.

As a public policy scholar and expert on diversity and inclusion I affirm and recommend the data being reported should be 15 % or more are persons with disabilities “WHO 2011”

As the COVID-19 pandemic continues, what impact and legacy do you think it will have for those living with disabilities?

I’m an optimistic person, and though it can be hard to think positively right now, there is an opportunity to change how we include people with disabilities

in this moment. COVID-19 has elevated that conversation, and the legacy should be a continued focus on disability disparities and constant efforts to address

disability inequities.

As we all make substantial changes in our daily lives, such as working from home and adjusting how we connect to others, look to people with disabilities

for guidance, as we have always used alternative strategies. We are the vanguards of resilience. My hope is that COVID-19 will bring more understanding,

inclusion, and opportunity to the African disability community.

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Australian Chief Minister Award winner

“excellence of making inclusion happen”

 

Mental health and wellbeing during the Coronavirus COVID-19 outbreak Author Paul Mugambi

 

The outbreak of the coronavirus COVID-19 has impacted people in varying ways on global scale. It is understandable that during times like this,

people may be feeling afraid, worried, anxious and overwhelmed by the constantly changing alerts and media coverage regarding the spread of the virus.

Disabled persons have lived experience on this and with the additional Corona concerns its even worse.

While it is important to stay informed, the following are some mental health and wellbeing tips and strategies to continue looking after ourselves and

each other during these difficult times.

The tips are based on  experiences and great lessons as a  global citizen. 

Manage your exposure to media coverage as this can increase feelings of fear and anxiety. Be mindful of sources of information and ensure you are accessing

good quality and accurate information. Follow a “calm yet cautious” approach – do you best to remain calm and be mindful not to contribute to the widespread panic that can hinder efforts to

positively manage the outbreak. Ensure you are following directives issued by the government and WHO  medical advice and observe good hygiene habits.

 

Show compassion and kindness to one another – these times of fear, isolation (both physical and social) and uncertainty are when it is most important that

we strengthen our sense of community by connecting with and supporting each other. Remind ourselves that we can manage this much better together in solidarity,

and that COVID-19 doesn’t discriminate – it can affect anyone regardless of age, gender, disability, nationality, or ethnicity.

 

Actively manage your wellbeing by maintaining routines where possible, connect with family and friends (even if not in person), staying physically active,

eating nutritious foods and seeking additional support by contacting government or further professional support as required.  

 

Strategies to cope with social distancing, self-isolation or quarantine

 

Going into a period of social distancing, self-isolation or quarantine may feel daunting or overwhelming, and can contribute to feelings of helplessness

and fear. In addition to the above, I  encourage the following.

 

list of 7 items

  • Perspective – try to see this time as unique and different, not necessarily bad, even if it something you didn’t necessarily choose
  • Connection – think of creative ways to stay connected with others, including social media, email and phone
  • Be generous to others – giving to others in times of need not only helps the recipient, it enhances your wellbeing too. Is there a way to help others?

around you?

Thanks to those who have supported in kind the cases I presented to them.

  • Stay connected with your values. Don’t let fear or anxiety drive your interactions with others. I am also in this together!
  • Daily routine – create a routine that prioritises things you enjoy and even things you have been meaning to do but haven’t had enough time. Read that

book, watch that show, take up that new hobby.

  • Try to see this as a new and unusual period that might even have some benefits.
  • Limit your exposure to news and media. Perhaps choose specific times of day when you will get updates, and ensure they are from reputable and reliable

sources.

In my case I don’t own a TV.

Staying connected through the COVID-19 crisis

 

Research after the sierra Leone Ebola shows evidence of the significance of connection through epidemics.  It found that residents

in Sierra Leone experienced increased social connectedness, which offset the negative mental health impacts of the pandemic.

 

As connection is so important during this time, here are some tips on staying connected to others during this time. Remember – we are all in this together.

 

list of 2 items

  •  If there is someone you think may struggle through social isolation, it is important to reach out to them and let them know you care:

list of 4 items nesting level 1

◦ Call them to check on their welfare

◦ Send an email

◦ Leave a note under their door

◦ Don’t underestimate the power you have to offer hope to another person.

I have evidently seen work miracle around my self-Isolation tunnel.

list end nesting level 1

  • I encourage people to get creative with how they interact, here are some ways to stay connected if self-isolating:

I have greatly borrowed from the recent interaction in the social media.

list of 4 items nesting level 1

◦ Set up a gratitude tree – where every member posts a message or sends a text to other members to share something, they are grateful for.

◦ Find a buddy, or group of, to set daily challenges with. These could include a healthy habit, a mindful practice, a creative pursuit. Be sure to encourage

and check in daily to stay motivated.

 

◦ Set dates and times to watch the same TV shows/movies with someone and message each other your thoughts along the way… kind of like Goggle Box but you’re

not sharing the couch!

Ask random questions in the social media to make guys think!

◦ If your local community has one, join its social media group! This will keep you up to date with what’s going on directly around you. It may also include

ways you can perhaps reach out and connect with someone less fortunate than you and ways to assist them.

list end nesting level 1

list end

 

Helping children cope through COVID-19

 

This is an uncertain time for everyone, and children may be impacted by fear and anxiety. Here are some tips on how to ensure your children are supported;

 

list of 4 items

  • Give your children extra attention and reassurance. Where possible, minimise their exposure to media and social media that may heighten anxiety
  • Acknowledge your own feelings about the situation and let children know it’s okay to share their own feelings
  • Include your children in plans and activities around the house
  • If you don’t see an improvement in 4 weeks, or if you’re concerned, seek professional help (earlier if needed)

list end

 

Reputable sources of information

 

  • World Health Organisation –

http://www.who.int

Where to go for support?

 

 

It is extremely important to seek out help if you feel you need it. I want to remind everyone that counselling services are readily available.

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy,  diversity,  inclusion and sustainability expert.

2018  Chief minister award winner

“making inclusion happen”

 

are disabled Kenyans In contradiction of the war Corona 2019? “what should Kenyan public health practitioner’s consider? Guest author Farida Asindua, _____

The coronavirus disease 2019 (COVID-19) pandemic continues to cause a trail of destruction globally. In the full wake of the pandemic in Kenya, a disproportionate effect is most likely to be among the vulnerable groups, such as the 918,270 people living with disabilities (PLWD) in the country. According to Kenya National Bureau of Statistics (2019) Census report, women with disability in the country are 523,883 while 394,330 are men. Majority are living in the rural areas, with only 179,492 living in urban areas – mainly in dense, poor and unserviced informal settlements – rendering them more vulnerable to the COVID-19 pandemic.

1.      Unique PLWD needs in the COVID-19 era

PLWD are more vulnerable due to the nature of their disabilities.  Lack of mobility is the leading disability in the country, followed by those visually impaired and cognition. Others are mental, intellectual, or sensory disabilities. COVID-19 pandemic puts all these categories of PLWD at risk of increased morbidity and mortality. In the current crisis, they are less likely to access health services, and more likely to experience greater health needs, worse outcomes, and discriminatory laws and stigma than other demographic groups in the country. With the limited Government capacity to respond to COVID-19, historical evidence points to the likelihood of PLWD being the least likely to be targeted with the interventions.

The country must therefore ensure that the unique needs of PLWD are considered in the ongoing COVID-19 containment and response planning. Interventions against the pandemic should be available and accessible to the PLWD in high quality and acceptable manner.

Public health messaging ought to also target PLWD and other vulnerable groups and should be disseminated in simple language across all the accessible formats. Strategies for vital inperson communication should be safe and accessible for persons with disability – in braille, sign language and large print. Although it is commendable that daily ministerial and periodic presidential addresses use sign language interpreters, wearing of transparent masks by communicators and health-care providers is encouraged to allow lip reading.

Physical distancing or self-isolation mechanisms – including the mandatory quarantine, the night curfew and movement cessation into and out of Nairobi and parts of the coastal strip – are already disrupting service provision for PLWD in those areas, who often rely on assistance for delivery of food, medication, and personal care. It is feared that escalation of these measures into full national lockdown would adversely affect majority of PLWD who reside in rural areas. 

The Government of Kenya and all duty bearers should therefore design the mitigation mechanisms not to lead to the segregation or institutionalisation of PLWD. Community level protective measures should be prioritized in the alternative, allowing care givers to continue to safely support PLWD, enabling them to meet their daily living, health care, and transport needs, and maintain their employment and educational commitments.

2.      Important public health measures

The main public health measures that should propagated to curb the spread of COVID 19 are as follows:

  1. Improved accessibility to hand washing areas with running water and soap so that PLWDs are able to use the facilities without assistance.
  2. PLWDs should embrace having hand sanitizers with them at all times. They should sanitise their assistive appliances like wheel chairs and crutches to ensure that they are not carriers of the virus.
  3. Use of gloves should be encouraged and the same be frequently sanitized. The assistive devices should be washed with water and soap once they reach home. Caution should be exercised if gloves are used. PLWD should ensure they do not touch their face with the gloves.
  4. Handwashing should be encouraged for personal assistants, parents, guardians of persons with disability who assist them frequently.
  5. Persons with visual impairments who have to use touch to tell their environment should be encouraged to use gloves and if possible, to avoid touch of people and surfaces all together to prevent COVID 19 transmission.
  6. Use of masks throughout by PLWD depending on their disability, preferably one with an elastic to the ears to avoid frequently having to put it in place. Some may need assistance to put on again, so once assisted it should remain in place. Depending on the type of disability, some persons with disabilities have personal assistants, who also have to put on a mask, so that they do not infect the persons with disability and vice versa.
  7. Social distance; currently it is recommended to be 1 metre away, and lately some say 1.5 metre away from each other. This may be difficult especially for persons with disability who require someone to constantly be around them for assistance. This being the case depending on the disability, both the aide and the person with disability should be in a mask. They should have a sanitizer to constantly sanitize their hands. Staying home, remains the best option for all including PLWD.

3.      Conclusion

PLWD in Kenya are indeed at increased risk of severe acute respiratory syndrome coronavirus infection or severe disease because of existing comorbidities, and are additionally facing traditional barriers to health care during the current pandemic. Health-care staff ought to be provided with rapid awareness training on the rights and diverse needs of this group to maintain their dignity, safeguard against discrimination, and prevent inequities in care provision. The Government should ensure that COVID-19 mitigation mechanisms are inclusive of PLWD to ensure they maintain respect for dignity, human rights and fundamental freedoms, and avoid widening existing disparities. 

Of necessity, this includes accelerating efforts to include these groups in COVID-19 containment and response planning. It will require diligence, creativity, and innovative thinking, to preserve Kenya’s commitment to UHC, and ensure PLWD are not forgotten.

 

Disclaimer: All views expressed here are that of the author and do not necessarily represent views/opinions of any entity or agency.

a Public Health and Disability Inclusion Expert

Email: fasindua@gmail.com

______________________

What lessons can the low income Countries like Kenya learn from the Corona episodes? Author Mugambi Paul

When it comes to COVID-19, the only thing we can really be sure of is that we don’t really know very much at all. Mortality rates, the R-0 value (the number

of people each coronavirus patient will go on to infect), just how far we need to stand away from an infected person, whether or not we should wear masks,

and just about everything else about dealing with this virus seems to change with each passing day.

 

Are we dealing with one strain or two? Has the virus mutated? And, importantly, can people who have “recovered” from the virus continue to infect others?

If so, for how long?

 

According to a report by the South China Morning Post

 (SCMP), doctors in Wuhan, China, found that between 3 and 10 percent of “recovered” patients continued to test positive even after being discharged from

hospital.

 

It has already been established that around 25 percent of COVID-19 patients are asymptomatic, and despite not showing any symptoms, are still infectious.

Might it not be possible, then, that patients who are no longer displaying symptoms, but test positive, could still be infectious? As reported by the SCMP, researchers across the globe are working flat-out to determine whether COVID-19 patients develop antibodies that will protect

them from future infections, and whether those who have officially recovered can still infect others.

 

The country with the best recovery rate to date is China, and as such, scientists are very interested in any research to come out of that country.

 

The SCMP reported:

 

The Chinese mainland, where the disease first emerged last December, has discharged over 90 per cent of its infected patients and around 4,300 confirmed

patients are still receiving treatment in hospitals. …

 

Wang Wei, president of Tongji hospital told CCTV’s prime-time programme that of the 147 recovered patients they studied, only five – or just over 3 per

cent – have tested positive in nucleic acid tests again after recovery.

 

Wang and his team insist that their study should not cause concern because there is no evidence that “recovered” patients can still infect others.

 

He told the media that none of the family members or associates of the five patients who recovered in his hospital but continued to test positive went

on to get infected.

Nonetheless, their findings are especially relevant because China now has thousands of “recovered” patients, and if the doctors are wrong, these patients

could go on to infect others.

 

And other Chinese researchers have found that far more than 3 percent of patients who no longer exhibit symptoms still test positive.

 

The SCMP reported further:

 

Life Times, a health news outlet affiliated with People’s Daily, reported this week that quarantine facilities in Wuhan have reported that about 5 to 10

per cent of their recovered patients tested positive again.

 

Previous reports have also highlighted cases where patients tested positive after recovery, including one case study about a family of three

in Wuhan, who all tested positive again.

 

These incidents have raised questions about whether nucleic acid tests might not be reliable in detecting traces of the virus in some of the recovered

patients.

 

Some experts have also expressed concerns about the sensitivity and stability of the test kits, and the collection and handling of patients’ samples.

 

Only time will tell whether recovered patients can continue to infect others or not, but with close to a million patients worldwide and over 50,000 who

have already died, we can only hope and pray that the Chinese scientists are right.

 

 

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy,  diversity,  inclusion and sustainability expert.

 

Will corona 2019 be the answer of removing the disabled Kenyans under the bus by the policy makers? “WHY WE MUST ADDRESS STRUCTURAL INEQUALITIES” Guest Author Mildred Omino

 

World Health Organization declared Coronavirus Disease (COVID19) a pandemic on March 11,2020 following presence of 118,000 cases in over 110 countries and territories around the world with a sustained risk for further spread. At a media briefing, Dr. Tedros, The WHO Director General called upon sectoral and individual involvement in the fight against COVID-19.

Two days after the declaration of the Pandemic by WHO, Kenya recorded the first case of COVID19 amid panic and speculations among the citizens. Prior to the declaration, the disease outbreak was surrounded by myths such as “Children are immune to the Virus”, “The virus can’t survive in high temperatures”, and “The virus affects old people”. With all these myths, Kenyans felt safe since the myths presented a favorable situation to majority of the population. Some of the quick measures enforced by the government of Kenya were, closure of all learning institutions, establishment of COVID emergency response committees at both national and county level as well as regular media briefings on the situation of COVID19 as well as national guidelines on how to contain the virus.

As the virus made top agenda both globally and nationally with infections spreading pretty fast, there was little or no focus given to the impact of the virus on people with disabilities from basic actions such as access to information to critical measures such as emergency response measures to the pandemic.

Globally, the world is home to approximately one billion people with disabilities, eighty percent who live in developing countries and 2-4% experience significant difficulty in functioning. With the increased prevalence of chronic diseases this number is bound to increase. People with disability experience poorer health outcomes, have less access to education and work opportunities, and are more likely to live in poverty than those without a disability. The global situation of people with disabilities as outlined by WHO and World Bank is replicated in Kenya

 

Why We must address Structural Inequalities experienced by persons with disabilities:

In the Wake of COVID19, WHO and respective government ministries of health have developed and advanced key messages around hand hygiene, social distancing, quarantine, isolation of suspected cases and staying at home”.

Majority of persons with disabilities have been missing out on key messages on containing the virus for various reasons such as lack of sign language interpreters during media briefings, lack of information in accessible formats, complexity in messaging for people with intellectual disabilities and “complete cut off on information for poor disabled persons who can’t access television, internet, smart phones merely because the information channels has been social media, radio and television”.

Social distancing has proven to be the most difficult outcome for people with disabilities who are constantly and in fulltime need of personal assistance and personal guides for basic services such as self-care. Little or no information is available for personal assistants of persons with disabilities on best ways of offering care to persons with disabilities during this pandemic, thereby leaving people with disabilities to act in their own discretion.

More so, hand sanitization goes beyond hands all the way to assistive devices such as crutches, calipers, prosthetic limbs, wheelchairs and white canes just to name but a few. This aspect in itself compounds the cost of sanitizers used by persons with disabilities. And for those who do not have assistive devices and are forced to crawl or walk while touching surfaces, the situation becomes even more wanting! The whole aspect of sanitization is either compromised or too expensive if at all it is achievable.

 

The New Normal:

With the outbreak of COVID19 most people are working from home with exception of those who are providing essential services which must be provided on site. Companies/businesses and individuals have quickly adopted to “working remotely” as the only feasible way to contain the spread of the virus. Interesting enough, most jobs in both private and public sector which were presumed to be undertaken in office setting are currently being done from home with support of Technology. One would rightfully think that this “New normal” is the ideal situation for people with disabilities who courtesy of their disability would conveniently work remotely and on ‘’flexi schedules”.

The reality check reveals that majority of persons with disability are unemployed with key reasons for unemployment being inaccessible workplaces i.e. lack of elevators and ramps in office buildings, high cost of hiring sign language interpreters and personal assistants as well as the cost of making adjustments/modifications to office buildings to ensure that they are disability friendly. These scenarios have prompted most potential employers to hire people without disabilities and simply forget about the nightmare of “reasonable accommodations” that would create an employment opportunity for a person with disability.

Potential Employers have also lamented that persons with disabilities lack the requisite qualifications for various jobs. The case of structural inequalities is well demonstrated in education system where learners with disabilities struggles to get education that would adequately prepare them for the job market. The systemic challenges boil down to physical accessibility of learning institutions, inadequate adaptive technology to support disability specific needs, lack of assistive devices and limited or no resources allocated to meet disability specific needs. A small percentage of learners with disabilities make it to higher education whereas majority do not transition from basic education to higher education

Inequitable and socially unjust systems have led to underemployment and unemployment of persons with disabilities leaving most of them to work in the informal sector or to be totally unemployed and a few employed in private and public sector. Post COVID19 it would be important to offer equitable education and employment opportunities now that we know that most jobs can be done remotely without heavy investment on physical infrastructure. Policy makers should desist from policies that lump all vulnerable groups together but rather develop policy guidelines that speak to specific guidelines on how to mitigate the unique challenges of the different vulnerable groups, whether Children, Women, Persons with Disabilities or old people.

 

The views expressed here are for the author and do not represent any agency or organization.

 

Mildred Omino

Founder,Women and Realities of Disability Society

Feminist and Disability Rights Champion

Will it be the “White smoke” from the 10 billion Cash transfer to the disabled Kenyans? Author Mugambi Paul and DR Siyat.

Over the last 3 weeks the Kenyan government has been excoriated on the measure it would avail to the poor due to the hard-economic times and the coming in of Covid-2019 pandemic. Talking of poverty,

several studies show disabled Kenyans are the largest minority who face this tragedy.

Kenyans with disabilities are disproportionately affected by the current situation, as we are by all-natural disasters and major crises. It is vital that our

voices are part of developing solutions, innovating, problem solving.

as 2 experts we are deeply concerned about the impact of the COVID-19 pandemic on disabled Kenyans, chronic ill persons and the elderly. Bearing in mind that Kenyans with disabilities are among the Kenya’s most marginalized and stigmatized even under normal circumstances.

This requires us all to act, interact and communicate in different ways than we are used to. However, the social inequalities

degeneration COVID19’s impact on Kenyans with disabilities are not new. The risk in the response to the current crisis is that disabled Kenyans

will be left behind once again. The good news is that we already know what works. Fundamentally, we need social justice, equality of opportunities and

decent work.

According the UN Special Rapporteur on the rights of persons with disabilities “The pandemic is an unprecedented public health,

social and economic emergency that requires swift and effective action by Kenyan public and private sectors, and the society at large.

We know that COVID-19 is more serious for those with underlying health conditions and particularly those who are immunocompromised. What does this outbreak mean for the Kenyan Disability community?

Both national and county Governments should ensure they take

all necessary measures to ensure the protection and safety of disabled persons, aged and persons with chronic illnesses] Ilo 2020 WHO 2020 UN 2020 HI 2020 [.

 Legal framework:

The United Nations Convention on the Rights of Persons with Disabilities states that people with disability have the right to health without discrimination

on the basis of disability, including access to population-based public health programmes (Article 25) and that governments also have a duty to take all

necessary measures to ensure the protection and safety of persons with disabilities in situations of risk (Article 11).

 

Facts to consider:

Providentially, even in non-pandemic circumstances, people with disability are more likely than the general population to have health issues, compromised immunity, increased

risk of morbidity, comorbidities and are more likely to die from preventable causes] Whiteford 2011 DFID 2013, HI 2015un 2012].

According to several studies Some disabled Kenyans will be unable to maintain social distancing

practices because they rely on support workers for vital daily personal care, such as eating, drinking, walking, mobility toileting and dressing.

in addition, disabled Kenyans often rely on family, friends and care givers to provide essential services. During the Corona pandemic, these people may not be able

to provide their usual support.   

Also, in different Kenyan social media platforms disabled Kenyans like many in the broader community, are expressing anxiety about the COVID-19 pandemic.

Of course, this nervousness is exacerbated by the feeling that they are being left behind or ignored by Kenyan government, private sector and community Corona responses.

Background of social assistance programmes:

Current social assistance programmes include the Older Persons Cash Transfer Programme; the Orphaned and Vulnerable Children Cash Transfer Programme; the Persons with Severe Disabilities Cash Transfer Programme; the Hunger Safety Net Programme; and the Urban Food Subsidy Programme. The effective implementation of these programmes is constrained by challenges such as how to refine inclusion and exclusion criteria and how to determine appropriate transfer amounts.

 

Corona Rescue plan:

We acknowledge the efforts made by Kenyan government by the issuance of the additional 10 billion Kenyan shillings to the ministry of social protection for the vulnerable population in form of cash transfer.

Definitely in the coming days disabled Kenyans expect a white smoke at the NSSF building which houses the ministry of social protection in Kenya.

Most disabled Kenyans are highly expectant of the policy regulations and guidelines on the 10 billion promise by the executive order by the president of Kenya.

Unequivocally, with proper feedback mechanisms and regular consultation disabled Kenyans will be able to know if cash transfer policy programmed will meet their policy needs.

In other words, disabled Kenyans will comprehend how  the 10 billion cash transfer injection to the inua jamii will target the current registered severe disabled persons, elderly, orphans and vulnerable children or it will be meant  for targeting additional new  vulnerable individuals due to the effects of  of Corona 2019. Arguably, much of the debate about cash transfer among disabled Kenyans programmes revolves around the issues of targeting. This is because with the current strategy only severe disabled persons are targeted and considered.

https://labour.go.ke/wp-content/uploads/2019/09/MLSP-Strategic-Plan-2018-2022_17.09.2019.pdf

 

 

This will be a great test as different stakeholders and policy makers in the social protection department scratch their heads on the right footing on which to take in the implementation policy framework.

Will the policy makers ensure inclusion of other disabled Kenyans since they are also mostly vulnerable?

We believe the cash transfer will avert the short-term impact of the Corona crisis and attenuate its long-term negative effects on human development outcomes.

Nonetheless, it is one thing to say that Kenya with Inua jamii -like programmes are sheltering the more vulnerable from the worst consequences of the Corona crisis, and another to recommend that Inua jamii programmes be designed and implemented during a crisis Lehmann, C. (2012. Several steps are involved, political will is required, and funds must be committed. The ministry of social protection has a pivotal role to ensure coordination, operation and more resources even from development partners.

We observe, the Cash transfer programme will be effective if it will be implemented under a sustainable social protection strategy. Such a strategy should enable better coordination among programmes, between the national and county government ,and among the different international players in order to avoid duplication of effort and waste of resources.

For instance, Mombasa have already started a SMS service asking those who aren’t in the Cash transfer to register “widows, orphans, persons with disabilities, and persons with pre-existing conditions into the emergency plan

Has Mombasa county link up with the national cash transfer programme?

Data base and registration for the cash transfer:

Due to social distance directive as a preventive measure of spread of Corona. Will the ministry of social protection work on vigorous registration, collection of data and automation of all new persons with disabilities, orphans and the elderly?

Or will the ministry of social protection synchronize the current departments databases of children services, NCPWD and   department of social development under the strategic guidance of the National Social Protection Secretariat programme?

This will enable to identify the unmet needs through geographic, demographic and welfare status.

Furthermore, quite a lot of reports indicate the current enhanced single registry adapted through the social assistance programme has improved efficiency and reduction of bottlenecks experienced when the ministry of social protection had 3 separate registries [development pathways 2020[.

Through this policy integration the ministry has    a clear database and actualize its programmes effectively Bobonis, G. and F. Finan (2019).

Such database can enable the ministry to build an array of indicators on disabled persons, orphans and vulnerable children, elderly socioeconomic conditions. Therefore, this is a powerful tool for mapping the different needs. and they could be used to guide other policies. Like the current need of food, water, soap and hand sanitizers.  Moreover, Registries enhance monitoring of the poorest families’ access to social services and infrastructure in a more calibrated way than household surveys. The latter, though they are nationally representative, are often based on small samples that do not facilitate sound analysis for local-level interventions. This knowledge base allows rapid crisis response when programmes may need to expand in order to cover a larger proportion of those that fall into poverty.

Key considerations for the cash transfer:

We consider that the ministry of social protection will cast tis net wider in order to seek input from people with disability, leading disability experts, organizations of persons with disabilities and advocates

in developing their dedicated cash transfer strategy, and in particular, in its COVID-19 Coordination

secondly, Disabled Kenyans with disability, particularly slum dwellers and rural inhabitants, may be disproportionately affected by the pandemic due to increased risk of

infection, higher number of co‑morbidities and because of underlying health conditions such as chronic diseases and respiratory illnesses. Numerically speaking, most disabled persons in Kenya live in slum areas and rural areas without basic amenities. Some live-in solitude while others have been housed.

Most of the disabled population and other low-income earners live hand to mouth. This is to say, COVID-19 will spread rapidly and is especially dangerous to people living in close proximity to others in closed settings [WHO 2020].

Worse still, Thousands of adults and children

with disabilities in Kenya live in segregated and often overcrowded residential settings where they can face neglect, abuse, gender-based violence, and inadequate health care and lack human Rights.

Of particular concern are women and girls with disabilities.

This affirms that disable Kenyans are survivors in this country [KNHR 2015]

 

Thirdly disabled Kenyans continue to face barriers in accessing health care, including prevention, testing, screening and treatment for COVID-19. Fourthly, disabled Kenyans will be   unable to access regular and vital medications and therapeutic services due to low supplies and restrictions in access. Fifthly, disabled Kenyans may not have access to mental health services at a time when the need for accessible and responsive mental health is heightened. Sixthly,

disabled Kenyans will be unable to easily access essential health supplies to keep themselves safe, such as personal protective equipment, hand sanitiser and sterilising

Equipment.

lastly are worried that discrimination or unconscious bias could impact their access to critical and lifesaving health care during this crisis.

to we hope the measures taken will ensure the needs of all Kenyans with disabilities are included in

the response to the pandemic.

As experts we appreciate and acknowledges the challenges that national and county governments and private sector are facing during this pandemic.

 

We call upon all national and county governments to ensure that, in their responses, they include dedicated disability strategies to protect and support disabled Kenyans.

Long term solutions:

We opine that Kenya is still a developing nation We therefore suggest inclusion of one our BBI recommendations which we presented at the task force in February 7th, 2020 as a long-term solution.

  1. Ministry of social protection to establish a disability employment service department under the national employment authority since the authority is in charge of all Kenyans in need of employment. so that they are able to execute employment needs of persons with disabilities Through this agency real disability mainstreaming will be achieved. If this recommendation will be adapted, we believe rapid change will take place. We opine disabled persons won’t need to be in cash transfer for long since cash transfers are not meant for long term programming.
  2. We hope the ministry of social protection can take advantage of the Corona crises to execute of reasonable accommodation plans in all its organs and offer vital lessons to both public and private sector.

All in all, our policymakers will have to come up with a homegrown resolution for ensuring disabled Kenyans rights are protected. And this will not be easy.

 

 

 

The views expressed here are for the authors and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Dr Siyat is a  independent  consultant and systemic advocacy service provider.

 

Why Social Isolation is a Greek term to the disabled Kenyans: Author Mugambi Paul

Several studies indicate that in an emergency person who are disabled, aged and who have chronic illnesses are mostly left behind and most at risk [Help age 2012, HI 2019, UN 2020, WHO 2020].

This is because persons without disabilities will be fighting and running away for their fate. As evidenced many Kenyans have started to go back to the rural places.

 

As a public policy scholar and with lived experience of being disabled and advocate for inclusive approaches in both humanitarian and development spheres.

I am concerned on the current and feature effects of Corona on lives of disabled Kenyans and chronically ill people who are currently falling into cracks.

In other words, they are

being hit and particularly hard by the virus outbreak and access to support services seem to be becoming scarce and finally

will be cut as the crisis worsens.

Evidently, in Nairobi and other major towns Panic buying of cereals, groceries, toilet papers, hand sanitizers and other protective equipment, which also disabled and chronic ill people need have suddenly doubled the prices and also have started to be scarce.

I  observe,  Kenyans without disabilities  and who can stockpile are the ones who are probably less at risk because they were able to rush out to the shops, whereas a lot of disabled Kenyans like  me,  elderly, e and persons with   chronic illnesses just can’t get these commodities.

This is coupled with high poverty levels among the disabled Kenyans.

On the other hand, the Cabinet secretary of Health gave a directive prioritizing the elderly and persons with disabilities in the queuing system in the supermarket [daily nation Friday March 2020[

This pronouncement shows that disabled persons have started to be brought in in Corona conversations though much needs to be done in order not to live us behind. If this directive will be followed, we are yet to see.

 

Could the Kenyan supermarket borrow a leaf from Tesco in the United Kingdom or supermarkets in Australia?

In both nations they have reasonable accommodation for ensuring disabled persons, elderly and persons with chronic illnesses are able to shop comfortable and provision of delivery for those with large shopping.

The Corona virus has equalized us all and it has led to the realization that what works for all works for disabled too] UN 2006 UNDP 2017 ILO 2019 Whiteford 2019].

 

Dilemma of social distance: you

 

Social distancing is not an option for disabled Kenyans. The Kenyan government and more so the ministry of health and disability stakeholders need to go back to the drawing board in order to address the needs and priorities of disabled Kenyans so that we can have inclusive corona interventions.

Of course, many Kenyans with out disabilities take things for granted. This is because most will never fit in to our shoes till when they join our disability club.

For instance, Kenyans    with a disability, who rely on care givers and support workers for daily living and sighted guide services including washing and dressing.

I am talking about people with spinal cord injuries, muscular dystrophy, cerebral palsy, sometimes people with intellectual disability, psychosocial disability, the elderly, Down syndrome,

that might need assistance with showering, with going to the toilet.

Moreover, social stigma in Kenya is still ripe,

Shoppers who ar blind and vision impaired will not get sighted guided assistance in the shopping spree due to the continued pronouncement by Kenyan government that we should be one metre point five away and avoid handshakes.

in case the president issues an executive order of total or partial lock down, I observe the disabled will be worst hit even withing there local surroundings.

Did you know most of the local shopping areas are highly squeezed and have low ventilation?

How will my fellow wheelchair users avoid assistance not being close while many of the wheelchairs in Kenya are manual?

Furthermore, some disabled creep on the floors!

How will they shopwith out contacts?

Most Kenyan roads are inaccessible how will the Blind and vision impaired avoid falling in to ditches and trenches?

Our independence and self estieem by the use of assistive divides is being questioned!

How can this non handshake apply to mobility impaired persons like Blind, Crutch users, wheelchair users?

Does the Cabinet secretary of Health and policy makers know our devices are metallic?

What if the care giver is infected and need to self-isolate?

This will make Disabled persons become at higher risk,

Additionally, the actual time and effort of finding somebody else, finding the right person that’s going to fit, as well

as then training someone up from scratch again, is a huge effort for people with very high support needs who are going to be in that really high-risk category. The ministry of health needs to train its front-line staff on basic disability inclusion tips

 

Why are the disability sector and stakeholders silent as the lack of disability inclusive Corona continues?

Are they contributing to uninterrupted discrimination and injustice to the larger wanjikus with disabilities?

I suppose they are hiding and later after the Corona era is over, they will claim we were left behind!

The Kenyan media should rise to the occasion and speak on behalf of the disabled Kenyans and persons with chronic illnesses.

Contribution by disability sector:

The disability sector, human right bodies and other policy stakeholders have the role to monitor and report the government organs on the said implementation.

This is actually time for disabled experts, disabled persons organizations, human right bodies state organs practising disability mainstreaming should contribute to more inclusive Corona interventions.

What if the Kenyan disabled stakeholders changed tact and start to advocate for now the silent revolution of reasonable accommodation being implemented?

To put it differently why doesn’t the disability sector join the table instead of awaiting to be in the menu?

I opine, Kenya has great public policies on reasonable accommodation now is the right time to,

push for implementation.

let me illustrate

What if the disability sector and stakeholders pushed the national construction authority now to publish and implement real accessibility standards of buildings?

Most likely we shall have makeshift hospitals. Will they be accessible?

Why don’t the disability stakeholders within their budgets adjust and contribute to the ministry of health on inclusive approaches?

For instance, developing Kenyan sign language clip on how to prevent Corona virus then distribute to the mainstream media and social platforms?

Why don’t the disability stakeholders produce material into braille and distribute all over the country through the free matter for the blind service offered by poster corporation as entrenched in the persons with disabilities act 2003?

Does the disability sector know the time is now for implementing the Marrakesh treaty?

Could the global commitment made by Kenya government, private sector and disability stakeholders be revisited in the area of innovation and make non-metallic assistive devices?

 

All in all, this coronavirus comes with a silver lining. At least, it will pep up people to take normal civic sense to a higher status. So that besides coronavirus

we actually end up also fighting other issues like discrimination faced by Kenyans with this will lead to breaking some if not all the barriers that disabled Kenyans face.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

 

Why the DISABLED Kenyans are pregnant in the Corona era: Author Mugambi Paul

 

Generally speaking, The COVID-19 pandemic occurring in Kenya should be of utmost concern to every citizen. This is because we need to work together around the country in solidarity.

Ofcourse, the risen times are extra-ordinary. This is the times that will redefine Kenyan human spirit.

 Are we going to ensure disability-inclusive, accessible disaster-response?

On my own behalf and the disabled Kenyans

 We acknowledge the great leadership displayed by cabinet secretary Mutahi Kagwe of ministry of health under this difficult circumstance. Moreover, the CS is communicating in to minds and hearts of all citizens. Could this be adapted as the new norm to Kenyan organization culture of governance?

 

On the other hand, the Corona virus seems to have equalized all of us and the realization of the economic inequalities that exist among low income Kenyans

Amongst these is the largest minority “Kenyans with disabilities” of who make up more than 15 % of the population [WHO 2011]. we need to examine corona virus by waring the disability lenses.

On March 20th, 2020 during the daily updates a more disability inclusive approach was adapted.

This affirms that the CS is a great communicator.

though much needs to be done to realize disability Inclusive approaches.

As a  public policy scholar and a  person with lived experience of being blind I  opine that if what the CS health interventions were to be made long term policy execution the Kenyan  government will  overcome many challenges of including persons with disabilities and resolve the  unemployed citizens  mystery.

In other words, our policies must not discriminate. Disabled and low-income people must be included in every policy, every fund, every new law.

This is the real meaning of disability mainstreaming.

 

Background:

 

Kenyans with disabilities’ needs and concerns should be adequately addressed in existing COVID-19 Kenyan relief packages. 

I affirm that Disability impacts every community and occurs at every stage of life. In addition to impacting Kenyans with disabilities more disparately, the virus is also likely to create disability while people recover [WHO 2020].

Fact to consider:

I believe The Corona virus has awaken the public consciousness of what works for the disabled Kenyans can also work for all

Challenges faced by disabled Kenyans:

Unfortunately. Clean water and sanitation facilities aren’t always available or accessible, particularly for Kenyans with

Disabilities and the low-income earners [UNICEF 2017[.

Are the newly 500 water points in Nairobi accessible to all disabled Kenyans?

 Life-saving information often doesn’t reach those who are deaf, blind, using wheelchairs, illiterate, Deafblind or living in remote areas.

I uphold this global health emergency, the ability to read timely information in an accessible format is even more critical than usual. I   believe the more people access and act upon the information that Ministry of health leaders and public officials are

providing, the better we Kenyans can all cope with the rapidly evolving situation.

 

 

 Furthermore, the corona virus puts people with chronic diseases, Kenyans with disabilities, and the elderly most at risk. could the ministry of health issue a statement regarding rationing of care to ensure that when rationing treatment begins, decisions about how medical treatment should be allocated are made without discriminating based on disability?

 

 Worse still, the Kenyan health system is

not prepared. In China it is reported already some disabled persons have died due to starvation and nonattendance.

Information campaigns and medical care must include the needs of Kenyans with disabilities. It is pivotal that Kenyan state as a duty bearer identify and monitor people with

disabilities in their communities. Frontline staff need training on caring for people with disabilities in the crisis.  The ministry of health should also ensure protection of the front-line health workers by provision of the equipment which they need to execute their work safely

masks, gowns, shields, gloves, suits, and other equipment. Therefore, preventing further spreading of COVID-19.

I urge the Kenyan public policy makers and stakeholders to think boldly and broadly in their response to this pandemic and waste no time saving lives and have actionable long-term policies and regulations.

 

Different ILO studies have affirmed with proper reasonable accommodation execution productivity is high and brings diversity. For instance, If the ministry of public service, ministry of labour, federation of Kenya employers, employment authority, ministry of transport, disability experts can work together via video link can craft a reasonable accommodation regulation.

This is to say with flexibility and

creative solutions are more important than ever in this Corona era.

With this regulation, the president with his executive power ascent can save Kenya a great deal.

several studies and additional public health experts have stated that disabled Kenyans are more vulnerable to COVID-19. Beyond the specific conditions or diagnoses that may raise susceptibility to the virus itself, Kenyans with disabilities are particularly vulnerable to the broader social, civil, and economic impacts of the coronavirus pandemic.

Thus life in Kenya will never be the same again.

will this be a turning point for Kenyan Parliament and senate to ensure a inclusive social protection cover for the marginalized?

  Outlined below are a series of expectations that could benefit Kenya in the long run:

  1. Prioritize and Expand Home delivery services. This can be done through acceleration of M-post services since most Kenyans have Mobile phones additionally more private delivery companies can also be incorporated with a particular county. This would reduce the social contacts since most Kenyans go seeking for goods outside there vicinities.
  2. 24 shift working economy: this can be accelerated by both public and private employers thus even reduction of man hour spent on traffic. Moreover, through shift working economy it would increase work productivity. Some best practises can be borrowed from the private sector. Could this be an opportunity for implementing 2030 vision? Additionally, if adopted in Nairobi, Kisumu, Meru and Mombasa can say by bye to the traffic menace. Could the new Nairobi Metropolitan team adapt this?
  3.  

Prioritize access of digitalized documentation: if this was to be adopted most government documents would be gotten easily. For instance, one of the best recently successful is acquiring renewal of tax exemption among the Kenyans with disabilities although now with the advent of Corona Kenya revenue authority and NCPWD needs now more than ever to decentralize the service. This would actually reduce the transport expenses incurred by Kenyans and also save working hours.

  1. Cash transfer uptake: As the coronavirus crisis has caused a significant economic downturn, I believe that it is essential for ministry o of treasury  to authorize an increase in cash transfer programme to the ministry  of social protection in order to reduce the economic shocks among persons with disabilities,  the seniors of Kenyans   and their care givers. Who are already vulnerable and not covered with the current cash transfer programme.

This move will enable government of Kenya to reduce vulnerability levels.

5 food access:

Regular access to healthy food is key to maintaining strong immune systems. I   encourage the Kenyan government to expand access to food distribution during this period especially to chronic ill persons, the low-income earners, disabled Kenyans, the slum areas and vulnerable populations.

Regrettably, many Kenyan families even before corona era were living under distress for lack of one meal a day.

 Sadly, many Kenyans ability to keep and maintain employment will be impacted by both the business and transit closures.

If short term measures are not taken this might lead to civil strife and increase of psychosocial disabilities among Kenyans.

6.Access to transport: the Kenyan government can support the public transport sector by having reduction of oil prices thus preventing Kenyans from paying extra charges.

Additionally, the government owned busses offer the services to support the private owned public transport services with the new half full caring capacity policy implementation. Where are the NYS busses?

 I observe there has been increased discipline in the Matatu industry by the reduction of congestion by the ministry of Health directive.

Environmentally speaking, drastic air pollution has reduced.

 

How I wish it was a daily Norm in the public transport.

Could the government offer tax wavers for public transport to acquire disability inclusive buses?

 

7. Implementation of accessibility standards.

The national construction authority and disability stakeholders should rally behind and ensure when makeshift hospitals,

isolation facilities and construction of new hospitals are fully accessible and equipped with accessible beds.

Therefore, Duty bearers should ensure disability civil rights protections are fully protected since rights   are not negotiable. I believe time is ripe to enforce and implement article 27, 54 of the constitution and persons with disability act 2003 for protecting rights of disabled Kenyans.

  1. inclusive economic stimulus: Kenyans with disabilities must be included in the economic relief proposals now under consideration by the private sector and Kenyan government. Given that COVID-19 poses unique risks for Kenyans with disabilities and other low-income earners that may make it more difficult for those who are not in any form of employment. This will enable people with disabilities and low-income earners to be able to survive during the current crisis. The economic stimulus should be easily and equitably available for all. Of particular concern are men, women, girls and boys with disabilities.
  2. All of these recommendations are critical to addressing the spread of COVID-19 and addressing our nation’s public health more broadly and ensuring we meet the SDGS by not living any one behind.

As the Rev. Dr. Martin Luther King said, “We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.” The fragile state of this “network of mutuality” has become all too apparent during the coronavirus outbreak. Though we may be vulnerable, we are not dispensable. In fact, disabled Kenyans have critical experience to share in adapting to challenging and constantly changing situations affecting our health, employment, education, housing, and families–experience that all fellow Kenyans will need in the days and weeks ahead. We are grateful for the urgency with which the Ministry of Health is moving to make sure that the Kenyan people never feel the worst of this pandemic, and am seeking  only to protect Kenyan disability  community from the unintended but all too foreseeable impacts of discrimination.

especially during all phases of disaster preparation, response, recovery, and mitigation.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert

the catastrophe of being Blind and Disabled in the Corona era “Lessons for Policy makers!” Author Mugambi Paul.

Kenyans living with disability are a vulnerable group; a larger proportion are older, and with underlying health conditions. Almost half of all people with disability
are aged 65 and above. And only 24% of adults with disability experience very good or excellent health, compared with 65% of without disability [world report 2011].
Apparently in Kenya, Disability is generally very misunderstood and very unacknowledged, even though 15 % of disabled Kenyans make up the population.
The world is paying close attention to the outbreak of novel coronavirus, following its emergence in December 2019 in Wuhan, China but the voice of disabled Kenyans is still inadequate.
This is because of lack of political influence, inadequate social services and lack of opportunities to adapt.
This indicates The rest of 85 % of Kenya’s population is engaged.
Over the last six years, the health sector in Kenya has exhibited significant developments, including the introduction of the Linda Mama (free maternity) initiative, the Beyond Zero campaign, efforts to revamp the National Hospital Insurance Fund (NHIF), as well as a multi-million dollar Medical Equipment Leasing scheme aimed at bringing advanced medical equipment closer to citizens across the 47 counties and in key referral facilities.
The inclusion of health in the president’s legacy priorities (Big Four Agenda) underlined this stated commitment to improving healthcare.
This obviously follows the Constitutional requirement, Kenya Health Act 2014 and Kenya Health Policy 2014-30. In addition, Kenya has ascribed to the Sustainable Development Goals (SDGs), including SDG No 3, that commits governments to provide quality healthcare for all.
Are these Kenyan Health regulation disability inclusive?
Data evidence:
According to latest data over 132,000 cases of Coronavirus disease (COVID-19) have been reported and 4,900 people have died. The virus has reached 123 countries [WHO 2020[.
How does the virus spread?

Epidemiological evidence shows that 2019 nCoV can be transmitted from one individual to another. During previous outbreaks due to other coronaviruses, including Middle East respiratory syndrome coronavirus (MERS CoV) and the Severe Acute Respiratory Syndrome coronavirus (SARS CoV), human to human transmission most commonly occurred through droplets, personal contact, and contaminated objects (fomites). The modes of transmission of 2019 nCoV are likely to be similar.
The precise zoonotic (animal) origin of the 2019 nCoV is still uncertain. The virus has been identified in environmental samples from a live animal market in Wuhan, and some human cases have been epidemiologically linked to this market. Other coronavirus, such as SARS and MERS, are also zoonotic, and can be transmitted from animals (civet cats and dromedary camels, respectively) to humans.
On the other hand, With the outbreak of a novel coronavirus declared a pandemic by the World Health Organisation, people worldwide are working to address it.
According to the WHO Director-General Tedros Adhanom Ghebreyesus said in a terse statement that this is the first time the world is battling a pandemic against a coronavirus disease.
This has seen nations executing travel bans to sport shutdowns. Meanwhile other countries like Italy, Denmark, Estonia, Latvia and rwanda have locked out their countries.
coronavirus is changing life as we know it. It’s tough to know who to trust – that’s why it’s vital to receive facts.
Disabled Kenyans are at higher risk due to the multifaceted related factors in addition of having a disability. WHO is warning people across the world to avoid contact?
But populations in less developed countries like Kenya are wondering how that is possible when they still need to go to search for food, work, purchase items, go to church or mosque or connect with family and friends.
Key factors:
Rise of stigma and discrimination.
Already in existence it will be Upsurge by the lack of shaking hands as announced by the ministry of health.
Of course, Many Blind and disabled persons require support when crossing the busy Thika superhighway or the Westland routes.
For instance, Crutch and white cane users tend to touch metal rails, touching escalator handrails, using traffic light buttons, reaching for train door opening buttons and holding safely
on to handrails on public buses and Matatus while crossing, some may require to be held while crossing.
how can we avoid handshake?
I observe many disabled Kenyans are anxious. This is because we can control what we touch, but we can’t control what
other people have touched.
Will the ministries of health or ministry of transport provide qualified volunteers?
Or will the ministry of health or transport provide protective products like hand sanitizers to the public transport providers?
I observe, With the Corona in place discrimination and stigma will rise in totality since citizens with out disabilities will be having social distance thus disabled Kenyans might stop seeking services or refuse to travel.
Coupled with poverty levels many disabled Kenyans will not afford the buying of the required protective gears like hand sanitizers.

Second factor is Isolation:
Several studies show disabled persons have lived in isolation for long and this will be a lesson for persons without disabilities.
majority disabled Kenyans are at increased risk of serious or fatal complications from COVID-19 (coronavirus). In an active community outbreak, the
safest option may be to self-isolate at home, perhaps for weeks or longer. In order to prepare for this possibility, I believe its high time the Kenyan ministry of health recommends
that people at high risk stock up on necessities, including maintenance prescription medication.
Worst still, many disabled Kenyans can’t take this advice because m95 % of the disabled do not have insurance.
This is a great chance of disability stakeholders to network with the national hospital insurance fund to probably register all disabled persons visiting the health service providers.
Moreover, the lack of insurance as a social protection measure has left many disabled Kenyans to be more vulnerable.
Solution for NHIF:
I would suggest NHIF recognizes and automates its system to include the disability card issued by NCPWD.
Absolutely this would increase the uptake of insurance among disabled Kenyans.
Will the Kenyan legislature enact an insurance regulation of eliminating the wait time for employment insurance payments?
Third factor is Logistics:
Unfortunately, accessing the pharmacy can be risky for some disabled Kenyans and people with chronic illnesses and even pregnant women.
. Some people with disabilities may also face logistical challenges in getting to the pharmacy if support services become disrupted
due to sudden rise of isolations and being left behind.

Moreover, the Kenyan pharmacy are yet to embrace the mailing services. This could have been a solution instead of putting all at risk.
Will the delivery companies in Kenya grab the opportunity?
The ministry of health has announced measures of
Of ensuring localized outbreaks and social distancing measures are observed.
Absolutely, in some countries already there is massive disruption of supply chains. What can Kenyans with disabilities learn?
Disabled Kenyans and persons with chronic illnesses can’t stake their lives on the assumption that the availability of medications will remain stable in the coming weeks and
months. They need to be able to stock up now.

I opine that Disrupting treatment always endangers patients, but even more so in a pandemic.
The need for inpatient treatment will likely exceed capacity in many communities. this is because Kenya and other developing countries we still have weak health systems and inadequate health infrastructure. COVID-19 is expected to heavily tax the resources of the Kenyan health care system.
Will Kenya now revisit the Abuja declaration on Health Budgeting?
Further Than, outpatient clinics are likely to have a high number of patients
seeking treatment for COVID-19 symptoms, making avoidable visits risky for those more vulnerable to complications. Additionally, patients whose chronic
conditions are destabilized are in danger of becoming more severely ill if they are infected with COVID-19.
Water access:
In Kenya water access is a major challenge for all. Will the Kenya government break the cartels in the water industry to ensure water is readily available?
In Nairobi, Mombasa, Kisumu and other major towns its proven fact that many households go for several months without accessing running taps and forced to buy. According to UNICEF 40 per cent of the world’s population, or 3 billion people, do not have a handwashing facility with water and soap at home. Nearly three quarters of
the people in least developed countries lack basic handwashing facilities at home. Further, 47 per cent of schools lacked a handwashing facility with water and soap affecting 900 million school-age children. Over one third of schools worldwide
and half of schools in the least developed countries like Kenya have no place for children to wash their hands at all.
Forth factor nonvisual access:
Kenyans who are Blind or visually impaired do not have equal access to quantitative information including charts, graphs, and maps. For example, many of
us simply cannot perceive the data visualizations and dashboards that are regularly published by mainstream news organizations. As a result, we often have
limited or non-existent access to critical data, including information we aneed to make informed decisions pertaining to our work, finances and health. As
charts depicting the spread of Coronavirus and modelling how to flatten the curve are seen and discussed worldwide with Blind and visually impaired people
largely excluded from the conversation, we are starkly reminded that nonvisual access to data is vital to our equality and well-being.
The charts and graphics popularly known as “data visualizations” can – and should – be represented in formats that Blind and visually impaired Kenyans can
use.
Effects of COVID-19 on employment:
Centrally, my thoughts seem to be telling me a silent reasonable accommodation revolution in workplaces is being executed globally by Covid-19
as envisaged in the UNCRPD.
For instance, some tech companies Multinational like apple and google are demanding their employee to work at home. According to ILO 2017 with proper reasonable accommodations companies can benefit allot
This is to say that allowing employees to work remotely encourages more equality in the workforce by allowing more people with chronic illness and disabilities to participate and some studies show employees even report that they perform better in remote arrangements.
.
I believe working at home will assuaged persons with chronic illnesses and also individuals’ who are having low immunity.
Will the disability policy makers and employment gurus stakeholders rise to the occasion and present a reasonable accommodation legislation?
Now the people without disabilities we see your ableism tendencies being put in the right place
This shows implementation of disability related rights is possible. Should public and private sector await a catastrophe to implement disability laws?
It’s a fact that in Kenya after the road tragedy in 2002 by the Third president who was sworn on a wheelchair made the signing of the persons with disabilities act 2003.
Will public and private sectors reduce demand for office spaces?
Will public and private sectors in developing nations like Kenya adopt 24 hour economy by having there staff to work on shifts in order to avoid social contact?
Will companies in developing countries stop the analogue economy and switch to digitalization?
What does this mean to both employed and unemployed disabled?
What does COVID-19 mean to the almost 70 % of informal employment in Kenya who do not use digital devices?
All in all, we need disabled persons organizations to be engaged in advocacy on protecting people with disabilities from COVID-19 in both national and county levels.
This is by way of ensuring we have inclusive emergency plans and actions.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The Deep Crises in the Kenyan disability sector Author Mugambi Paul.

Kenya is a country faced ultimately by many challenges as a developing nation.
Issues of disabled persons seem to be hanging in the Kenyan movie of activities.
No one or any institution seems to understand how to handle the first pace changes taking place in the global disability sector.
The disability sector seems to be blaming each other for the failures and the inadequacies felt by the wanjikus with disabilities.
Issues ranging from lack of representation in the building bridge initiative, lack of adequate data from the Kenyan bureau of statistics to delayed
Service delivery.
Let me not dwell on the Corana virus.
As a public policy scholar let be engrain me to the importance of collecting desegregated
data for disabled. Persons.
According to standard media, the release of additional census data by the Kenya National Bureau of Statistics (KNBS) should be a wake-up call to policy makers in both the county and national governments. The numbers present valuable information on trends and patterns within the country’s demographic that should inform policy decisions and resource distribution
This was after the realise of the numbers byt the Kenya bureau of statistics. Unfortunately, for disabled person it was a bitter peal to take having lots of expectations.
The data presented seem to have reduced the numbers of persons with disabilities.
What happened?
The reality check indicates the lack of proper representation and lack of technical knowhow of disability data desegregation took place.
did the disability sector participate in the cycle of activities at the Kenya bureau of statistics?
The data released seems to be negative.
Reasons?
First application and training of the use of the Washington group of questioners was not properly conducted.
Secondly no pilot activity was done on how to collect disability desegregated data.
Thirdly the training of enumerators was a second thought.
Fourthly, were the organization of disabled persons involved in the process?

Facts for consideration:
It is well known. That
An estimated one billion people worldwide live with disabilities. Of the world’s poorest people, one in five live with disabilities.
Notable, in developing nations like Kenya conditions where we lack material resources as well as opportunities to exercise power, reach our full potential, and flourish in various aspects of life. (WHO and World Bank, 2011).
Globally, People with disabilities were not listed as a priority in the Millennium Development Goals. This is also true in the Kenyan context where disabled persons are not listed in the big 4 agenda. As a result, there is exclusion from many development initiatives, representing a lost opportunity to address the economic, educational, social, and health concerns of millions of the Kenyan’s most marginalized citizens (UN, 2011). In contrast, for the 2030 Agenda for Sustainable Development, United Nations member states pledged to leave no one behind, recognizing that development programming must be inclusive of people with disabilities.
Expected irreducible minimum:
To ensure disability-inclusive development, disability data must capture the degree to which society is inclusive in all aspects of life: work, school, family, transportation, and civic participation, inter alia. Disaggregating disability indicators will allow us to understand the quality of life of people with disabilities, towards developing programs and policies to address existing disparities.
Opportunity for Kenya disability movement:
Kenyan disability movement should stop board room meetings among themselves and join where the cake is being mashed and prepared.
At the Global Disability Summit in July 2018, the World Bank announced new commitments on disability desegregated data support to countries.
Specifically, the Bank pledged resources to strengthen disability data by scaling up disability data collection and use, guided by global standards and best practices.
This commitment is aligned with the World Bank’s October 2015 pledge to support the 78 poorest countries in conducting household surveys every three years. Regular household surveys are an excellent option for disability measurement, as they can be stratified to oversample people who are more likely to experience limited participation in society. In multi-topic household surveys, disability data can be collected along with other socioeconomic data, enabling a richer analysis of the experiences of people with disabilities. Finally, regular household survey programs can measure the change over time and space in key indicators such as the frequency of types of disability, severity of disability, quality of life, opportunities and participation of people with disabilities, and rehabilitation needs. For example, the recently launched 50×30 initiative may offer a good opportunity to collect disaggregated farm- and rural-related indicators by disability status
The Kenyan disability sector should stop ghetorization of disability issues and we shall realize real mainstreaming when we speak to where barriers exist.
It is encouraging that more disabled persons in the social media are demanding a specific census for persons with disabilities.
Weather this will be executed time will tell.
All in all, we need a model survey for disabled persons in order to have proper planning and ensure we get the Kenyan national cake.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Will you Be my Valentine? “Tips for an extra special day with your blind partner” Author Mugambi Paul

Friendship, love, and romance are in the air with Valentine’s Day in Nairobi..

Whether you’re on your first date, or it’s your tenth with your true love, planning the right date night, getting the right flowers, a gift, dinner reservations,
etc can be a bit stressful.

And you may imagine that going on a first date with someone who is blind or visually impaired can even be more awkward.

But in reality, going on a date with someone who is blind or low vision is no different than dating any other person.

Here are a few tips for sighted companions or partners to help make your date memorable.

#1 Sighted Guide

Consent is key! Once you’ve selected a place, made a reservation or planned an activity, don’t forget to brush up on your sighted guide technique.

There is an etiquette to offering sighted guide assistance to a blind person. Always ask first, don’t grab or push.

Now a days I combine my White cane experience with Sunu Band
to navigate indoor spaces like restaurants and cafes. Moreover, it has aided me with the line like at theaters, so I know when it’s my turn to move up in the queue.

The Sunu Band is also great for when you are doing a sighted guide as the blind or low vision person being guided retains awareness and more control.

#2 Be descriptive

But not overly so – allow your partner the chance to soak in the ambiance.

Now that you’ve arrived at that fancy, romantic restaurant or place, offer a lite description of where you are to your partner.

Allow your blind partner the chance to ask about his/or her surroundings.

#3 Don’t just read the menu

make it conversation instead of reading a list.
You know Nairobi hotels and restaurant do not offer braille, or large print menus, you have to check with your partner their preference.

If those aren’t available, you can start by asking what are they’re in the mood for drink and food? If it’s a place you know well, make a recommendation
or mention the specialty of the house.

But whatever you do, don’t order or speak for your blind or low vision partner. Especially, don’t allow waiters or staff to ask you to speak for your blind
partner.

In the event it happens, tell your waiter to direct the question or comment to your partner.

#4 Table manners are still king

And throw away the messy stereotypes. Enjoying a meal with someone who is blind or low vision is just like eating or drinking with anyone else. Again being
a little bit more descriptive is good.

When the meal arrives, you may offer a quick description of where things are on the table. For example, your wine glass is to your left or at your 9 O’clock.
Sometimes using the clock reference is helpful.

Remember, don’t overdo it and stress about the vision impairment. Just be yourself and enjoy each other’s company through great conversation, drinks, and
food. At the end of the date, the most important thing is that you both have fun.

Additionally, everyday should be a valentine.
You should even practise self-love.
Self-love means allowing yourself to be happy. Too often, we manipulate ourselves instead of increasing the amount of joy we bring to our lives.

So, every day, do things that make you feel good. Even 10 minutes of self-care can add up and make you feel much better in the long run. But you’re worth
more than 10 minutes. You are the most crucial person in your life. Act, accordingly, show love, and be open to receive love.
All in all, do things that fulfill your soul. Get rid of people who don’t make you feel good.
What others say or think about you has nothing to do with reality. It’s just their perception.

Sure, we’d all like to be around people who are kind and loving, but the harsh reality is that rudeness exists. Yet, it doesn’t need to affect you and
especially not your wellbeing.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The cost of remaining mum on Kenyans living with disabilities and individuals with chronic illness Author Mugambi Paul

Research shows that most chronic illnesses can affect every single part of individuals life, but it doesn’t really look like it. Some chronic illnesses have constant pains and fatigue among individuals [WHO 2011].
On the other hand, I have engaged several individual in the social media platforms.
This has led me to learn several lessons
You might not know a person is suffering if you don’t communicate ]HI 2011].
I classify some of these individuals as having invisible disabilities.
This is to say invisible disabilities mean that often times,
people don’t believe that actually individuals can be sick. This leads to people saying common things that, despite usually having good intentions, can come off as rude,
dismissive, and ableist.

The one I’ve heard the most is something that has undoubtedly been said to every person with an invisible disability or illness – the dreaded ‘but you
don’t look disabled nor sick!’. This happens all too often as an offhand comment, but it’s also been followed by heartbreaking situations like eventually losing friends
who haven’t believed that chronic illness or having impairment was real because people don’t look or act sick in the way they think one should be?
So, to give you a bit of a crash course, here’s some examples of what NOT to say to people with chronic illness.

‘But you don’t look sick!’

Yep, I know – but I am. These five words reduce health down to appearance, which is not the case at all. You might be saying this with the best intentions
(hopefully shock, because someone look ~too stunning~ for someone who’s actually very ill) but what it actually does is hits on one of the biggest fears of chronically
ill people – that people don’t believe them.
Actually,
Personally, whenever someone says this, it just reminds me of the many times people haven’t believed I can’t see because I didn’t *look* Blind. You might mean it supportively,
but all I hear is doubt.
This is because am super in mobility and orientation especially in familiar territories.
Sometimes it’s an anxious moment for me when individuals with out disabilities just plainly discuss behind my back “look at him, he is just pretending, he is comfortable” not knowing I have to go an extra mile to orient myself, secondly he or she doesn’t know that I have to do it since I don’t have alternative.
Additionally, I note that Not all illnesses are visible.
I can guarantee you; every chronically ill person has tried absolutely everything they physically and financially can. I cannot think of one person who’s
simply said, ‘ah bugger, I’m chronically ill. I’m not going to bother trying things to feel better!’
Trust me, some have tried it all; all the doctors’ and specialists’ suggestions, and yes, a bunch of the tinfoil hat ones too (desperation and lack of medical
answers make for strange bedfellows).

Examples of suggestions of what my friends the blind community and other persons with disabilities have tried including: various supplements, Chinese herbs, marijuana, LSD, ketamine, essential
oils, drinking their own urine, crystals, B12 shots, spirulina, charcoal, detoxes and juice fasts, prayer and religion – the list goes on,
as a blind fellow you can guest which one of them, I have tried I’ll let you ponder on which).

And before you ask, yes
You have seen many disabled persons, the chronic ill persons going to work, or you saw a photo of one catching up with a friend on the weekend. That’s irrelevant to whether he or she look ‘okay’ to you now
He or she still remains ill, and he or she maintains his or her impairment since they do not disappear.
According to several studies they indicate the nature of chronic illness is, sadly, extremely can be unpredictable. One can have totally manageable levels of pain and fatigue one day, and barely able to
walk the next. Sometimes it’s because one accidentally overexerted himself and went over my limits, but sometimes symptoms flaring can be completely random.
If you find it annoying, just try to imagine how frustrating it is for individuals with chronic illnesses. Regardless, some have always sick and in pain – some days some are just able to manage
it (and hide it!) better than others.

‘You just need to snap out of it and push through.’

‘Pushing through’ actually makes someone, and many others with chronic pain and illness, worse.
In Kenya and other developing countries there is no particular policy framework addressing concerns of persons with chronic illnesses although a mention here and there on different framework.
Most families carry the burden of taking care of chronic ill individuals and this affects the economic and social wellbeing of the society at large. The resources used to trat could have been used for other functions [ILO 2017, undp 2016].
Its high time we have particular social protection measure to address persons who have chronic illnesses.
Moreover, one of the major experientials in the disability world and chronic illness which seems to be similar is the way the society expects us to push ourselves beyond our limits
Obviously its so great to push beyond limit but this doesn’t apply to all persons. What the society doesn’t understand persons with disabilities and individuals with chronic illnesses are not a homogenous group.
one is sick or disabled every single day, and know their body and their limits better than anyone – so telling one to ‘push through’ is actually
the worst possible advice. When you’re talking to someone with disability or a chronic illness, remember just because you’d be able to manage something, doesn’t mean
they can or should. Don’t assume someone’s health and limits for them. It totally removes their agency as a human being.
Besides having a disability some individuals might also be having chronic illnesses.
‘You’re too young to be sick!’ or sometimes for disabled persons they say woyee woyee how comes he is blind?

Yep! He or she is young! And sick or having a disability! It sucks. But sickness and chronic illness isn’t exclusively the domain of the elderly; people of all ages can get sick. The society needs to understand that Doesn’t
make their experiences less valid, or their identities abnormal. They just sick in a cool young person way, I guess. I don’t know – it’s a weird thing to
say, so just don’t.

‘If you stopped talking about it all the time and looked on the bright side, you’d feel better.’

I do! To be totally frank, as a blind fellow if I didn’t look on the optimistic side, I wouldn’t be alive right now. Being blind for 23 years now it’s not a walk in the park.
It takes strong will to be in this unjust society.
This also applies to other fellow disabled persons.
Needless to say,
Being chronically ill is also tough as hell, and many chronic
illnesses have strong ties to mental illness. One has to look on the bright side A LOT, otherwise their depression and just the daily battle of being sick
would drag one down and some can’t be able to get out of their beds.

All in all, people should be able to talk about their lived experience as much as they deem appropriate, and disability and chronic illness is not spoken about
enough. Let them vent, let us explain, let them talk about their day!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Should the disabled Kenyans stop be being in Automobile state? Author Mugambi Paul

Majority of Kenyans still see disabled persons as objects of pity. I believe with a collective paradigm shift of mindset we can do it [UNDP 2018]. With the new decade we can stand up and say no to discrimination and harassment of disabled persons. [UN enable 2019]
needless to say, as a totally blind person myself, I am all too familiar with such dehumanizing treatment. Often disabled individuals are treated differently, simply because we look, act, move or communicate differently. But should our differences, stemming from disabilities that we did not choose, be an excuse or justification for others to treat us as lesser individuals?
Unfortunately, many of us, the disabled Africans keep silent as this evil is perpetuated.
This is done by either family members, friends, employers and even in the public spaces.
In liberal democracies, citizens have the right to equal treatment under the law, which means that governments should not differentiate among people without good reason to do so. This is known as the principle of non-discrimination.
That’s because true equality requires a government to actually dismantle structures that perpetuate group disadvantage, either by providing preferential treatment or special protection to those on the wrong side of invisible barriers.
During my tenure as a student leader at Kenyatta university we pushed the policy agenda for affirmative action in university admissions for students with disabilities.
although we din’t get to enjoy the fruits of our advocacy.
Am grateful that the future generation of students with disabilities from 2010 din’t have to pay the price. there were great lessons.
Search as not everyone understand the journey for social justice.
Secondly as a leader you have to sacrifice for the people you lead.
camping at Professor Jude Ong’ong’a and professor Katana DVC academics and registrar academics respectively, was the order of the day.
This was to ensure no disabled person misses the exam card.
With this not withstanding the employers in both public and private sectors in Kenya need to borrow a leaf.
None of these preferential treatment policies are a magic solution for ending group discrimination and segregation, but without affirmative action policy the number of students with disabilities in both public and private universities would be far less than they are today.

On the other hand, In Kenya we have lots of disability awareness campaigns which have highly been of great improvement in the area of advocacy.
In other words, at list the mainstreaming media and social media in Kenya has highly contributed to the improved changes not like when we were starting fighting for disability space.
Additionally, we used to be chased like wild dogs when we approached media gates and other public spaces as we sort for services.
It seemed all along Blind persons were associated with begging thus the maltreatment.
Thanks to the UNCRPD the tide has really changed though we still have a long way to realize the dreams of our forefathers like EDDY Robert of the famous quote “Disability is a club.”
The reality check on Kenya is that we have adopted a more contemporary position on disabilities with accompanying policies and legislation, the general population remains rooted in the medical/charity model of disability.
I can site many examples of how Kenyans see the disabled as objects of pity who require sympathy, help or fixing. These interactions dehumanize and segregate PWDs. When one lives solely in a world of handouts and tokenistic gestures of goodwill promoted by corporate social responsibility initiatives, no dignity is earned, nor will any respect be gained.
For instance,
as a Blind artist and also a professional diversity and inclusion expert many a times people want to pay less for my works in comparison with non-disabled persons [Riayan 2019].
Sometimes with out blinking they demand to be offered service for free.
You really wonder if a blind artist and consultant uses free energy and free provision of his or her needs in his or her life.
Another example is the corporate who allege to organize support for assistive devices or marathons. Do these events actually sustain the disabled persons? Do the activities benefit a few individuals with disabilities and then sing Hosana?
I vividly remember how a vision impaired was almost being lynched at a Muhindi shop in town. This incident happens when he was checking the prices of bags and shoes.
The owner thought the vision impaired individual was a thief.
As long as the disabled are viewed as lesser or alien, dehumanizing incidents like the one we experienced at the media gates, will continue to be a common occurrence. Many incidences of disability-related harassment and discrimination have gone, and will continue to go, unchallenged. Despite protective legislation, sadly, little can be done to address the dignity that has been willfully trampled upon.
As a public policy scholar, this leaves me to conclude that decency and respect for a fellow human being cannot be regulated through legislation alone.
I recognize and appreciate that my views on such matters are not
widely shared by everyone in disability movement nor in our society. I acknowledge
that there are many traditions in our society which reflect different
experiences and perspectives than my own. All the same, I am proud to be
guided by a strong code of conduct that embraces diversity with respect for
divergent differences of opinion, beliefs, identities, and other
characteristics. What I stand for demonstrates that as a blind person am from a diverse cross section of society.
As a global citizen who happens to be blind, I have had the privilege of travelling to many different countries. Of the many that I have visited, Australia and Israel stood out the most. Perhaps due to their experiences and effective implementation of the disability policies.
. In my many visits, I have yet to be discriminated against. I have been treated not only with dignity but have always been offered help respectfully
when needed.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

What’s Next? severe disabled wish. guest Author: petergibilisco Researcher, author and advocate. Bachelor of Business Accounting, PhD from Melbourne University. Dealing with issues involving disability.

I wrote and published this article on OnlineOpinion over 11 years ago. It is troubling to me that nothing much has changed over all that time.

I am still trying, even though I’ve got 1/4 of the abilities I had back then in 2008. That means now, I am constantly pushing the boundaries of my remaining
abilities to speak against injustices. I want to achieve so much in a personal, social and academic sense and all I ask is to be given the opportunity
to do so.

It is probable that everyone will get an itch somewhere, sooner or later. And so, when you get an itch, you do what comes naturally: you scratch it! It
is a simple process that itches are made to feel better when scratched. Or so it seems.

But what if you can’t scratch? I mean, what if you can’t scratch where it itches because you have nothing to scratch it with? It may be an itch that is
underneath your plaster cast that is in place to help with the healing of your broken knee-cap. What if the itch can’t be localised? What then? It is not
such a simple problem.

I happen to know a lot about the problem of scratching itches from a rather unique perspective How? Because I have a neuro-transmitter dysfunction that
simply won’t allow me to reach wherever it itches. So I have learned to cope, to block out the irritation. I have to admit that it is, indeed, a luxury
when I am fortunate enough to have a very empathetic support worker who can help me by scratching my back or my ear, but I won’t bore you with all the
details of my relief because I have only raised this with another purpose in mind, a purpose I might add which might help our society understand the itches
people like myself have to deal with.

I would like to draw attention to what disablement can mean to someone like me who suffers from Friedreich’s Ataxia. I’ve been attacked by this progressive
disease, since I was first diagnosed in 1976 when I was 14. Now I am confined to a wheelchair and need daily assistance with routine transfers, hygiene
and most of my daily activities. Living with a degenerative disease has broadened my thoughts concerning disablement and allowed me to focus on the need
for empathetic behaviour from those directly related to disability.

In 1981 I was 19. That was the year of the first United Nations International Year for Disabled People. You’d have to say that my life, with the progression
of Friedreich’s Ataxia, since then has tracked the development of public policy that has, in significant ways, taken seriously the problems that disabled
people have to continually and progressively confront.

In this sense mainstream society has begun to acknowledge disablement as a serious itch that needs to be carefully scratched with appropriate care, tools
and resources that are outlined in just policies.

And so there are policies, legislation, a wider social commitment, education and programs now in place that show, in this country, that we have a significant
society-wide compassion to assist those in great need. But, yet the itch is still not appropriately scratched!

Yes, we need ramps and railings that lead into public buildings. But, there needs to be something more. Let me tell you that I have received much, for
which I am very grateful. And have come such a long way with so many people to thank. I often wonder, how can someone like me have got this far? And with
a disease that has made a greater impact over my body as time passes.

I am now 45 and my care needs increase almost by the day. Yet despite this I have just completed a study tour in Hawaii visiting the University of Hawaii,
Center for Disability Studies. My social enquiry in the US focused on how many people with severe disabilities yearn for, and are capable of performing,
most human activities – with assistance from a support worker.

I was diagnosed with Friedreich’s Ataxia at 14 and then my mother died of cancer when I was 18. I was well and truly on a downward emotional and physiological
spiral. By 23, I was confined permanently to a wheelchair. But it was also around this time, with the encouragement and perceptive advice from a close
lady friend which lifted me out of a fantasy land of self-pity, that I began studying for an Associate Diploma in Accountancy at Dandenong TAFE. That inclusive
and happy learning environment gave me inspiration to tackle life with vigour and it still serves as a reminder to me when, like anyone else, I develop
the usual emotional itches which need scratching. That was my 1984.

But that year, 1984, reminds us of something else doesn’t it? Since then, my life has been not unlike the problematic world that George Orwell describes.
It is especially relevant to people like myself who are really very grateful for all the special consideration, no matter how insignificant, equal opportunities
and affirmative action we have received over the years.

But why is it problematic? It is problematic in an Orwellian sense because we know that if we raise a voice in criticism, even if we are trying to be constructive,
we put ourselves in an exposed situation. After having traveled so far, with so much kind assistance, it can too easily sound like we can never be satisfied
and can never get enough freebies.

It’s as if after graduating with my PhD, and then in 2007 when I was presented with the Emerging Disability Leader of the Year award, I developed a new
itch, but just didn’t know where so it could be scratched. My PhD thesis, my academic journal articles and my On Line Opinion pieces were all being applauded
but, somehow, the major issue I was trying to discuss was being ignored.

I think public policy towards people with disabilities, and in particular severely disabled or progressively disabled, has ignored some important factors
to the detriment of our society.

First, I will sound like a broken record by offering my analysis over and over again; and second, our society cannot be, or become, the compassionate solidarity
it claims for itself if it doesn’t hear what I am trying to say. I have a sense of obligation here to speak out. It’s not just for me, although I am painfully
aware of its application to myself and to my own situation.

The point is this: for some of us the special consideration, equal opportunity and affirmative action, designed to get disabled people into the mainstream,
paradoxically brings us to a more exposed and needy situation. This cannot be addressed without more special consideration, further and ongoing application
of equal opportunities after training is completed and further affirmative action once we have obtained our qualifications. It is a simple point that can
be readily illustrated.

This illustration of policy dynamism is based on the approach I have identified as pragmatic social democracy, advocated by Hugh Stretton and Marta Russell,
in my Doctoral Dissertation.

Once a person with a severe disability at TAFE, for example, receives a diploma then society’s responsibility to that person is not somehow fulfilled,
because at that point the obligations have actually increased. The person may need special support to attend interviews, and when that person is offered
and accepts a position of employment it may be necessary for technical and other assistance.

I could repeat this point for each of the steps I have made through my own higher education: TAFE Diploma, Bachelor of Business, Bachelor of Arts, Master
of Arts, and Doctorate of Philosophy. There are other facets to keep in mind as well. Somehow we need to find a way to view and support people with a disability
in pro-active methods of equal opportunity; rather than focusing on the medical model’s view of a sympathetic approach: people with severe disabilities
need an empathetic approach, aligned to the social model. My assertion is that society’s responsibility increases in specific ways oriented to professional
commitment and involvement, once the student with a severe disability graduates.

But, as my own needs, and possibly those of others, have increased or are increasing, support is not only to be seen in educational terms. The dynamic
of increasing support reflected in policy should also seek to meet the increased needs which the policy at an earlier point has also helped to bring about.
There are also increased needs of those who support, as well as, the increasing needs of the person with a disability.

For a TAFE graduate like myself, I was faced with a daunting prospect. I had a wonderful Technical and Further Education experience, which affirmed me
as a mature-age student, and I was no different in some ways from any other TAFE graduate: “What next?” we asked. Leaving TAFE for all of us in that year
was a life changing experience, but life moves on.

Life moves on. That is the irony that is central to my attempt to point to the dynamic at work here. But the paradox is that not all of us, and not all
disabled people, have to deal with a progressive disease. To apply for a job in an accountancy firm after my graduation from Technical and Further Education
would have been to ask the prospective employer to initiate a general policy change that we, as a society, were only just beginning to think about let
alone implement.

The political consideration of equal opportunity and affirmative action was still at an early stage. So, as I look back on it now, it is no wonder that
I was attracted to the higher education field which proved to be more advanced, and hence more hospitable to me with my particular needs, than most other
areas.

I am the beneficiary of higher education which has been required to make room for disabled people. But then, it seems that higher education was also being
re-oriented to make it compatible with job training for a post-industrial society. In such an environment, as Marta Russell has pointed out, a university
degree becomes the evidence that society has met its obligations to help disabled people compete. Equal opportunity was not always matched with appropriate
affirmative action.

In this respect I would suggest that affirmative action needs to be taken to a new level. And perhaps this new level cannot be reached without recognising
the ongoing obligation which a degree-granting institution has to its graduates. Understanding mutual obligation from the institution to its highly qualified
graduates is downplayed if not lost entirely.

In my own case, a university which takes a qualified post-graduate student with Friedrich’s Ataxia into its PhD programs, should not view itself as giving
a sympathetic expression according to the medical model’s agenda, which has the unfortunate ability of systematising disability policy pursuits. Although
that is, I am sorry to say, the predominant way in which Australian higher education under third way and neo-liberal policies tends to view such achievements.

That’s the itch I have wanted to scratch. We need universities that will recognise that their institutional mutual obligation is not transacted merely
by granting degrees and then every year thereafter sending out brochures inviting its highly qualified alumni to give generously to the university’s noble
cause.

In my case I am forced to ask: How is it that the university has not required me to give back by post-doctoral research and to be part of its ongoing research
effort? How is it that it can take on a candidate without expecting to maintain its responsibility to provide ongoing support after graduation, and also,
in order that its own research work is enhanced by my contribution?

Note, my point is not to ask that my work be judged before I do it. I am referring here to the lack of effort or empathy that seems to come from the side
of those administrating higher education institutions in Australia.

Writing On Line Opinion pieces, or developing my own Blogspot, are indeed satisfying experiences and I would not want them to be taken away. But such personal
satisfaction at getting a paper published is not the main game. What I am concerned about is the development of genuine policy for the severely disabled,
and in particular, policies that will seek to meet needs that arise from progressive disability.

I have always done what is needed to be done, and I only wish to keep bringing to light the individualism of people with disabilities.

PETER BOOK POSTER FINAL

I talk about social issues and disability in my book, 6 and a ½ Years on a Dunghill: Life in Specialist Disability Accommodation.

DREAM OF DISABLED KENYANS. A speech on 3rd December to commemorate the international day of persons with disabilities in Kenya. Author Mugambi Paul

As Lopita Nyong’o said “dreams are valid”

I am humbled and grateful as your Cabinet Secretary.
The Makueni governor,

My principle secretary,
NCPWD board and secretariat.,
The ministry of labor social services.
Distinguished disabled persons, wananchi hamjambo?

I’m preaching to the converted when I say that getting a job and having a job is an absolute game-changer in everybody’s life and that shouldn’t be any different for somebody who has a disability or somebody who lives without one.
The importance of the independence, the self-confidence, the skills and the connections to society and community that are created when you have a job are absolutely essential and not the least of which it means you have an income.
needless to say, we are committed as a Government around employment for all Kenyans but in my position as the Cabinet secretary for Labor and Social Services I’m very focussed on disability employment.
My one simple goal as the cabinet secretary responsible is to make sure we give Kenyans who have a disability access to the full suite of opportunities in the employment sector – whether it be self-employment, open employment, supported employment or other types of employment.
In other words, it is absolutely essential we continue to focus on that.
I want every Kenyan living with a disability who has the capacity to work to get a job.
In particular, I want to see more opportunities for every person who’s able to get into open employment, to actually be open employment.
I want to make sure that employers see employing a person with a disability as just a mainstream, everyday activity.
I want everybody who’s living with a disability to gain from the big for agenda plan by the president.

Furthermore, with respect to the world of work, Kenyans living with disabilities have historically faced serious challenges and barriers impeding their access to employment.
This represents a violation not only of their rights, but a loss for our societies and economies. Many persons with disabilities continue to face discrimination
with respect to opportunities and outcomes in the Kenya world of work.

According to Thorkil Sonne, Chairman of Denmark’s Council for Corporate Responsibility and Sustainable Development Goals (
“Results from many employers show that it makes good business sense to provide inclusive work environments for people with disabilities. You will get the
work done, and also harvest positive side-effects such as higher engagement, higher retention rate, joy of work, sense of purpose and improved management
skills in the workplace.”
Unfortunately, employment in Kenya does remain an issue for people with disability – I’m not telling you anything that you don’t know.its a proven fact that many employers in both public and private entities have continuously practiced marginalization and discriminatory tendencies [ILO 2017 Whiteford 2018]
For instance, some employers have failed to consult disable employees and thus arbitrarily transferring them.
This must stop since it causes mental distress and frustrate the employees with disabilities.
To make matters worse no provision of reasonable accommodation and measures are put into place.
As a government we shall take actions to ensure especially the public entities provide platform of consultation as envisaged in in the 2010 constitution. This is well supported by ensuring reasonable accommodation as enshrined in the UNCRPD and the public service disability mainstreaming regulations 2018.
My ministry will set the example by ensuring this is followed to the latter.
I also take note of Participation in the workforce for people with disability which is lower than those that live without a disability [daily nation 2015]
Participation rates for people without disability continues to improve in our workforce but participation rates for people with a disability hasn’t [Mugambi 2017[
In fact, at the moment there’s a 70-percentage point difference between the participation rate for people who are without disability and those with a disability.
Additionally, we are absolutely committed to make sure that we fix that problem and there is every reason that we can with the help of the people that are here in Makueni.
Improving employment outcomes is a high priority when it comes to disability and I’m sure that it’s absolutely the highest priority for Kenyan government.
But equally we understand that as Kenyan government there are things that we need to do, levers that we need to pull, policies that we need to put in place to ensure that we give you the best opportunity to deliver on behalf of the people in Kenya with disability.

Today, I wanted to talk about some of the key policy levers:
Social protection strategy.
NCPWD strategy
Persons with disability bill 2019.
Draft disability policy
National action plan on accessibility.
At the end of the day, my decisions are guided by what is best for the individual and that must be guided by the feedback that I get from individuals who live with disability and from people like you who engage on a day-to-day basis with the employment sector.
I hope the national employment authority, NCPWD, federation of Kenya employers and other stakeholders will be keen to realize this dream and vision of ensuring Kenyans with disabilities get to the job market.
Its clear in my mind employment of persons with disabilities is the most absolutely needful priority of all times.
We thank the NCPWD for the last 16 years for endeavoring to reach out to employers.
NCPWD through the disability mainstreaming have helped employers to get themselves up to speed in understanding what it is to employ somebody with a disability but, most importantly, to retain those people in the workforce.
Over the next 3 years, my ministry will collaborate with partners and ensure we commit to reducing the unemployment rate among Kenyans with disabilities.
This is through having substantial reforms which will ensure improved employment outcomes.

I am keen to hear back from you as to how you think things are going and what you would like to see us doing in the future so that we ensure that we maximize the opportunity for every Kenyan with a disability who wants to work to be able to get that job and keep it.
In other words, this will ensure disabled persons are at the co plans and get to participate in public policy reforms and implementation.
Moreover, A crucial element in all our efforts to increase the employment outcomes for people with disability is the attitude of employers.
It’s disappointing to see that whilst research points to the fact there is a desire for employers to employ people with disability, that desire doesn’t often translate into actual action.
A lack of confidence appears to remain in the wider employment sector about employing people with disability.
I want to work with you on how we encourage greater understanding in the employment sector about the huge benefits of employing somebody with a disability.
If we can just get the employers through the door, they will be able to understand that with the right support people with a disability can be some of the greatest employees that they will ever have.
I think that’s what we need to make sure to continue.
We can do better; we will do better and I’m sure working together that that outcome will actually be achieved.
We need to make sure we give people with disability access to the full suite of options for employment – be it self-employment, supported employment or mainstream private and public sector.
Lastly I promise Over the coming 12 months the Department will be working with all sectors, whether it be your sector, whether it be people with disability, whether it be the business community or county governments, to make sure that we develop a Disability Employment Strategy that starts to mainstream disability employment into everybody’s vocabulary.
Because clearly everybody benefits, absolutely everybody benefits, when more Kenyans are in working.
Lets all work towards achieving the global commitments we made in July 2018.
In conclusion can I just say thank you so much for the opportunity to be here today.
I hope you have a fantastic Christmas holiday.
Kindly do not drink and drive.
Kenya needs you more.
Happy new year 2020

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Why the Blind in Kenya were duped on money identification! Author Mugambi Paul

Before reading any further, close your eyes, reach into your purse or wallet and fish out 1,000 Kenyan notes.
What comes in your mind?
Can’t do it? You now know what currency discrimination feels like.

Currently, over one million blind and vision impaired Kenyans depend on someone else — a family member, friend, cashier or bank teller — to identify the
denomination of each notes for them before they can organize their money to spend themselves.
How many Blind and vision impaired persons have been duped?
The latest statistics even includes the Daughter of the head of Africa infrastructure Rose Odinga.
Furthermore, central bank of Kenya had great aspirations, but they were also duped.
To put matters into perspective the real Blind and vision impaired persons were not engaged.
Thus, lack of public participation.
who is the disability rep on the central bank of Kenya board?

I observe that, there are sighted teachers who have served in Blind schools for more than 2 decades and they don’t know braille or interest in adaptive technology.
Additionally, there are persons working in the disability sector and they don’t know what reasonable accommodation nor universal design is! This is the root course of current acceptance of mediocre leadership in the Kenyan disability sector at large.
This is also coupled with the charity-based model where the disabled person is offered a token to justify the service.
I affirm that due to this most public and private sector will claim they don’t have the capacity while they have not granted the disabled a chance.
Casing point is the employment opportunities
.
No wonder even the Blind and vision impaired persons are the most highly discriminated in job advertisement.
For example the Kenya national youth service, police and army.
Why does the Kenya society underestimate Us?
Did the Kenyan blind and vision impaired Peak bodies speak out?
Did the any human rights body speak out?
The jury is outside.

During the Madaraka 2019 what the Blind and the vision impaired persons were meant to celebrate the newfound love of government commitment to accessibility as per the constitution
2010 and the UNCRPD on matters universal design was not achieved.
Although we got a token of the cash notes having different colours.

I know some of you will justify that we the “Blind and vision impaired” should accept the token.
This is not going to happen.
I foresee the Blind and vision impaired persons arising and demanding for better access of the money identification.
The small bit done for different notes on colour is highly appreciated.
The Central bank of Kenya should realize the advantage of accessible cash it’s not for the blind only, but it will assist the highly tech young persons, veterans and those facing eye problems.
As public scholar and my passion for advocacy I have evidently seen how the engagement of persons of concerns makes policy implementation easier.
Its now upon the central bank of Kenya and the blind sector to ensure we have accessible notes through consultations.
Can the real Blind and vision impaired persons stand up?
The central bank of Kenya needs to include a disability research component in its works.
Will the 2 Kenyan sleeping giants in the blindness sector arise and stand to be counted?

All in all, I opine, the blindness and vision impaired system in Kenya doesn’t just need to be ‘reformed’. It needs to be broken down, dissected, & re-built from the ground, up.
This will happen when the Kenyan Blind and vision impaired persons unite and have a common voice!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.

“Open letter to the Newly NCPWD chair” Mugambi Paul

“Open letter to the NCPWD chair”
Mugambi Paul

This letter is sent to our newly Chair of the NCpwd:
Dear sir,
Kenyan persons with disabilities
want the same opportunities as everyone else in the community – somewhere to work, somewhere to live, somewhere to enjoy the company
of family and friends, the chance to follow their passions and interests. We want NCPWD that makes these things possible – not stands in their way.

Using the ideas that have been collected for the last 15 years.
I have come up with the three C’s: three useful targets to help get the NCPWD
back on track. 1. Control

Kenyan persons with disabilities must be in the driver’s seat. It is their experience and their views that must determine priorities and drive change. Choice and
control must not be undermined or restricted by poor policies and processes.
For instance, it should no longer be business as usual for the Blind and vision impaired persons to receive brailed version of vision 2030 after a decade when it was out.

No disabled representative is at the building bridge initiative! Persons with disabilities must be empowered by their experience in the NCPWD, not further disempowered
and marginalised. And above all we want good outcomes for everyone –not just those who are educated, or well-resourced or who have an advocate.

So how do we make this happen?
list of 5 items
• Quicker, simpler and easier processes. Simple and plain communication that is easy to understand, more so for persons with developmental disabilities and Deafblind etc

• More help for people, families and carers at every stage of the process including application for assistance, peer support and advocacy

• Fully functioning and fit for purpose IT system that works for both consumers and producers of disability services at the county and national levels.
participants and providers

• Focused and resourced attention on groups who need more support – such as those with complex needs, severe disabled persons, Blind and those who have never been hard.

• More staff to clear backlogs. And competent well-trained staff with the right experience and expertise
Additionally, a 51 per cent disability employment target across all levels of the NCPWD including senior leadership. Currently
just 25 per cent of the NCPWD workforce have a disability.
Furthermore, on the public service I believe more needs to be done to stop the disability community
being shut out of public sector jobs
.
The 5 % has the target did not go far enough, given the consistent decline of employees with disability
in the sector.
According to public service survey 2015 Kenya has not yet achieved even 1 % target of employment opportunities to persons with disabilities.
I opine that targets needed to be supported by a comprehensive strategy to address the “unacceptably low” employment rates of people with disability
across the APS and in mainstream employment more generally.
A Kenyan National Jobs Plan to fix systemic problems that people with disability face finding and keeping a job.

This plan would include measures to strengthen the transition of young people with disability from school into tertiary education and mainstream jobs,
and would integrate with the social security system to support people with episodic disability moving in and out of employment.
Moreover, a whole-of-government and whole-of-community approach is needed to enable employers to create meaningful, flexible and inclusive employment, make workplaces
more accessible, remove discrimination and build positive employer and community attitudes.

2. Certainty

Persons with disabilities, their families and carers want to know the NCPWD will be there for them when they need it. Those who have made applications want to know
services will be there when and how they need them. And for those who do not have an assistances, other programs and services must continue. No one should be left
without support because Kenyan government can’t get it together.
Instructively, Kenya has been on top from the global disability forums that no one should be left behind.
So how do we make this happen?
list of 5 items
• Full funding should be enshrined in the upcoming national and county budgets and persons with disabilities 2019 bill

• Active support and intervention to make sure people have a diverse range of quality services to choose from. Intervene early to prevent failure and lock
in crisis support so no-one falls through the cracks

• Independently let NCPWD become policy formulator and a facilitator instead of an implementor.
For instance, immediate action on the way NCPWD works with other systems like health, justice and transport. All levels of government must sit down and work out how to synchronize services instead of making disabled persons to suffer.

• Greater develop and resource of the Information, Linkages and Capacity Building program. This will ensure NCPWD funds the disability persons organization to further efforts of advocacy instead of fighting each other.

• New timeframes for entry into the NCPWD, plant and equipment approvals and plan reviews;

• More help for people to navigate the NCPWD and get their assistance plans into action including more support for advocacy; and

• Targeted outreach for people who require additional support such as children, people who are Blind, psychosocial support and or Culturally or
Diverse backgrounds.
list end
but also initiate or restoration of other programs and services
that support people with disability, their families and carers
list end this should be reflected in the county and national levels.

3. Community

The NCPWD was never intended to work in isolation. The gap in life outcomes between those with a disability and those without will never close without action
in all areas of life – employment, health, education and transport are all areas that need immediate action.

So how do we make this happen?
list of 3 items
• Greater attention and resourcing to the Kenyan National Disability Strategy

• Immediate action on employment, education, housing, transport and health. Targets must be set – and met.
More so the big four agenda.

• An immediate timeline for a board of trusty’s actions in issuance of
funding

I observe that All across the country persons with disabilities
, their families and carers and people who work in the sector have been holding formal and informal forums in the social media, mainstream media and public forums. events and coming together to demand
urgent change.
Obviously, many policy makers know what’s need to be fixed but they aren’t doing so.
As the chair you need to listen to us. After all, people with disability and their families know what is and what is not working when it comes to the NCPWD –
and we know how best to fix it.
Scholars and researchers have recommended
The disability persons organizations should join together with a government and work collaboratively so we can get the ncpwd working well for everyone who needs it.
This is very true in many countries.
NCPW is a body mandated to promote and protect equalization of opportunities and realization of human rights for disabled persons in Kenya to live dignified live.
as a public policy scholar, I affirm that and There is no question that when the NCPWD works it absolutely changes lives. We see its life-changing power every day. But, for too many people, the NCPWD
is not working well. It is too complex and too bureaucratic – and as a result some people are falling through the cracks while others are missing out altogether,
we know of some truly heartbreaking stories of people who are really being let down by the NCPWD. There are people with disability waiting two years
for a wheelchair, there are persons with disabilities waiting for the disability card for 7 months, there are blind persons awaiting a braille display but told to have a white cane etc
There are families pushed to breaking point without essential support for their child. There are people hospitalised as a direct result
of the stress of trying to work their way through a bureaucratic nightmare.

“Situations such as these cannot be allowed to continue. That is why, today I have written this letter. calling on the new chair to
listen to persons with disability and commit to getting the NCPWD working the way it should – the way it is mandated in respect to the UNCRPD, SDG and the Kenyan constitution.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.