How Do Disabled People Feel About Discussing Their Disabilities? Guest author A Pulrang

The views expressed here are for the author and do not represent any agency or organization.

 

 

 

For people with disabilities, talking about our disabilities is complicated.

Sometimes, when people ask their perennial questions, or just look at us in a certain way, we can almost hear them say it:

“Go on! Do that thing you do, where you remind me how my own little problems aren’t so bad. Do that ‘inspiration’ thing that makes me feel better about myself for admiring you.”

What does it mean when a wheelchair user speaks at a political convention? What does it mean when a blind person gives a motivational speech, when an amputee engages students or employees on “disability awareness?” What does it mean when any disabled person, in the ordinary course of their day, is asked to explain their disability, or tell their disability “story?” And what does it mean when the disabled person tells their story? And what does it mean when they say, “No, not today. Not here. Not for you. I’m not here to be your inspiration.”

From a non-disabled point of view, it must sometimes seem like we disabled people can’t make up our minds. That’s because the whole subject is fraught with conflicting choices, each with pluses, minuses, and even moral implications.

Recommended For You

Researchers Doubt That Certain Mental Disorders Are Disorders At All

 

Synthetic Cannabinoid Drug For Covid-19 Approved For Phase-1 Clinical Trials

 

 

Do we raise awareness, or mind our own business? Do we welcome questions from the curious, or draw clear boundaries to guard our privacy. If we want a better world for disabled people, what is our own obligation to further that goal? Will we share our most profound experiences and thoughts about disability, and for what purpose — or whose?

Some of us are quite anxious to tell our stories to anyone who will listen. It can make us feel less alone with our burdens and traumas. Some of us draw strength and purpose from telling our stories of triumph over adversity, dispelling myths about disability, or advocating for better disability policies and political power for disabled people. Despite popular rhetoric about “not letting disability define us,” a great many of disabled people do organize much of our lives around our disability experiences and identity, and we do it intentionally, joyfully.

PROMOTED

At the same time, disabled people have mixed feelings about sharing our experiences with others. We all have different ideas about the pros and cons of sharing our stories, raising awareness, and “educating” non-disabled people about disability. And what we think about it can change from day to day, from person to person, and situation to situation.

To understand how disabled people struggle with these questions of sharing, educating, advocating, you need to explore some of the positives and negatives we juggle every day.

Positives

First, some disabled people find sharing their disability stories therapeutic. Many who were disabled later in life need to tell how they became disabled. And talking about our disabilities and everyday struggles with ableism can help all of us clarify how we feel about our disabilities.

While few of us like to admit it, many of us do in fact crave sympathy or at least empathy. Getting a positive, supportive response to our disability stories can be validating. It can, at least in the short term, compensate for some of the negativity and unvarnished prejudice we encounter regularly. And genuine empathy can actually make our lives easier by reducing misunderstandings and judgment.

There is also the practical benefit, or necessity, of sharing something about our disabilities in order to get help and accommodations that we need to survive, and that can help level the playing field for our ambitions. Having to reveal private information in order to obtain equal opportunity is a constant burr in our sides. But it is the most consistently beneficial payoff for this awkward exchange.

Finally, some of us choose to embrace being spokespeople of sorts for the disability community, and the cause of disability rights and justice. Some disabled people commit themselves to advocacy, motivational speaking, writing, and educating the public … all of which call for some degree or another of personal sharing. These commitments can give purpose to a disabled person’s life, if purpose is missing or uncertain. It can give meaning to a person’s disability, if meaning is important to them. For some of us, it’s also a living, and a potentially useful one.

The benefits available to disabled people for sharing our stories, experiences, and feelings are fairly familiar. It’s the negatives people tend to forget, but that are constantly on disabled people’s minds, precisely because they are so common and cut so deep so often.

Negatives

For a start, constantly retelling our disability stories can be a seductive trap. We tell it again and again, sometimes on request, or else in search of some resolution that never comes. We stagnate or worse, spiral further into depression and trauma. Also, other people’s curiosity about disability and disabled people’s stories tends to have a very short shelf-life. While they start out craving answers and compelling narratives, most people quickly get sick of them, especially if they fail to fascinate or uplift. Regardless, fixation on our own personal stories also makes it less likely that we will discover the broader disability community and disability issues, and that is a real loss.

Another problem is that many of us quickly come to realize how easily the visibility we craved for so long, and we finally seem to be getting, can be misused, no matter how carefully we craft our messages. As any disabled person who has addressed a political audience can attest, you never know just how much of your specific message gets through, and how much is drowned in a sea of sentimental responses to our very presence. Do audiences come away with a new understanding of health care, or home care, or accessibility? Or do they leave uplifted or amazed at how articulate the disabled speaker was, and how brave?

The most important thing to remember, but so many people miss, is that sharing our stories and educating people about disability always costs us something. The novelty of attention and praise eventually wears off, and you find yourself giving and giving, with little in return. Even if you are being paid … and far too many disabled public figures aren’t paid for what they give … sharing yourself, your passion, and your hopes with strangers takes a toll. And even the best audiences have little ability to give back.

Yet, disabled people are often expected to share our stories and enlighten others on disability matters … as if it’s our unique duty and special mission in life as people with disabilities. A calling is a personal choice. A duty is more of an imposition. A lot of people don’t understand the difference. On the personal level, friendly curiosity about our disabilities can quickly turn to sour resentment when we don’t immediately satisfy it. And demanding to be “educated” is often used as a “put up or shut up” answer to being called out for accessibility failures or other kinds of ableism. If we don’t agree to open ourselves up at all times and give free education, then ongoing ableism is implied to be our fault.

So, when is it okay, and when is it inappropriate to ask disabled people for their stories, or for help on disability issues?

Situations

Obviously, it depends partly on what kind of relationship you have with the disabled person. It’s rarely if ever appropriate to ask a disabled person you don’t know to tell their story, or explain intricacies of the disability experience to you. Asking a coworker or casual acquaintance may be alright, if you do it with care and listen for signs of receptiveness or reticence. You can deepen your relationship with family or close friends with disabilities, by inviting them to share deeper experiences and feelings. But this kind of closeness should never be mistaken for open-ended permission. Having a family or professional connection to disability isn’t a special permit to pry. Neither is having a disability yourself. A disabled person may trust you more if you’re disabled too,, but your disability status doesn’t guarantee access.

It also depends on the time and setting. Certain subjects and avenues of conversation are appropriate in some places and occasions, out of place in others, and totally bizarre or even creepy in still others. Think of how doctors and lawyers feel when people at cocktail parties ask them for medical or legal advice. It’s often like that for disabled people. We feel like everyone’s public encyclopedia of all things disability. No place is taboo, no subject off limits. At any moment, we can be prayed over in the frozen foods aisle, asked in a coffee shop how we have sex, or grilled in the lunchroom on which disability terminology we use.

If you want to engage with disabled people, and learn about disability issues and culture, that’s great! Please do both. But remember that each disabled person is an individual, and we each make our own decisions, using our own criteria, for when and how we want to share, explain, and educate others, from perfect strangers to those closest to us.

In the end, sorting the good from the bad, the appropriate from the burdensome, isn’t that complicated after all. It’s a bit like intimacy and consent. Talking about disability with disabled people can be enormously rewarding for both parties, but only when the disabled person is a willing participant. While some of us consciously choose to be as open and forthcoming as possible, none of us feels that way all of the time.

Above all, no disabled person should ever feel obligated to share, or shamed for not sharing. this is also my school of philosophy . as a Public policy diversity and inclusion expert I celebrate diversity in full.

Disabilities that Complicate Substance Abuse Treatment and How to Overcome Them Guest author Patrick Bailey

The views expressed here are for the author and do not represent any agency or organization.

 

The last thing a person recovering from alcohol addiction needs is yet another obstacle to getting back to the life they know and love. Well-managed inpatient drug and alcohol treatment centers should ensure a physical disability does not impede full recovery.

Disabilities and Substance Abuse

People who suffer from physical disabilities have a higher risk of alcohol and drug abuse. The National Rehabilitation Information Center (NARIC) shows that about half of Americans who suffer from a disability are also likely to suffer from substance abuse (co-occurring disorders or dual diagnosis). That’s compared to 10% of the general public.

Disabled World reports that those with mobility issues—disabilities like amputated limbs, spinal cord injuries, orthopedic disability, arthritis, deafness, vision impairment, or multiple sclerosis—are two to four times more likely to abuse drugs or alcohol.

Yet an anonymous survey reveals that of those suffering from a spinal cord injury or traumatic brain injury (TBI) and also seeking addiction treatment, about half are refused admission to inpatient drug and alcohol treatment centers.

A report from the American Association on Health and Disability (AAHD) shows that physical accessibility negatively impacts the success of treatment for those with disabilities every day.

According to the Centers for Disease Control and Prevention (CDC), one in five American adults has a disability. Most worrisome for those in an inpatient facility are mobility and visual or auditory challenges that prevent them from taking full advantage of the treatment offered them.

Alcohol and drug abuse can complicate treatment for the physically disabled by interfering with therapy, rehabilitation, counseling sessions, and medications.

Overcoming Barriers to Treatment

For this reason, a physically accessible treatment center is essential to those who have both physical limitations and addiction challenges.

Group therapy and support groups can dispel social isolation and offer a healing environment for both those who suffer from addiction and their families. However, an additional layer of support is required for those with an additional disability.

Inpatient drug and alcohol treatment centers can offset this by removing or altering potential barriers to their disabled clients.

The Americans with Disabilities Act (ADA) requires that all private accommodations and commercial facilities that are not residential facilities remove barriers to communication and access that would negatively affect individuals who are disabled.

For this reason and others, a viable treatment facility must accommodate those who are disabled, ensuring they have complete access to the facility.

Making Rehab Accessible

Three factors that can affect a person’s ability to function:

  • A person’s mental, emotional, and/or physical state doesn’t function properly. This can include hearing or memory loss.
  • Activity limitations. Inability to carry out normal tasks.
  • Participation restrictions. A person who cannot participate fully, or not at all, in daily life activities because of their limits. This impacts the way the individual engages in work, social, recreational, or health-related activities that are critical for their health and well-being.

Some of the modifications needed for the disabled include:

  • Ramps and elevators that offer mobility-specific features.
  • Wider doors and hallways for those in wheelchairs or other mobility devices.
  • Power-assisted doors.
  • Even, slip-proof floors.
  • Prominently displayed braille and other sensory navigational features.
  • TTY options on phones for the hearing impaired.

Other Physical Disabilities

Physical disabilities are not confined to one’s ability to walk without aid. They may result from a birth defect, an accident, a disease, or age. Anything that prevents or diminishes a person’s ability to engage in social activities is a disability

Physical disability includes chronic health conditions that prevent a person from participating fully in their day-to-day life. This includes a variety of autoimmune diseases. Some diseases can become a secondary disability that must be considered in one’s drug or alcohol rehab.

Examples include:

  • Asthma
  • Allergies (environmental and food)
  • Crohn’s disease
  • Irritable bowel syndrome (IBS)
  • Ulcerative colitis
  • Diabetes
  • Migraine headaches
  • Cerebral palsy (CP)
  • Cystic fibrosis
  • Epilepsy
  • Fibromyalgia
  • Multiple sclerosis
  • Rheumatoid arthritis
  • Spina bifida
  • Spinal cord injuries
  • Loss of a limb
  • Traumatic brain injury
  • Cancer
  • Lupus
  • Sickle cell anemia

Learning Disabilities

The best inpatient drug and alcohol treatment centers also make accommodations for clients with learning, sensory, and mental disorders.

A learning disability alters the way a person can listen, speak, read, spell, and/or think. Such a disability impedes a person’s ability to process, recall, and/or express information.

Clients with memory problems often have trouble communicating and have a hard time performing school or job-related tasks.

Chronic health conditions such as physical disabilities are risk factors on their own. Add to that a substance abuse problem and removing as many barriers as possible is essential.

Why Blind schools should not be in a hurry to reopen Author Mugambi Paul

 

Being blind myself, Covid 2019 has paused barriers.

The barrier        s range from mobility, lack of implementation of the famo         us new norm social distancing and the fear which Corona has create        d.                    

I believe having experienced this,

It is prudent for learners who are blind and low vision are guaranteed

 reasonable accommodation as government plans to reopen.

Will the ministry of education ensure Blind and personally sighted access education?  With the adoption of the United Nations Convention on the Rights of Persons with Disabilities (CRPD) accessibility which has become a human rights principle, be adpopted? This is a specific norm that obliges States Parties to take pertinent measures to ensure access to persons with disabilities, on equal terms with others, to the physical environment, transport, information and communications, including information and communication systems and technologies, and other services and facilities open to the public or for public use, both in urban and rural. Areas so that persons with disabilities can live independently and participate fully in all aspects of life.

With the advent of Covid,  a blind and partially sighted learner cannot be grouped with the same requirements of other Special Schools or alternatively with ordinary schools such as the issues of social distancing since touch is a major feature for blind and partially sighted learners. The students are also required to move around the school premises and hostels and are assisted by other learners and staff at these schools.

 LOW VISION PEOPLE AND THE RISK OF CORONAVIRUS.                           Most probably this may not have come to your mind, whether you live with low vision or not. In view of the manner in which Coronavirus is transmitted, it behooves all people living with low vision to be extra cautious during these pivotal moments. When reading, as low vision people, they are forced by the said circumstance to draw the material being read very close to their eyes, thus increasing the risk of inhaling the droplets containing the virus, which may have been left there by an infected individual. When interacting with our phones, tablets, iPads, and any other electronic device, please let’s ensure we sanitize them before use, especially if they may have landed in the hands of individuals who you may not be sure of their health status. You don’t have to buy a sanitizer, but you can get a surgical spirit and apply on your device before use. Surgical spirit is alcohol based thus making it most appropriate alternative for sanitization. Since we cannot sanitize newspapers and other reading materials on paper, we can get someone to read for us or use magnifier if possible.

 

 

 

 

The students also use their fingers for reading braille and using braille writing machines or to feel an object. Therefore, there is a greater need to sanitise equipment and surfaces more regularly.

 

Another major concern is the poor infrastructure at these schools especially with inadequate facilities at the hostel.  The students will not be able to practice social distancing since the hostels are full and, in many instances, there is overcrowding in the hostels. Mealtimes will also pose challenges with students assembling in the dining room for their meals.

Which innocuous route is for Kenya? Right, Left or living us behind? Author Mugambi Paul

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy,  diversity,  inclusion and sustainability expert.

Australian Chief Minister Award winner

“excellence of making inclusion happen”

 

Since the first case of Covid-2019 in 13th March Kenya has recorded the highest number of recorded cases of Covid-19 in July 2020 among its counterparts in East Africa.

I observe, the numbers will continue to rise.

This is mainly increased due to intra-county movement of people, lack of disability inclusive measures,

poor hygiene and lack of adherence to WHO and government measures.

 

At present, the impact and spread of infections are feared to be exacerbated by the huge number of people living in poverty, lack of social amenities like water supply casing point my own home area where we buy this basic commodity, overcrowding in the slum settlements and weak

health infrastructure.

This has led to poor and access or clean water, sanitation and hygiene to the population.

Moreover, the existence of economic and social inequalities still bite.

What has government done:

dusk-to-dawn curfews.

Establishment of a national response team,

 Limiting access to public places e.g. entertainment joints, schools,

Media campaigns on basic hygiene and social distancing

Introduction of short-term measure on social protection to the vulnerable groups. For instance, Kazi kwa mitaa initiative for six and half month’s cash transfer for 3 months

 

Nevertheless, all these measures are not inclusive.

This is a clear indicator of Persons with disabilities have been left behind.

On the other hand, these precautionary actions continue to have negative economic impacts on businesses and workers. The country has witnessed job cuts across various sectors, and incomes of businesses and available working hours for staff have fallen significantly. As [ILO 2020, HI 2020 UN 2020] 2020 persons with disabilities are worst hit by this pandemic.

Just like other countries in the world the economic consequences of the pandemic are likely to have a far greater impact on the long-term health, wellbeing and poverty levels of the Kenyan population as a whole than the predicted fatalities caused directly by the disease. Sectors worst hit by the virus include the labor force, housing, transport, health, trade and tourism. The supply and demand for goods and services in these sectors have been significantly hampered. Furthermore, the restriction of movement in and out the country has dwindled the revenues from the tourism and aviation sectors, while delays at borders due to testing of truck drivers have resulted in losses of profits to business owners.

additionally, Kenya is facing a three-layered crisis – the coronavirus pandemic, locust infestation and floods. Since the end of December 2019, the country has been facing its worst locust infestation in 70 years,

Unfortunately, Kenya is food insecure.

It imports food from its neighboring countries.

This has directed to Changes in food-purchasing habits by many Kenyans.

. This is particularly the case for households living below the poverty line, who have resorted to purchasing only essential foodstuffs during the pandemic.

A survey conducted by the Kenya National Bureau of Statistics (KNBS) in May 2020 indicates that the labor participation rate in the country has fallen significantly as a result of the pandemic.

This is evidenced by Due to curfews and limited movement of people, many roles have become redundant, resulting in job losses or unpaid leave. People living in poverty are finding it difficult to meet their daily expenses and pay bills, including rent, as a result of job losses, pay cuts or unpaid leave. Public transport measures introduced by government of Kenya have rendered persons with disabilities not to move

This is due to reduction of number of passengers in a vehicle and the increase charged by operators

Kenyans, particularly those relying on casual work, persons with disabilities find it difficult to pay rent. Workers who already live in poverty and cannot afford to have precautionary savings consequently face a high risk of falling into poverty and might experience even greater challenges in regaining their livelihoods after the pandemic.

The pandemic has highlighted, more than ever, that neglecting certain sectors make people living in poverty more vulnerable. These are health, social protection, housing and sanitation and hygiene. There needs to be more scrutiny of budget plans, their execution, and performance of these sectors, all of which should support those living in poverty.

Re-opening the economy whilst also taking care of health concerns has been a balancing act for governments across the world, including Kenya. The country has a large population living below or just above the poverty line. It is this category of the population that are most affected by the impact of the pandemic. Reduced earnings from sluggish economic activities and job losses as a result of confinement measures by the government have to be balanced against consideration of the daily needs of those living in poverty, as well as now-looming food insecurity across the country.

Furthermore, the Covid-2019 has seen rise of mental health issues and increase of suicide case in the country.

Many cases have been reported and seems the health and community structures aren’t ready enough to support or accommodate.

While significant advances have been made in Kenya over the past 5 years to address the stigma associated with high prevalence mental disorders

such as depression and anxiety, people living with complex mental illness such as schizophrenia and bipolar disorder still report experiencing high levels

of stigma and discrimination.

What can policy makers and stakeholders endorse

  • Revision of budgetary allocations to more critical sectors such as health and social protection during the pandemic. Funds re-allocated to these sectors will support the already burdened health infrastructure in the country and increase the resources available for cash transfers to people living in poverty like persons with disabilities, slum dwellers a homeless, orphans elderly, and vulnerable populations.
  • Ensure representation of persons with disabilities in the national and county response teams.
  • Provide mental health community initiatives support systems
  • Develop disability specific protocols in order to ensure specific measures are in place.
  • Request national debt abolishment from the Chinese government and other lending institutions to cushion people living in poverty against the tax regimes currently being implemented by the government
  • Expansion of internet connectivity and lower costs for users.The private sector needs to priorities investment in connectivity because of the ‘new normal’ of working and learning from home.
  • Cheaper internet bundles are needed to support government measures such as working from home and online learning for students.
  • Provide and connect water and power supply to the unreached places
  • Provision of wage subsidies,particularly to those employers hiring casual laborer’s and daily income earners to support sustainability of employment.

Sustaining local industries (micro, small and medium businesses) that provide jobs to people living in poverty should be prioritized in the short and medium term. This could be through access to cheap loans, waiver of license fees water and power taxes. The government should priorities tender awards to local industries that are able to produce or provide input for the production of protective equipment such as masks and hand sanitizers, and a bailout fund should be launched to keep these industries afloat.

All in all, Throughout Africa, the pandemic is continuing to have an impact and Kenya, like most African countries, faces serious resource constraints, fragile health systems and lack of a clear inclusive strategy to fight the virus. To ensure socioeconomic recovery within a reasonable period, the government should put in place inclusive plans and resources that do not continue to weigh disproportionally on people living in poverty.

The pandemic has highlighted, more than ever, that neglecting certain sectors make people living in poverty of particular persons with disabilities more vulnerable. These are health, social protection, housing and sanitation and hygiene. There needs to be more scrutiny of budget plans, their execution, and performance of these sectors, all of which should support those living in poverty.

 

 

Which way “Euphemism or the disability sensitive language” Author Mugambi Paul

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Australian Chief Minister Award winner

“excellence of making inclusion happen”

 

 

 

 

We know that discrimination has a big impact (negatively) on mental health – and there is a lot of discrimination that people with disabilities face and it’s so engrained in our African culture.

discrimination constitutes any distinction, exclusion, restriction or preference or other differential treatment that is directly or indirectly based on the prohibited grounds of discrimination and which has the intention or effect of nullifying or impairing the recognition, enjoyment or exercise, on an equal footing, of Covenant rights…

Direct discrimination occurs when an individual is treated less favorably than another person in a similar situation for a reason related to a prohibited ground (…) Direct discrimination also includes detrimental acts or omissions on the basis of prohibited grounds where there is no comparable similar situation

 the Due to discrimination and society generally making life hard unless you fit a certain mould – people with disabilities face low self-esteem and confidence, and can find it difficult to maintain employment and a healthy social life.

The impacts of disability can also extend to a person’s family and friends. On the positive side, it can bring a family closer together, but on the negative side, it can place heavy emotional demands on a family and affect their physical and mental health. One of the most crucial things to remember is that whether it be your own, or someone else’s, a person’s disability does not define them and should not stop them from achieving their goals in life

 

 

Words have power, and everyday language influences the way people think and feel about the things that are being talked about. It’s for this reason that it is so important to get language correct when discussing topics involving the disability community.

There are many words and phrases that most people know not to say. Whether using the terms seriously or in a joking manner, the words “challenged” and “handicapped” are just a few of the words that a lot of people realize are patronizing and downright offensive.

However, the phrase differently abled has come into fashion over the last few years as a substitute for the word disabled, which many people avoid because it still has negative connotations attached to it. When talking to or about someone who has a disability, many people use the phrase differently abled because it seems like a harmless term that focuses on what a person can do instead of a person’s disability, and most people who use this term mean well. But just like the more obviously offensive terms like handicapped or challenged, many people find it offensive to be called differently abled.

Why Differently Abled Is Offensive:

The term differently abled is well meaning, and it is not surprising that so many people think it would be preferable to put the attention on the ability rather than the disability. However, it is for this reason that so many people find the term differently abled to be offensive. Pretending that a health condition is just a set of interesting abilities and ignoring the disabling condition isn’t something that many people living with developmental, mental, mobility, seeing, hearing concentration difficulties or other health conditions are able to do; this is why the term comes across as patronizing. Calling someone differently abled wouldn’t be demeaning if the person actually had a set of abilities different from the average human body, such as superhuman strength or the ability to read minds. But there is no normal human body. Everyone is different. And people with disabilities aren’t the only ones who are differently abled. Some people have brown eyes, some have blue eyes and others have hazel eyes. Some people need crutches to walk, some need assistive technology to work, some need a wheelchair and others can walk unaided. No one is the same, and everyone is differently abled.

But when you have a mobility, seeing, concentration, speaking and hearing difficulties   developmental or other impairments condition, it means your body is interfering with many or all daily activities. For most people, these aren’t unusual abilities. They aren’t abilities at all. They are health conditions that are disabling.
Many people with disabilities face higher unemployment rates than able-bodied people due to discrimination and a lack of accommodations. So, referring to a disability as a different ability ignores the struggles that people with disabilities go through on a daily basis, and it is understandably infuriating when someone says, “You’re not disabled. You just have a different ability!” or “The only disability is a bad attitude!” or “See the ability!”

Since the words different ability and differently abled sound like encouraging words, they do seem like the terms that you should use to avoid offense. But focusing on the supposed positive side of things and avoiding the disability only continues to make being disabled a negative thing and something to be ashamed of. The denial of reasonable accommodation should be included in national legislation as a prohibited form of discrimination on the basis of disability. States parties should address discrimination, such as (…) denial of reasonable accommodation in public places such as public health facilities and the workplace, as well as in private places, e.g. as long as spaces are designed and built in ways that make them inaccessible to all.

The CRPD states in Article 5(3) that “[i]n order to promote equality and eliminate discrimination, States Parties shall take all appropriate steps to ensure that reasonable accommodation is provided.” The CRPD defines “reasonable accommodation” in Article 2 as:

[N]necessary and appropriate modification and adjustments not imposing a disproportionate or undue burden, where needed in a particular case, to ensure to persons with disabilities the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms.

 

Additionally, being from an indigenous community in Kenya some of these disability terminologies do not exist in my culture.

But the words disabled and disability aren’t slurs. They are identifiers, and continuing to tiptoe around these words makes it sound like they are bad. There is nothing wrong with having a disability, having one doesn’t make a person less than someone who isn’t affected by a disability and using the words disabled and disability shows people that there is nothing wrong with being disabled.

If the word disabled continues to be treated like a bad word and being disabled continues to be treated like a disgraceful thing that needs to be overcome, then people with disabilities will never be treated equally. The media and film industry in Africa have for long propagated these ableist attitudes thus denial of real inclusion.

 

“Seeing the ability” and “seeing the different ability” will never lead to equality. What people with disabilities need is for society to acknowledge that being disabled is okay so that accommodations can be made, the unemployment rate for people with disabilities can drop and people with disabilities can have equality?

It’s the Person’s Choice
Many want to encourage people who are dealing with a disability to not define themselves by their disability, and the phrase differently abled seems like a good way to encourage that; however, the word disabled is an identifier, and just because someone uses that to describe their health condition doesn’t mean they are defining themselves by it. They’re just describing it.

However, it’s the person who has the disability who gets to decide how they want to be labelled. If they want to define themselves by their disability, then that’s their choice. Some people who have seeing, mobility, hearing, concentration, communication difficulties developmental or other health conditions like to use the label differently abled because they find that it accurately describes what they’re going through. If someone wants to call themselves a person with a disability, disabled or differently abled, that’s their prerogative.

 

How Government can sponsor discrimination with out lifting a finger: A case of Kenyans who preach water and drink wine Author Mugambi Paul

A social media post by #Fredrick Ouko

Caught my attention.

This led me to further scrutinize the views of Kenyans and how they perceive persons with disabilities in the social media.

 

Kenya we have a  long way to go to achieve real inclusion.

.

#jane says “Waow!! Very sad!! Inclusive employment is a myth! “

 

I hope the organization of persons with disabilities and policy makers can monitor and make pronouncement on this so that youth with disabilities can be counted.

 

Let’s return to #fred and I shall quote:

Can someone explain to me like a 2-year boy, how can a state-sponsored project on youth employment exclusively set out to discriminate against youth with disabilities and no other than PS Kibicho sets out the terms :#KaziMtaani initiative launched yesterday across 47 counties, you MUST be “Abled-Bodied” and aged between 18-35 years to benefit” ow

And now the views of Kenyans which made me in Swahili saying “niliishiwa na nguvu”

 

Kenyans are saying this.

1It’s manual work sir nothing discriminatory it’s just realistic

 

  1. Inua Jamii Initiative is meant for vulnerable and PLWD Who are not able to do manual works.

3Remember kazi mtaani is purely manual work so PLWD may not be able to undertake the task ahead4. I don’t think there’s anything wrong with Kibicho’s statement…. it’s you who has stated it negatively and not him.

 

  1. It’s manual work sir nothing discriminatory it’s just realistic

 

5Stop being unnecessarily sensitive mheshimiwa..The government is quite specific on the type of employees it requires for the job. Just the same way it can put a master’s degree requirement etc. There’s a reason why able-bodied is specified.

6 Kazi mtaani needs energy and body movements

7 Anybody who can carry jembe, spades and shovels is able bodied. With all due respect nothing makes anybody who is abled differently from doing a job he/she can ably do. You are the one discriminating the same people you represent

  1. Anyone who can work is able bodied. Why are you feeling like the stt attacks people like you? Kwani hauko able bodied?

9 Abled bodied doesn’t mean discrimination against people living with disabilities, it mean you must be strong not weak to undertake the said activities. You may not be living with disabilities but you are weak hence unable to perform the tusk.

10 Si the disabled and the aged wanapewa pesa zao ?

11 Able bodied includes the albinos and others that have ability to work. Nothing is discriminatory in that statement. You must be having an understanding

12 A person who is lame, or has a disability is still able bodied but abled differently. We nowadays don’t call such disability!!! You should know that already.

13 Remember kazi mtaani is purely manual work so PLWD may not be able to undertake the task ahead

14 The term cannot be avoided since some of the workers can only be executed by able bodies eg security guards. Wait for your time unless you’re seeking publicity.

 

15 Your understanding of queen’s language is disabled.

16 It’s manual work sir nothing discriminatory it’s just realistic

17 This is the reason PWDs need advocacy. Able bodied is a prejudistic term in this case

18 I don’t think there’s anything wrong with Kibicho’s statement…. it’s you who has stated it negatively and not him.

19 He’s right, no descrimanatory..he said “able-bodied”…so if albinism and hear impaired are abled bodied,then he’s captured n the statement

20 Not all jobs you must be included…. Some slots are just for able bodied 🤣🤣🤣

21 I think you dont understand the word able-bodied…

22 Have you ever seen an albino who is a bouncer

23 Stop being unnecessarily sensitive mheshimiwa..The government is quite specific on the type of employees it requires for the job. Just the same way it can put a masters degree requirement etc.. There’s a reason why able-bodied is specified.

24 Very discrimatory even writting needs able body.

25 Si the disabled and the aged wanapewa pesa zao ?

 

 

 

 

Anyway what should the message be to all Kenyans:

With due respect all,  your words “Must be able-bodied” are discriminatory and are in total contravention to our constitution article 54, persons with disabilities act of Parliament of 2003 session paper number 14 and UNCRPD (united Nation convention on the rights of persons with disabilities) which Kenya ratified in 2008.

All in all, as I  normally say if we aren’t in the cake making we can’t be counted. when shall ablism tendency end?

 

Why 2020 decided to put its foot in our behinds. Author Mugambi Paul

According to the world blind union, it is estimated 285 million people are Blind and vision impaired. worldwide with about 90% of them living in low-income countries.  Of all the school-age children with visual impairment, less than half were receiving education. 

With the outbreak of the COVID-19 pandemic that has now enveloped the whole world, most governments took drastic measures of shutting down institutions of learning.

I affirm as a Blind fellow in the low-income country it is worse to be Blind at this Corona period.

This is because of the educational inequalities ranging from attitudinal, institutional and existence of the environmental barriers.

To put matters differently Blind and vision impaired persons are experiencing quadruple worries:

Lack of inclusive education Corona policies

Lack of skills and lack of   assistive technology,

lack of devices needed for reading and writing

Lack of available of even traditional modes of technology while at home e.g. Brail books, adaptive graphics.

Psycosocial distress.

Inaccessible built environments

Increase of discrimination

Additionally, all these issues have rendered individuals with blindness to suffer. Evidently in most countries they have provided alternative learning through the 4th revolution uptake of digital learning but not having the blind and vision impaired in mind.

Am very sad to say the list since the approaches and techniques adapted by most ministry of education has ensured Blind, visually impaired and Deafblind have been left behind.

Notably, over 80% of all incidental learning and the performance of activities of daily living are dependent on sight.  

The SDG slogan “don’t live us behind”” is unwanted ringtone to many blind and vision impaired.

The barriers experienced by many blind and vision impaired persons range from usage of non-visual chats, inaccessible contents, non-inclusive plans,

Lack of affordability of the radios and television among blind and vision impaired persons since poverty and disability are twin brothers.

Inaccessible modes of learning and channels of media.

Someone should educate me how braille will be examined virtually!

Someone should tell me how the adapted sciences will be examined virtually.

To be a student in the corona era seems to be a torture chamber by itself.

Its not that blind and vision impaired were not facing these challenges before but Covid 2019 has excarnificated the experiences.

Another instance is the experiences of girls and women who are blind and vision impaired are at higher risk of gender-based violence and it’s on record with the self-isolation guidelines many will be taken advantage.

I won’t be surprised to know the pregnancy rates have increased.

Human rights reports in several countries have shown how persons with disabilities are stuffing in the hands of close relatives and family members.

 

Lastly, the real, refugee set ups and internally displaced individuals who are blind and vision impaired are worse hit since they aren’t able to access the alternative mode of learning and support mechanisms are not in place.

The voice of the Blind and vision impaired seemed to have been stung led by the lack of alternative formats of Corona and then ensured to instigate the burial ceremony by many state and non-state actors.

Moreover, most governments do not have inclusive emergency plans in place thus persons with disabilities come as a second thought.

Is this fair for many students who are blind and vision impaired?

UnCRPD, many constitutions expressly advocate for right to education.

All in all, even under normal circumstances, persons who are blind and vision impaired are less likely to access health care, education, employment and to participate in the community. They are more likely to live in poverty, experience higher rates of violence, neglect and abuse, and are among the most marginalized in any crisis-affected community. COVID-19 has further compounded this situation, disproportionately impacting persons who are blind and vision impaired both directly and indirectly.

An integrated approach is required to ensure that persons with disabilities are not left behind in COVID-19 education response and recovery. It calls for placing them at the centre of the response, participating as agents of planning and implementation. All COVID-19 related action must prohibit any form of discrimination based on blindness and take into consideration the intersections of gender and age, among other factors. This is necessary effectively and efficiently to address and prevent barriers inclusion will result in a COVID19 response and recovery that better serves everyone, more fully suppressing the virus, as well as building back better. It will provide for more agile systems capable of responding to complex situations, reaching the furthest behind first.

 

governments need to put measures in place to ensure many blind and vision impaired persons do not fall in to the cracks.

I would like to see inclusive strategies adapted to ensure that no one is left behind.

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Australian Chief Minister Award winner

“excellence of making inclusion happen”

 

How to stop “Discrimination” in the Corona era! a call by Public policy scholars.

Addressing discrimination and inequality in the global response to COVID-19

In the short time since the start of this new decade, life has changed dramatically across the world. COVID-19 has now spread to more than 185 countries. The number of recorded cases has surpassed 3.5 million. Families and friends across the globe are mourning the loss of more than 240,000 people. With the stated intention of controlling the spread of the virus and protecting lives, States are implementing unprecedented restrictions on movement both within and between countries (“lockdowns”), with significant and wide-ranging impacts on societies and economies.  

As these measures have taken effect, it has become clear that, while the virus is indiscriminate, the impacts of state responses are not. In late April, launching a new report, United Nations Secretary General António Guterres stated that the pandemic is a public health emergency “that is fast becoming a human rights crisis”. As that UN report highlights, there is clear and growing evidence that state responses in delivery of healthcare, in the implementation of lockdown measures and in policies designed to mitigate economic impacts are having disproportionate and discriminatory impacts. These effects are being experienced by all groups exposed to discrimination, including, but not limited to, older persons, children, persons with disabilities, women, ethnic and religious minorities and indigenous peoples, persons, persons living with HIV and AIDS, and migrants, refugees and stateless persons. They are impacting upon the enjoyment of rights ranging from freedom of movement to access to education and from access to information to an adequate standard of living, together, of course, with the rights to life and to health. 

These discriminatory impacts are occurring despite the fact that almost every State in the world has accepted international legal obligations to ensure the equal enjoyment of human rights, without discrimination. At a bare minimum, these obligations require that the State – whether through law, policy or practice – does not discriminate in its actions. They also create a duty to provide effective protection from all forms of discrimination by private actors and to make reasonable accommodation when required. These obligations apply to all: citizen and non-citizen, irrespective of their identity, status or beliefs. They are “immediate and cross-cutting”. They apply in respect of all civil, political, economic, social and cultural rights. Crucially, while international law recognises that in states of emergency, States can limit the enjoyment of certain human rights, their obligations to ensure nondiscrimination remain – emergency measures must not discriminate either in their purpose or their effects.

As this unprecedented global crisis unfolds, it is clear that States are failing to meet their nondiscrimination obligations. Their responses – largely driven by a stated intention to protect lives – are having a wide range of discriminatory impacts. While many of these effects may be unintended, the lack of intent does not limit States’ obligations. Moreover, with new evidence emerging each week, it is clear that we cannot yet foresee the full range of discriminatory impacts which this crisis will engender. 

State obligations to assess and address equality impacts

We call on all States to incorporate equality impact assessment as an integral element of their ongoing public health, economic and social policy responses to the crisis. It is only through assessing the equality impacts of their policy responses that States can ensure that their actions comply with their binding non-discrimination obligations under international law. Equality impact assessment is the only way that States can anticipate and eliminate the discriminatory effects of their policy responses, including those which are unintended or unforeseen.

Equality impact assessments must be aimed at identifying and eliminating the actual or potential discriminatory effects of State policies. They should also ensure that policies and programmes respond to and accommodate the different needs of diverse groups with due consideration to intersectionality and that they do not create or exacerbate inequality. 

In order to ensure that States comply with their international legal obligations, equality impact assessments should be pre-emptive, coming before new policy measures are adopted and before any changes are made to policies which are already in force. Where measures have already been adopted, equality impact assessment should be undertaken as an urgent priority. Where discriminatory impacts are identified, measures to eliminate any discrimination or inequality of impact should be taken with immediate effect. States must ensure that they involve and consult all groups at risk of discrimination and experiencing inequality in conducting equality impact assessment. States must ensure that equality impact assessment is an essential element of their monitoring and review of policy responses to the pandemic and of their on the ground effects. Both initial assessments and ongoing monitoring must be informed by the collection of data on the experiences and outcomes of groups exposed to discrimination

All policy responses to the crisis must be subject to assessment, including those relating to the management of healthcare and other resources, the restriction of civil liberties, closure of businesses and educational establishments, adaptation of support services, economic and social protection programmes, immigration and border control and the use of new information technologies. The actual or potential equality impacts of actions by both state and private actors must be assessed.  

A renewed commitment to the creation of an equal world

Furthermore, we call on all States to emerge from the current crisis with a renewed commitment to the elimination of all forms of discrimination and the creation of a world in which all are “free and equal in dignity and rights”. The wide range of unintended discriminatory consequences of state responses to the crisis – ranging from the increased exposure to the virus amongst ethnic minority populations to the rise in domestic violence – only serve to underline the deep inequalities within our societies and the failure to address the systemic discrimination which feeds them. 

This crisis has shone a harsh and unforgiving light on these existing inequalities. We must emerge from it ready to forge a world in which all can participate equally. Arundhati Roy has described this pandemic as a portal, “a gateway between one world and the next”. We call on States to ensure that we walk through this portal leaving no one behind, and with a shared determination to create an equal world.

Hope beyond COVID-19 Author Mugambi Paul

Africans with disabilities are largely left out of the African governments. coronavirus response despite being uniquely affected by the disease, as discussed by the international disability alliance, several disability experts and Views expressed in different social media platforms.

 

Palpably, The COVID-19 pandemic has disrupted many aspects of our daily lives, but its impacts are especially acute for disabled persons, who may

struggle with challenges like finding reliable and safe in-home care or physically adapting to enhanced hand-washing guidance.

But the coronavirus outbreak has also created opportunities for more equitable inclusion after the pandemic ends.

How might the pandemic disturb those who have disabilities?

For disabled persons, all the general challenges that come with the pandemic certainly apply, but there are additional barriers. The first is communication—getting

information can be more difficult for people with vision, hearing, and even cognitive disabilities, as popular news sources may not be accessible, especially

when information is changing quickly. I’m Blind and can attest to that. Keeping all of us informed is key to the COVID-19 public health response,

but information is not always accessible to the disability community, for instance data visual charts are not understood.

The second barrier involves adopting recommended public health strategies, such as social distancing and washing hands. For example, frequent hand-washing

is not always feasible for people with certain types of physical disabilities. As a public scholar I know the value of these strategies, but public health

policies often do not consider people with disabilities, leaving a gap in guidance. Those who have personal aides like sighted guides for Deaf blind and Blind individuals, and caregivers also need to be considered,

as they cannot participate in social distancing in the same way that others are.

The third, equitable access to health care, is a long-standing barrier worsened by COVID-19. This ranges from getting a coronavirus test to being seen

in an emergency room. For instance, drive-up testing may be impossible if you rely on state mobility services. There are also existing barriers in health

care settings that are exacerbated as the industry aims to meet the surge of COVID-19 cases. For example, the use of personal protective equipment, including

masks, can make communication more difficult for patients with hearing loss.

Additionally, the allocation of medical resources is a concern. There’s fear that medical resource allocation, including ventilators, may be discriminatory

against patients with disabilities. In Europe and united states of America some organization of persons with disabilities and human rights bodies have filed complains about these rationing policies. This issue echoes an underlying misconception

that people with disabilities can’t have a high quality of life and therefore the lives of disabled people may not be prioritized.

What lessons can African government learn from inclusion in Corona response for disabled persons?

in some countries, there has been a shift toward telehealth for nonurgent medical visits. That has provided challenges but also future

opportunities for the disability sector. We must ensure that telehealth visits are accessible to patients with vision or hearing loss or other disabilities

in order to maintain equity in health care delivery. If accessibility is prioritized as we make this change, a transition to telehealth could open the

door to a more accessible health care system.

Several studies have underpinned, THE ISSUES OF PRE-PANDEMIC CARE DELIVERY ONLY BECOME MORE URGENT IN A TIME OF CRISIS BECAUSE PEOPLE WITH DISABILITIES HAVE OFTEN NOT BEEN CONSIDERED IN

A DISASTER OR PANDEMIC PLANNING.

While there’s a lot of pressure and certainly a high demand to meet the COVID-19 surge, it is still crucial to make sure that the organizations of persons with disabilities and disability experts

is being considered. It’s truly a remarkable and challenging moment for African health system, but the needs of the disability community can’t fall through

the cracks. The issues of pre-pandemic care delivery only become more urgent in a time of crisis because people with disabilities have often not been considered

in a disaster or pandemic planning. We need to learn from this crisis and ensure disability is part of future pandemic planning.

For those in the disability community who require in-home care or essential services when away from home, what steps can be taken to minimize the risk

of spreading the coronavirus while still receiving necessary care and assistance?

People who use in-home support care need to make sure that they have contingency plans for their care needs in case a caregiver becomes ill. Caregivers and community

organizations should also consider changing their staffing to the best of their ability in order to minimize spread. For instance, instead of three rotating

caregivers being assigned to an individual, assign one for a longer period of time. For people with a primary caregiver in the home, more flexibility in

paid time off or sick leave can minimize exposure while also meeting the care needs of the individual. What’s really important is to engage the individual

and the disability community at the policy level.

Furthermore, MANY disabled persons ARE AT HIGH RISK OF COVID-19, BUT THEIR PERSPECTIVE IS NOT BEING INCLUDED IN THE EFFORTS TO ADDRESS INEQUITIES IN THE RESPONSE.

For instance, most Kenyan policy directives are not disability inclusive.

 

In a moment when many providers have had to alter their operations due to the pandemic, what are ways to advocate for essential services and treatment

for the disability community?

The best approach is to ensure that whenever we’re talking about inequity or differences in the COVID-19 response, disability is part of the discussion.

Many people with disabilities are at high risk of COVID-19, but their perspective is not being included in the efforts to address inequities in the response.

This includes understanding the unique challenges of this community during this crisis.

We also need disability data. There is currently no systematic reporting of COVID-19 testing, infection, mortality, or outcomes by disability status.

This is evident by the daily media updates from different countries.

For example, in east Africa important differences in this data by age, geographic location, underlying health condition, estate location and race have emerged. These data have been

critical for allocating resources and directing policies, as well as highlighting underlying disparities and elevating discussions around these health

gaps. But for people with disabilities, an often-ignored health disparity population, we don’t even get counted. And this is not just the case for COVID-19.

Disability data is infrequently collected in this type of public health and medical surveillance, which limits opportunities to address disability inequities.

As a public policy scholar and expert on diversity and inclusion I affirm and recommend the data being reported should be 15 % or more are persons with disabilities “WHO 2011”

As the COVID-19 pandemic continues, what impact and legacy do you think it will have for those living with disabilities?

I’m an optimistic person, and though it can be hard to think positively right now, there is an opportunity to change how we include people with disabilities

in this moment. COVID-19 has elevated that conversation, and the legacy should be a continued focus on disability disparities and constant efforts to address

disability inequities.

As we all make substantial changes in our daily lives, such as working from home and adjusting how we connect to others, look to people with disabilities

for guidance, as we have always used alternative strategies. We are the vanguards of resilience. My hope is that COVID-19 will bring more understanding,

inclusion, and opportunity to the African disability community.

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Australian Chief Minister Award winner

“excellence of making inclusion happen”

 

Mental health and wellbeing during the Coronavirus COVID-19 outbreak Author Paul Mugambi

 

The outbreak of the coronavirus COVID-19 has impacted people in varying ways on global scale. It is understandable that during times like this,

people may be feeling afraid, worried, anxious and overwhelmed by the constantly changing alerts and media coverage regarding the spread of the virus.

Disabled persons have lived experience on this and with the additional Corona concerns its even worse.

While it is important to stay informed, the following are some mental health and wellbeing tips and strategies to continue looking after ourselves and

each other during these difficult times.

The tips are based on  experiences and great lessons as a  global citizen. 

Manage your exposure to media coverage as this can increase feelings of fear and anxiety. Be mindful of sources of information and ensure you are accessing

good quality and accurate information. Follow a “calm yet cautious” approach – do you best to remain calm and be mindful not to contribute to the widespread panic that can hinder efforts to

positively manage the outbreak. Ensure you are following directives issued by the government and WHO  medical advice and observe good hygiene habits.

 

Show compassion and kindness to one another – these times of fear, isolation (both physical and social) and uncertainty are when it is most important that

we strengthen our sense of community by connecting with and supporting each other. Remind ourselves that we can manage this much better together in solidarity,

and that COVID-19 doesn’t discriminate – it can affect anyone regardless of age, gender, disability, nationality, or ethnicity.

 

Actively manage your wellbeing by maintaining routines where possible, connect with family and friends (even if not in person), staying physically active,

eating nutritious foods and seeking additional support by contacting government or further professional support as required.  

 

Strategies to cope with social distancing, self-isolation or quarantine

 

Going into a period of social distancing, self-isolation or quarantine may feel daunting or overwhelming, and can contribute to feelings of helplessness

and fear. In addition to the above, I  encourage the following.

 

list of 7 items

  • Perspective – try to see this time as unique and different, not necessarily bad, even if it something you didn’t necessarily choose
  • Connection – think of creative ways to stay connected with others, including social media, email and phone
  • Be generous to others – giving to others in times of need not only helps the recipient, it enhances your wellbeing too. Is there a way to help others?

around you?

Thanks to those who have supported in kind the cases I presented to them.

  • Stay connected with your values. Don’t let fear or anxiety drive your interactions with others. I am also in this together!
  • Daily routine – create a routine that prioritises things you enjoy and even things you have been meaning to do but haven’t had enough time. Read that

book, watch that show, take up that new hobby.

  • Try to see this as a new and unusual period that might even have some benefits.
  • Limit your exposure to news and media. Perhaps choose specific times of day when you will get updates, and ensure they are from reputable and reliable

sources.

In my case I don’t own a TV.

Staying connected through the COVID-19 crisis

 

Research after the sierra Leone Ebola shows evidence of the significance of connection through epidemics.  It found that residents

in Sierra Leone experienced increased social connectedness, which offset the negative mental health impacts of the pandemic.

 

As connection is so important during this time, here are some tips on staying connected to others during this time. Remember – we are all in this together.

 

list of 2 items

  •  If there is someone you think may struggle through social isolation, it is important to reach out to them and let them know you care:

list of 4 items nesting level 1

◦ Call them to check on their welfare

◦ Send an email

◦ Leave a note under their door

◦ Don’t underestimate the power you have to offer hope to another person.

I have evidently seen work miracle around my self-Isolation tunnel.

list end nesting level 1

  • I encourage people to get creative with how they interact, here are some ways to stay connected if self-isolating:

I have greatly borrowed from the recent interaction in the social media.

list of 4 items nesting level 1

◦ Set up a gratitude tree – where every member posts a message or sends a text to other members to share something, they are grateful for.

◦ Find a buddy, or group of, to set daily challenges with. These could include a healthy habit, a mindful practice, a creative pursuit. Be sure to encourage

and check in daily to stay motivated.

 

◦ Set dates and times to watch the same TV shows/movies with someone and message each other your thoughts along the way… kind of like Goggle Box but you’re

not sharing the couch!

Ask random questions in the social media to make guys think!

◦ If your local community has one, join its social media group! This will keep you up to date with what’s going on directly around you. It may also include

ways you can perhaps reach out and connect with someone less fortunate than you and ways to assist them.

list end nesting level 1

list end

 

Helping children cope through COVID-19

 

This is an uncertain time for everyone, and children may be impacted by fear and anxiety. Here are some tips on how to ensure your children are supported;

 

list of 4 items

  • Give your children extra attention and reassurance. Where possible, minimise their exposure to media and social media that may heighten anxiety
  • Acknowledge your own feelings about the situation and let children know it’s okay to share their own feelings
  • Include your children in plans and activities around the house
  • If you don’t see an improvement in 4 weeks, or if you’re concerned, seek professional help (earlier if needed)

list end

 

Reputable sources of information

 

  • World Health Organisation –

http://www.who.int

Where to go for support?

 

 

It is extremely important to seek out help if you feel you need it. I want to remind everyone that counselling services are readily available.

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy,  diversity,  inclusion and sustainability expert.

2018  Chief minister award winner

“making inclusion happen”

 

are disabled Kenyans In contradiction of the war Corona 2019? “what should Kenyan public health practitioner’s consider? Guest author Farida Asindua, _____

The coronavirus disease 2019 (COVID-19) pandemic continues to cause a trail of destruction globally. In the full wake of the pandemic in Kenya, a disproportionate effect is most likely to be among the vulnerable groups, such as the 918,270 people living with disabilities (PLWD) in the country. According to Kenya National Bureau of Statistics (2019) Census report, women with disability in the country are 523,883 while 394,330 are men. Majority are living in the rural areas, with only 179,492 living in urban areas – mainly in dense, poor and unserviced informal settlements – rendering them more vulnerable to the COVID-19 pandemic.

1.      Unique PLWD needs in the COVID-19 era

PLWD are more vulnerable due to the nature of their disabilities.  Lack of mobility is the leading disability in the country, followed by those visually impaired and cognition. Others are mental, intellectual, or sensory disabilities. COVID-19 pandemic puts all these categories of PLWD at risk of increased morbidity and mortality. In the current crisis, they are less likely to access health services, and more likely to experience greater health needs, worse outcomes, and discriminatory laws and stigma than other demographic groups in the country. With the limited Government capacity to respond to COVID-19, historical evidence points to the likelihood of PLWD being the least likely to be targeted with the interventions.

The country must therefore ensure that the unique needs of PLWD are considered in the ongoing COVID-19 containment and response planning. Interventions against the pandemic should be available and accessible to the PLWD in high quality and acceptable manner.

Public health messaging ought to also target PLWD and other vulnerable groups and should be disseminated in simple language across all the accessible formats. Strategies for vital inperson communication should be safe and accessible for persons with disability – in braille, sign language and large print. Although it is commendable that daily ministerial and periodic presidential addresses use sign language interpreters, wearing of transparent masks by communicators and health-care providers is encouraged to allow lip reading.

Physical distancing or self-isolation mechanisms – including the mandatory quarantine, the night curfew and movement cessation into and out of Nairobi and parts of the coastal strip – are already disrupting service provision for PLWD in those areas, who often rely on assistance for delivery of food, medication, and personal care. It is feared that escalation of these measures into full national lockdown would adversely affect majority of PLWD who reside in rural areas. 

The Government of Kenya and all duty bearers should therefore design the mitigation mechanisms not to lead to the segregation or institutionalisation of PLWD. Community level protective measures should be prioritized in the alternative, allowing care givers to continue to safely support PLWD, enabling them to meet their daily living, health care, and transport needs, and maintain their employment and educational commitments.

2.      Important public health measures

The main public health measures that should propagated to curb the spread of COVID 19 are as follows:

  1. Improved accessibility to hand washing areas with running water and soap so that PLWDs are able to use the facilities without assistance.
  2. PLWDs should embrace having hand sanitizers with them at all times. They should sanitise their assistive appliances like wheel chairs and crutches to ensure that they are not carriers of the virus.
  3. Use of gloves should be encouraged and the same be frequently sanitized. The assistive devices should be washed with water and soap once they reach home. Caution should be exercised if gloves are used. PLWD should ensure they do not touch their face with the gloves.
  4. Handwashing should be encouraged for personal assistants, parents, guardians of persons with disability who assist them frequently.
  5. Persons with visual impairments who have to use touch to tell their environment should be encouraged to use gloves and if possible, to avoid touch of people and surfaces all together to prevent COVID 19 transmission.
  6. Use of masks throughout by PLWD depending on their disability, preferably one with an elastic to the ears to avoid frequently having to put it in place. Some may need assistance to put on again, so once assisted it should remain in place. Depending on the type of disability, some persons with disabilities have personal assistants, who also have to put on a mask, so that they do not infect the persons with disability and vice versa.
  7. Social distance; currently it is recommended to be 1 metre away, and lately some say 1.5 metre away from each other. This may be difficult especially for persons with disability who require someone to constantly be around them for assistance. This being the case depending on the disability, both the aide and the person with disability should be in a mask. They should have a sanitizer to constantly sanitize their hands. Staying home, remains the best option for all including PLWD.

3.      Conclusion

PLWD in Kenya are indeed at increased risk of severe acute respiratory syndrome coronavirus infection or severe disease because of existing comorbidities, and are additionally facing traditional barriers to health care during the current pandemic. Health-care staff ought to be provided with rapid awareness training on the rights and diverse needs of this group to maintain their dignity, safeguard against discrimination, and prevent inequities in care provision. The Government should ensure that COVID-19 mitigation mechanisms are inclusive of PLWD to ensure they maintain respect for dignity, human rights and fundamental freedoms, and avoid widening existing disparities. 

Of necessity, this includes accelerating efforts to include these groups in COVID-19 containment and response planning. It will require diligence, creativity, and innovative thinking, to preserve Kenya’s commitment to UHC, and ensure PLWD are not forgotten.

 

Disclaimer: All views expressed here are that of the author and do not necessarily represent views/opinions of any entity or agency.

a Public Health and Disability Inclusion Expert

Email: fasindua@gmail.com

______________________

What lessons can the low income Countries like Kenya learn from the Corona episodes? Author Mugambi Paul

When it comes to COVID-19, the only thing we can really be sure of is that we don’t really know very much at all. Mortality rates, the R-0 value (the number

of people each coronavirus patient will go on to infect), just how far we need to stand away from an infected person, whether or not we should wear masks,

and just about everything else about dealing with this virus seems to change with each passing day.

 

Are we dealing with one strain or two? Has the virus mutated? And, importantly, can people who have “recovered” from the virus continue to infect others?

If so, for how long?

 

According to a report by the South China Morning Post

 (SCMP), doctors in Wuhan, China, found that between 3 and 10 percent of “recovered” patients continued to test positive even after being discharged from

hospital.

 

It has already been established that around 25 percent of COVID-19 patients are asymptomatic, and despite not showing any symptoms, are still infectious.

Might it not be possible, then, that patients who are no longer displaying symptoms, but test positive, could still be infectious? As reported by the SCMP, researchers across the globe are working flat-out to determine whether COVID-19 patients develop antibodies that will protect

them from future infections, and whether those who have officially recovered can still infect others.

 

The country with the best recovery rate to date is China, and as such, scientists are very interested in any research to come out of that country.

 

The SCMP reported:

 

The Chinese mainland, where the disease first emerged last December, has discharged over 90 per cent of its infected patients and around 4,300 confirmed

patients are still receiving treatment in hospitals. …

 

Wang Wei, president of Tongji hospital told CCTV’s prime-time programme that of the 147 recovered patients they studied, only five – or just over 3 per

cent – have tested positive in nucleic acid tests again after recovery.

 

Wang and his team insist that their study should not cause concern because there is no evidence that “recovered” patients can still infect others.

 

He told the media that none of the family members or associates of the five patients who recovered in his hospital but continued to test positive went

on to get infected.

Nonetheless, their findings are especially relevant because China now has thousands of “recovered” patients, and if the doctors are wrong, these patients

could go on to infect others.

 

And other Chinese researchers have found that far more than 3 percent of patients who no longer exhibit symptoms still test positive.

 

The SCMP reported further:

 

Life Times, a health news outlet affiliated with People’s Daily, reported this week that quarantine facilities in Wuhan have reported that about 5 to 10

per cent of their recovered patients tested positive again.

 

Previous reports have also highlighted cases where patients tested positive after recovery, including one case study about a family of three

in Wuhan, who all tested positive again.

 

These incidents have raised questions about whether nucleic acid tests might not be reliable in detecting traces of the virus in some of the recovered

patients.

 

Some experts have also expressed concerns about the sensitivity and stability of the test kits, and the collection and handling of patients’ samples.

 

Only time will tell whether recovered patients can continue to infect others or not, but with close to a million patients worldwide and over 50,000 who

have already died, we can only hope and pray that the Chinese scientists are right.

 

 

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy,  diversity,  inclusion and sustainability expert.

 

Will it be the “White smoke” from the 10 billion Cash transfer to the disabled Kenyans? Author Mugambi Paul and DR Siyat.

Over the last 3 weeks the Kenyan government has been excoriated on the measure it would avail to the poor due to the hard-economic times and the coming in of Covid-2019 pandemic. Talking of poverty,

several studies show disabled Kenyans are the largest minority who face this tragedy.

Kenyans with disabilities are disproportionately affected by the current situation, as we are by all-natural disasters and major crises. It is vital that our

voices are part of developing solutions, innovating, problem solving.

as 2 experts we are deeply concerned about the impact of the COVID-19 pandemic on disabled Kenyans, chronic ill persons and the elderly. Bearing in mind that Kenyans with disabilities are among the Kenya’s most marginalized and stigmatized even under normal circumstances.

This requires us all to act, interact and communicate in different ways than we are used to. However, the social inequalities

degeneration COVID19’s impact on Kenyans with disabilities are not new. The risk in the response to the current crisis is that disabled Kenyans

will be left behind once again. The good news is that we already know what works. Fundamentally, we need social justice, equality of opportunities and

decent work.

According the UN Special Rapporteur on the rights of persons with disabilities “The pandemic is an unprecedented public health,

social and economic emergency that requires swift and effective action by Kenyan public and private sectors, and the society at large.

We know that COVID-19 is more serious for those with underlying health conditions and particularly those who are immunocompromised. What does this outbreak mean for the Kenyan Disability community?

Both national and county Governments should ensure they take

all necessary measures to ensure the protection and safety of disabled persons, aged and persons with chronic illnesses] Ilo 2020 WHO 2020 UN 2020 HI 2020 [.

 Legal framework:

The United Nations Convention on the Rights of Persons with Disabilities states that people with disability have the right to health without discrimination

on the basis of disability, including access to population-based public health programmes (Article 25) and that governments also have a duty to take all

necessary measures to ensure the protection and safety of persons with disabilities in situations of risk (Article 11).

 

Facts to consider:

Providentially, even in non-pandemic circumstances, people with disability are more likely than the general population to have health issues, compromised immunity, increased

risk of morbidity, comorbidities and are more likely to die from preventable causes] Whiteford 2011 DFID 2013, HI 2015un 2012].

According to several studies Some disabled Kenyans will be unable to maintain social distancing

practices because they rely on support workers for vital daily personal care, such as eating, drinking, walking, mobility toileting and dressing.

in addition, disabled Kenyans often rely on family, friends and care givers to provide essential services. During the Corona pandemic, these people may not be able

to provide their usual support.   

Also, in different Kenyan social media platforms disabled Kenyans like many in the broader community, are expressing anxiety about the COVID-19 pandemic.

Of course, this nervousness is exacerbated by the feeling that they are being left behind or ignored by Kenyan government, private sector and community Corona responses.

Background of social assistance programmes:

Current social assistance programmes include the Older Persons Cash Transfer Programme; the Orphaned and Vulnerable Children Cash Transfer Programme; the Persons with Severe Disabilities Cash Transfer Programme; the Hunger Safety Net Programme; and the Urban Food Subsidy Programme. The effective implementation of these programmes is constrained by challenges such as how to refine inclusion and exclusion criteria and how to determine appropriate transfer amounts.

 

Corona Rescue plan:

We acknowledge the efforts made by Kenyan government by the issuance of the additional 10 billion Kenyan shillings to the ministry of social protection for the vulnerable population in form of cash transfer.

Definitely in the coming days disabled Kenyans expect a white smoke at the NSSF building which houses the ministry of social protection in Kenya.

Most disabled Kenyans are highly expectant of the policy regulations and guidelines on the 10 billion promise by the executive order by the president of Kenya.

Unequivocally, with proper feedback mechanisms and regular consultation disabled Kenyans will be able to know if cash transfer policy programmed will meet their policy needs.

In other words, disabled Kenyans will comprehend how  the 10 billion cash transfer injection to the inua jamii will target the current registered severe disabled persons, elderly, orphans and vulnerable children or it will be meant  for targeting additional new  vulnerable individuals due to the effects of  of Corona 2019. Arguably, much of the debate about cash transfer among disabled Kenyans programmes revolves around the issues of targeting. This is because with the current strategy only severe disabled persons are targeted and considered.

https://labour.go.ke/wp-content/uploads/2019/09/MLSP-Strategic-Plan-2018-2022_17.09.2019.pdf

 

 

This will be a great test as different stakeholders and policy makers in the social protection department scratch their heads on the right footing on which to take in the implementation policy framework.

Will the policy makers ensure inclusion of other disabled Kenyans since they are also mostly vulnerable?

We believe the cash transfer will avert the short-term impact of the Corona crisis and attenuate its long-term negative effects on human development outcomes.

Nonetheless, it is one thing to say that Kenya with Inua jamii -like programmes are sheltering the more vulnerable from the worst consequences of the Corona crisis, and another to recommend that Inua jamii programmes be designed and implemented during a crisis Lehmann, C. (2012. Several steps are involved, political will is required, and funds must be committed. The ministry of social protection has a pivotal role to ensure coordination, operation and more resources even from development partners.

We observe, the Cash transfer programme will be effective if it will be implemented under a sustainable social protection strategy. Such a strategy should enable better coordination among programmes, between the national and county government ,and among the different international players in order to avoid duplication of effort and waste of resources.

For instance, Mombasa have already started a SMS service asking those who aren’t in the Cash transfer to register “widows, orphans, persons with disabilities, and persons with pre-existing conditions into the emergency plan

Has Mombasa county link up with the national cash transfer programme?

Data base and registration for the cash transfer:

Due to social distance directive as a preventive measure of spread of Corona. Will the ministry of social protection work on vigorous registration, collection of data and automation of all new persons with disabilities, orphans and the elderly?

Or will the ministry of social protection synchronize the current departments databases of children services, NCPWD and   department of social development under the strategic guidance of the National Social Protection Secretariat programme?

This will enable to identify the unmet needs through geographic, demographic and welfare status.

Furthermore, quite a lot of reports indicate the current enhanced single registry adapted through the social assistance programme has improved efficiency and reduction of bottlenecks experienced when the ministry of social protection had 3 separate registries [development pathways 2020[.

Through this policy integration the ministry has    a clear database and actualize its programmes effectively Bobonis, G. and F. Finan (2019).

Such database can enable the ministry to build an array of indicators on disabled persons, orphans and vulnerable children, elderly socioeconomic conditions. Therefore, this is a powerful tool for mapping the different needs. and they could be used to guide other policies. Like the current need of food, water, soap and hand sanitizers.  Moreover, Registries enhance monitoring of the poorest families’ access to social services and infrastructure in a more calibrated way than household surveys. The latter, though they are nationally representative, are often based on small samples that do not facilitate sound analysis for local-level interventions. This knowledge base allows rapid crisis response when programmes may need to expand in order to cover a larger proportion of those that fall into poverty.

Key considerations for the cash transfer:

We consider that the ministry of social protection will cast tis net wider in order to seek input from people with disability, leading disability experts, organizations of persons with disabilities and advocates

in developing their dedicated cash transfer strategy, and in particular, in its COVID-19 Coordination

secondly, Disabled Kenyans with disability, particularly slum dwellers and rural inhabitants, may be disproportionately affected by the pandemic due to increased risk of

infection, higher number of co‑morbidities and because of underlying health conditions such as chronic diseases and respiratory illnesses. Numerically speaking, most disabled persons in Kenya live in slum areas and rural areas without basic amenities. Some live-in solitude while others have been housed.

Most of the disabled population and other low-income earners live hand to mouth. This is to say, COVID-19 will spread rapidly and is especially dangerous to people living in close proximity to others in closed settings [WHO 2020].

Worse still, Thousands of adults and children

with disabilities in Kenya live in segregated and often overcrowded residential settings where they can face neglect, abuse, gender-based violence, and inadequate health care and lack human Rights.

Of particular concern are women and girls with disabilities.

This affirms that disable Kenyans are survivors in this country [KNHR 2015]

 

Thirdly disabled Kenyans continue to face barriers in accessing health care, including prevention, testing, screening and treatment for COVID-19. Fourthly, disabled Kenyans will be   unable to access regular and vital medications and therapeutic services due to low supplies and restrictions in access. Fifthly, disabled Kenyans may not have access to mental health services at a time when the need for accessible and responsive mental health is heightened. Sixthly,

disabled Kenyans will be unable to easily access essential health supplies to keep themselves safe, such as personal protective equipment, hand sanitiser and sterilising

Equipment.

lastly are worried that discrimination or unconscious bias could impact their access to critical and lifesaving health care during this crisis.

to we hope the measures taken will ensure the needs of all Kenyans with disabilities are included in

the response to the pandemic.

As experts we appreciate and acknowledges the challenges that national and county governments and private sector are facing during this pandemic.

 

We call upon all national and county governments to ensure that, in their responses, they include dedicated disability strategies to protect and support disabled Kenyans.

Long term solutions:

We opine that Kenya is still a developing nation We therefore suggest inclusion of one our BBI recommendations which we presented at the task force in February 7th, 2020 as a long-term solution.

  1. Ministry of social protection to establish a disability employment service department under the national employment authority since the authority is in charge of all Kenyans in need of employment. so that they are able to execute employment needs of persons with disabilities Through this agency real disability mainstreaming will be achieved. If this recommendation will be adapted, we believe rapid change will take place. We opine disabled persons won’t need to be in cash transfer for long since cash transfers are not meant for long term programming.
  2. We hope the ministry of social protection can take advantage of the Corona crises to execute of reasonable accommodation plans in all its organs and offer vital lessons to both public and private sector.

All in all, our policymakers will have to come up with a homegrown resolution for ensuring disabled Kenyans rights are protected. And this will not be easy.

 

 

 

The views expressed here are for the authors and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Dr Siyat is a  independent  consultant and systemic advocacy service provider.

 

Why Social Isolation is a Greek term to the disabled Kenyans: Author Mugambi Paul

Several studies indicate that in an emergency person who are disabled, aged and who have chronic illnesses are mostly left behind and most at risk [Help age 2012, HI 2019, UN 2020, WHO 2020].

This is because persons without disabilities will be fighting and running away for their fate. As evidenced many Kenyans have started to go back to the rural places.

 

As a public policy scholar and with lived experience of being disabled and advocate for inclusive approaches in both humanitarian and development spheres.

I am concerned on the current and feature effects of Corona on lives of disabled Kenyans and chronically ill people who are currently falling into cracks.

In other words, they are

being hit and particularly hard by the virus outbreak and access to support services seem to be becoming scarce and finally

will be cut as the crisis worsens.

Evidently, in Nairobi and other major towns Panic buying of cereals, groceries, toilet papers, hand sanitizers and other protective equipment, which also disabled and chronic ill people need have suddenly doubled the prices and also have started to be scarce.

I  observe,  Kenyans without disabilities  and who can stockpile are the ones who are probably less at risk because they were able to rush out to the shops, whereas a lot of disabled Kenyans like  me,  elderly, e and persons with   chronic illnesses just can’t get these commodities.

This is coupled with high poverty levels among the disabled Kenyans.

On the other hand, the Cabinet secretary of Health gave a directive prioritizing the elderly and persons with disabilities in the queuing system in the supermarket [daily nation Friday March 2020[

This pronouncement shows that disabled persons have started to be brought in in Corona conversations though much needs to be done in order not to live us behind. If this directive will be followed, we are yet to see.

 

Could the Kenyan supermarket borrow a leaf from Tesco in the United Kingdom or supermarkets in Australia?

In both nations they have reasonable accommodation for ensuring disabled persons, elderly and persons with chronic illnesses are able to shop comfortable and provision of delivery for those with large shopping.

The Corona virus has equalized us all and it has led to the realization that what works for all works for disabled too] UN 2006 UNDP 2017 ILO 2019 Whiteford 2019].

 

Dilemma of social distance: you

 

Social distancing is not an option for disabled Kenyans. The Kenyan government and more so the ministry of health and disability stakeholders need to go back to the drawing board in order to address the needs and priorities of disabled Kenyans so that we can have inclusive corona interventions.

Of course, many Kenyans with out disabilities take things for granted. This is because most will never fit in to our shoes till when they join our disability club.

For instance, Kenyans    with a disability, who rely on care givers and support workers for daily living and sighted guide services including washing and dressing.

I am talking about people with spinal cord injuries, muscular dystrophy, cerebral palsy, sometimes people with intellectual disability, psychosocial disability, the elderly, Down syndrome,

that might need assistance with showering, with going to the toilet.

Moreover, social stigma in Kenya is still ripe,

Shoppers who ar blind and vision impaired will not get sighted guided assistance in the shopping spree due to the continued pronouncement by Kenyan government that we should be one metre point five away and avoid handshakes.

in case the president issues an executive order of total or partial lock down, I observe the disabled will be worst hit even withing there local surroundings.

Did you know most of the local shopping areas are highly squeezed and have low ventilation?

How will my fellow wheelchair users avoid assistance not being close while many of the wheelchairs in Kenya are manual?

Furthermore, some disabled creep on the floors!

How will they shopwith out contacts?

Most Kenyan roads are inaccessible how will the Blind and vision impaired avoid falling in to ditches and trenches?

Our independence and self estieem by the use of assistive divides is being questioned!

How can this non handshake apply to mobility impaired persons like Blind, Crutch users, wheelchair users?

Does the Cabinet secretary of Health and policy makers know our devices are metallic?

What if the care giver is infected and need to self-isolate?

This will make Disabled persons become at higher risk,

Additionally, the actual time and effort of finding somebody else, finding the right person that’s going to fit, as well

as then training someone up from scratch again, is a huge effort for people with very high support needs who are going to be in that really high-risk category. The ministry of health needs to train its front-line staff on basic disability inclusion tips

 

Why are the disability sector and stakeholders silent as the lack of disability inclusive Corona continues?

Are they contributing to uninterrupted discrimination and injustice to the larger wanjikus with disabilities?

I suppose they are hiding and later after the Corona era is over, they will claim we were left behind!

The Kenyan media should rise to the occasion and speak on behalf of the disabled Kenyans and persons with chronic illnesses.

Contribution by disability sector:

The disability sector, human right bodies and other policy stakeholders have the role to monitor and report the government organs on the said implementation.

This is actually time for disabled experts, disabled persons organizations, human right bodies state organs practising disability mainstreaming should contribute to more inclusive Corona interventions.

What if the Kenyan disabled stakeholders changed tact and start to advocate for now the silent revolution of reasonable accommodation being implemented?

To put it differently why doesn’t the disability sector join the table instead of awaiting to be in the menu?

I opine, Kenya has great public policies on reasonable accommodation now is the right time to,

push for implementation.

let me illustrate

What if the disability sector and stakeholders pushed the national construction authority now to publish and implement real accessibility standards of buildings?

Most likely we shall have makeshift hospitals. Will they be accessible?

Why don’t the disability stakeholders within their budgets adjust and contribute to the ministry of health on inclusive approaches?

For instance, developing Kenyan sign language clip on how to prevent Corona virus then distribute to the mainstream media and social platforms?

Why don’t the disability stakeholders produce material into braille and distribute all over the country through the free matter for the blind service offered by poster corporation as entrenched in the persons with disabilities act 2003?

Does the disability sector know the time is now for implementing the Marrakesh treaty?

Could the global commitment made by Kenya government, private sector and disability stakeholders be revisited in the area of innovation and make non-metallic assistive devices?

 

All in all, this coronavirus comes with a silver lining. At least, it will pep up people to take normal civic sense to a higher status. So that besides coronavirus

we actually end up also fighting other issues like discrimination faced by Kenyans with this will lead to breaking some if not all the barriers that disabled Kenyans face.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

 

Why the DISABLED Kenyans are pregnant in the Corona era: Author Mugambi Paul

 

Generally speaking, The COVID-19 pandemic occurring in Kenya should be of utmost concern to every citizen. This is because we need to work together around the country in solidarity.

Ofcourse, the risen times are extra-ordinary. This is the times that will redefine Kenyan human spirit.

 Are we going to ensure disability-inclusive, accessible disaster-response?

On my own behalf and the disabled Kenyans

 We acknowledge the great leadership displayed by cabinet secretary Mutahi Kagwe of ministry of health under this difficult circumstance. Moreover, the CS is communicating in to minds and hearts of all citizens. Could this be adapted as the new norm to Kenyan organization culture of governance?

 

On the other hand, the Corona virus seems to have equalized all of us and the realization of the economic inequalities that exist among low income Kenyans

Amongst these is the largest minority “Kenyans with disabilities” of who make up more than 15 % of the population [WHO 2011]. we need to examine corona virus by waring the disability lenses.

On March 20th, 2020 during the daily updates a more disability inclusive approach was adapted.

This affirms that the CS is a great communicator.

though much needs to be done to realize disability Inclusive approaches.

As a  public policy scholar and a  person with lived experience of being blind I  opine that if what the CS health interventions were to be made long term policy execution the Kenyan  government will  overcome many challenges of including persons with disabilities and resolve the  unemployed citizens  mystery.

In other words, our policies must not discriminate. Disabled and low-income people must be included in every policy, every fund, every new law.

This is the real meaning of disability mainstreaming.

 

Background:

 

Kenyans with disabilities’ needs and concerns should be adequately addressed in existing COVID-19 Kenyan relief packages. 

I affirm that Disability impacts every community and occurs at every stage of life. In addition to impacting Kenyans with disabilities more disparately, the virus is also likely to create disability while people recover [WHO 2020].

Fact to consider:

I believe The Corona virus has awaken the public consciousness of what works for the disabled Kenyans can also work for all

Challenges faced by disabled Kenyans:

Unfortunately. Clean water and sanitation facilities aren’t always available or accessible, particularly for Kenyans with

Disabilities and the low-income earners [UNICEF 2017[.

Are the newly 500 water points in Nairobi accessible to all disabled Kenyans?

 Life-saving information often doesn’t reach those who are deaf, blind, using wheelchairs, illiterate, Deafblind or living in remote areas.

I uphold this global health emergency, the ability to read timely information in an accessible format is even more critical than usual. I   believe the more people access and act upon the information that Ministry of health leaders and public officials are

providing, the better we Kenyans can all cope with the rapidly evolving situation.

 

 

 Furthermore, the corona virus puts people with chronic diseases, Kenyans with disabilities, and the elderly most at risk. could the ministry of health issue a statement regarding rationing of care to ensure that when rationing treatment begins, decisions about how medical treatment should be allocated are made without discriminating based on disability?

 

 Worse still, the Kenyan health system is

not prepared. In China it is reported already some disabled persons have died due to starvation and nonattendance.

Information campaigns and medical care must include the needs of Kenyans with disabilities. It is pivotal that Kenyan state as a duty bearer identify and monitor people with

disabilities in their communities. Frontline staff need training on caring for people with disabilities in the crisis.  The ministry of health should also ensure protection of the front-line health workers by provision of the equipment which they need to execute their work safely

masks, gowns, shields, gloves, suits, and other equipment. Therefore, preventing further spreading of COVID-19.

I urge the Kenyan public policy makers and stakeholders to think boldly and broadly in their response to this pandemic and waste no time saving lives and have actionable long-term policies and regulations.

 

Different ILO studies have affirmed with proper reasonable accommodation execution productivity is high and brings diversity. For instance, If the ministry of public service, ministry of labour, federation of Kenya employers, employment authority, ministry of transport, disability experts can work together via video link can craft a reasonable accommodation regulation.

This is to say with flexibility and

creative solutions are more important than ever in this Corona era.

With this regulation, the president with his executive power ascent can save Kenya a great deal.

several studies and additional public health experts have stated that disabled Kenyans are more vulnerable to COVID-19. Beyond the specific conditions or diagnoses that may raise susceptibility to the virus itself, Kenyans with disabilities are particularly vulnerable to the broader social, civil, and economic impacts of the coronavirus pandemic.

Thus life in Kenya will never be the same again.

will this be a turning point for Kenyan Parliament and senate to ensure a inclusive social protection cover for the marginalized?

  Outlined below are a series of expectations that could benefit Kenya in the long run:

  1. Prioritize and Expand Home delivery services. This can be done through acceleration of M-post services since most Kenyans have Mobile phones additionally more private delivery companies can also be incorporated with a particular county. This would reduce the social contacts since most Kenyans go seeking for goods outside there vicinities.
  2. 24 shift working economy: this can be accelerated by both public and private employers thus even reduction of man hour spent on traffic. Moreover, through shift working economy it would increase work productivity. Some best practises can be borrowed from the private sector. Could this be an opportunity for implementing 2030 vision? Additionally, if adopted in Nairobi, Kisumu, Meru and Mombasa can say by bye to the traffic menace. Could the new Nairobi Metropolitan team adapt this?
  3.  

Prioritize access of digitalized documentation: if this was to be adopted most government documents would be gotten easily. For instance, one of the best recently successful is acquiring renewal of tax exemption among the Kenyans with disabilities although now with the advent of Corona Kenya revenue authority and NCPWD needs now more than ever to decentralize the service. This would actually reduce the transport expenses incurred by Kenyans and also save working hours.

  1. Cash transfer uptake: As the coronavirus crisis has caused a significant economic downturn, I believe that it is essential for ministry o of treasury  to authorize an increase in cash transfer programme to the ministry  of social protection in order to reduce the economic shocks among persons with disabilities,  the seniors of Kenyans   and their care givers. Who are already vulnerable and not covered with the current cash transfer programme.

This move will enable government of Kenya to reduce vulnerability levels.

5 food access:

Regular access to healthy food is key to maintaining strong immune systems. I   encourage the Kenyan government to expand access to food distribution during this period especially to chronic ill persons, the low-income earners, disabled Kenyans, the slum areas and vulnerable populations.

Regrettably, many Kenyan families even before corona era were living under distress for lack of one meal a day.

 Sadly, many Kenyans ability to keep and maintain employment will be impacted by both the business and transit closures.

If short term measures are not taken this might lead to civil strife and increase of psychosocial disabilities among Kenyans.

6.Access to transport: the Kenyan government can support the public transport sector by having reduction of oil prices thus preventing Kenyans from paying extra charges.

Additionally, the government owned busses offer the services to support the private owned public transport services with the new half full caring capacity policy implementation. Where are the NYS busses?

 I observe there has been increased discipline in the Matatu industry by the reduction of congestion by the ministry of Health directive.

Environmentally speaking, drastic air pollution has reduced.

 

How I wish it was a daily Norm in the public transport.

Could the government offer tax wavers for public transport to acquire disability inclusive buses?

 

7. Implementation of accessibility standards.

The national construction authority and disability stakeholders should rally behind and ensure when makeshift hospitals,

isolation facilities and construction of new hospitals are fully accessible and equipped with accessible beds.

Therefore, Duty bearers should ensure disability civil rights protections are fully protected since rights   are not negotiable. I believe time is ripe to enforce and implement article 27, 54 of the constitution and persons with disability act 2003 for protecting rights of disabled Kenyans.

  1. inclusive economic stimulus: Kenyans with disabilities must be included in the economic relief proposals now under consideration by the private sector and Kenyan government. Given that COVID-19 poses unique risks for Kenyans with disabilities and other low-income earners that may make it more difficult for those who are not in any form of employment. This will enable people with disabilities and low-income earners to be able to survive during the current crisis. The economic stimulus should be easily and equitably available for all. Of particular concern are men, women, girls and boys with disabilities.
  2. All of these recommendations are critical to addressing the spread of COVID-19 and addressing our nation’s public health more broadly and ensuring we meet the SDGS by not living any one behind.

As the Rev. Dr. Martin Luther King said, “We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.” The fragile state of this “network of mutuality” has become all too apparent during the coronavirus outbreak. Though we may be vulnerable, we are not dispensable. In fact, disabled Kenyans have critical experience to share in adapting to challenging and constantly changing situations affecting our health, employment, education, housing, and families–experience that all fellow Kenyans will need in the days and weeks ahead. We are grateful for the urgency with which the Ministry of Health is moving to make sure that the Kenyan people never feel the worst of this pandemic, and am seeking  only to protect Kenyan disability  community from the unintended but all too foreseeable impacts of discrimination.

especially during all phases of disaster preparation, response, recovery, and mitigation.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert

the catastrophe of being Blind and Disabled in the Corona era “Lessons for Policy makers!” Author Mugambi Paul.

Kenyans living with disability are a vulnerable group; a larger proportion are older, and with underlying health conditions. Almost half of all people with disability
are aged 65 and above. And only 24% of adults with disability experience very good or excellent health, compared with 65% of without disability [world report 2011].
Apparently in Kenya, Disability is generally very misunderstood and very unacknowledged, even though 15 % of disabled Kenyans make up the population.
The world is paying close attention to the outbreak of novel coronavirus, following its emergence in December 2019 in Wuhan, China but the voice of disabled Kenyans is still inadequate.
This is because of lack of political influence, inadequate social services and lack of opportunities to adapt.
This indicates The rest of 85 % of Kenya’s population is engaged.
Over the last six years, the health sector in Kenya has exhibited significant developments, including the introduction of the Linda Mama (free maternity) initiative, the Beyond Zero campaign, efforts to revamp the National Hospital Insurance Fund (NHIF), as well as a multi-million dollar Medical Equipment Leasing scheme aimed at bringing advanced medical equipment closer to citizens across the 47 counties and in key referral facilities.
The inclusion of health in the president’s legacy priorities (Big Four Agenda) underlined this stated commitment to improving healthcare.
This obviously follows the Constitutional requirement, Kenya Health Act 2014 and Kenya Health Policy 2014-30. In addition, Kenya has ascribed to the Sustainable Development Goals (SDGs), including SDG No 3, that commits governments to provide quality healthcare for all.
Are these Kenyan Health regulation disability inclusive?
Data evidence:
According to latest data over 132,000 cases of Coronavirus disease (COVID-19) have been reported and 4,900 people have died. The virus has reached 123 countries [WHO 2020[.
How does the virus spread?

Epidemiological evidence shows that 2019 nCoV can be transmitted from one individual to another. During previous outbreaks due to other coronaviruses, including Middle East respiratory syndrome coronavirus (MERS CoV) and the Severe Acute Respiratory Syndrome coronavirus (SARS CoV), human to human transmission most commonly occurred through droplets, personal contact, and contaminated objects (fomites). The modes of transmission of 2019 nCoV are likely to be similar.
The precise zoonotic (animal) origin of the 2019 nCoV is still uncertain. The virus has been identified in environmental samples from a live animal market in Wuhan, and some human cases have been epidemiologically linked to this market. Other coronavirus, such as SARS and MERS, are also zoonotic, and can be transmitted from animals (civet cats and dromedary camels, respectively) to humans.
On the other hand, With the outbreak of a novel coronavirus declared a pandemic by the World Health Organisation, people worldwide are working to address it.
According to the WHO Director-General Tedros Adhanom Ghebreyesus said in a terse statement that this is the first time the world is battling a pandemic against a coronavirus disease.
This has seen nations executing travel bans to sport shutdowns. Meanwhile other countries like Italy, Denmark, Estonia, Latvia and rwanda have locked out their countries.
coronavirus is changing life as we know it. It’s tough to know who to trust – that’s why it’s vital to receive facts.
Disabled Kenyans are at higher risk due to the multifaceted related factors in addition of having a disability. WHO is warning people across the world to avoid contact?
But populations in less developed countries like Kenya are wondering how that is possible when they still need to go to search for food, work, purchase items, go to church or mosque or connect with family and friends.
Key factors:
Rise of stigma and discrimination.
Already in existence it will be Upsurge by the lack of shaking hands as announced by the ministry of health.
Of course, Many Blind and disabled persons require support when crossing the busy Thika superhighway or the Westland routes.
For instance, Crutch and white cane users tend to touch metal rails, touching escalator handrails, using traffic light buttons, reaching for train door opening buttons and holding safely
on to handrails on public buses and Matatus while crossing, some may require to be held while crossing.
how can we avoid handshake?
I observe many disabled Kenyans are anxious. This is because we can control what we touch, but we can’t control what
other people have touched.
Will the ministries of health or ministry of transport provide qualified volunteers?
Or will the ministry of health or transport provide protective products like hand sanitizers to the public transport providers?
I observe, With the Corona in place discrimination and stigma will rise in totality since citizens with out disabilities will be having social distance thus disabled Kenyans might stop seeking services or refuse to travel.
Coupled with poverty levels many disabled Kenyans will not afford the buying of the required protective gears like hand sanitizers.

Second factor is Isolation:
Several studies show disabled persons have lived in isolation for long and this will be a lesson for persons without disabilities.
majority disabled Kenyans are at increased risk of serious or fatal complications from COVID-19 (coronavirus). In an active community outbreak, the
safest option may be to self-isolate at home, perhaps for weeks or longer. In order to prepare for this possibility, I believe its high time the Kenyan ministry of health recommends
that people at high risk stock up on necessities, including maintenance prescription medication.
Worst still, many disabled Kenyans can’t take this advice because m95 % of the disabled do not have insurance.
This is a great chance of disability stakeholders to network with the national hospital insurance fund to probably register all disabled persons visiting the health service providers.
Moreover, the lack of insurance as a social protection measure has left many disabled Kenyans to be more vulnerable.
Solution for NHIF:
I would suggest NHIF recognizes and automates its system to include the disability card issued by NCPWD.
Absolutely this would increase the uptake of insurance among disabled Kenyans.
Will the Kenyan legislature enact an insurance regulation of eliminating the wait time for employment insurance payments?
Third factor is Logistics:
Unfortunately, accessing the pharmacy can be risky for some disabled Kenyans and people with chronic illnesses and even pregnant women.
. Some people with disabilities may also face logistical challenges in getting to the pharmacy if support services become disrupted
due to sudden rise of isolations and being left behind.

Moreover, the Kenyan pharmacy are yet to embrace the mailing services. This could have been a solution instead of putting all at risk.
Will the delivery companies in Kenya grab the opportunity?
The ministry of health has announced measures of
Of ensuring localized outbreaks and social distancing measures are observed.
Absolutely, in some countries already there is massive disruption of supply chains. What can Kenyans with disabilities learn?
Disabled Kenyans and persons with chronic illnesses can’t stake their lives on the assumption that the availability of medications will remain stable in the coming weeks and
months. They need to be able to stock up now.

I opine that Disrupting treatment always endangers patients, but even more so in a pandemic.
The need for inpatient treatment will likely exceed capacity in many communities. this is because Kenya and other developing countries we still have weak health systems and inadequate health infrastructure. COVID-19 is expected to heavily tax the resources of the Kenyan health care system.
Will Kenya now revisit the Abuja declaration on Health Budgeting?
Further Than, outpatient clinics are likely to have a high number of patients
seeking treatment for COVID-19 symptoms, making avoidable visits risky for those more vulnerable to complications. Additionally, patients whose chronic
conditions are destabilized are in danger of becoming more severely ill if they are infected with COVID-19.
Water access:
In Kenya water access is a major challenge for all. Will the Kenya government break the cartels in the water industry to ensure water is readily available?
In Nairobi, Mombasa, Kisumu and other major towns its proven fact that many households go for several months without accessing running taps and forced to buy. According to UNICEF 40 per cent of the world’s population, or 3 billion people, do not have a handwashing facility with water and soap at home. Nearly three quarters of
the people in least developed countries lack basic handwashing facilities at home. Further, 47 per cent of schools lacked a handwashing facility with water and soap affecting 900 million school-age children. Over one third of schools worldwide
and half of schools in the least developed countries like Kenya have no place for children to wash their hands at all.
Forth factor nonvisual access:
Kenyans who are Blind or visually impaired do not have equal access to quantitative information including charts, graphs, and maps. For example, many of
us simply cannot perceive the data visualizations and dashboards that are regularly published by mainstream news organizations. As a result, we often have
limited or non-existent access to critical data, including information we aneed to make informed decisions pertaining to our work, finances and health. As
charts depicting the spread of Coronavirus and modelling how to flatten the curve are seen and discussed worldwide with Blind and visually impaired people
largely excluded from the conversation, we are starkly reminded that nonvisual access to data is vital to our equality and well-being.
The charts and graphics popularly known as “data visualizations” can – and should – be represented in formats that Blind and visually impaired Kenyans can
use.
Effects of COVID-19 on employment:
Centrally, my thoughts seem to be telling me a silent reasonable accommodation revolution in workplaces is being executed globally by Covid-19
as envisaged in the UNCRPD.
For instance, some tech companies Multinational like apple and google are demanding their employee to work at home. According to ILO 2017 with proper reasonable accommodations companies can benefit allot
This is to say that allowing employees to work remotely encourages more equality in the workforce by allowing more people with chronic illness and disabilities to participate and some studies show employees even report that they perform better in remote arrangements.
.
I believe working at home will assuaged persons with chronic illnesses and also individuals’ who are having low immunity.
Will the disability policy makers and employment gurus stakeholders rise to the occasion and present a reasonable accommodation legislation?
Now the people without disabilities we see your ableism tendencies being put in the right place
This shows implementation of disability related rights is possible. Should public and private sector await a catastrophe to implement disability laws?
It’s a fact that in Kenya after the road tragedy in 2002 by the Third president who was sworn on a wheelchair made the signing of the persons with disabilities act 2003.
Will public and private sectors reduce demand for office spaces?
Will public and private sectors in developing nations like Kenya adopt 24 hour economy by having there staff to work on shifts in order to avoid social contact?
Will companies in developing countries stop the analogue economy and switch to digitalization?
What does this mean to both employed and unemployed disabled?
What does COVID-19 mean to the almost 70 % of informal employment in Kenya who do not use digital devices?
All in all, we need disabled persons organizations to be engaged in advocacy on protecting people with disabilities from COVID-19 in both national and county levels.
This is by way of ensuring we have inclusive emergency plans and actions.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Will the “Disabled” Kenyans cry foul after being left in Coronavirus conversations? Author Mugambi Paul

In order not to live the disabled Kenyans who are the largest minority, who make up 15 % of the population.
I opine, disabled Kenyans they deserve not to be left behind.
There is an urgent need for Ministry of health in Kenya to address the rights and needs of disabled person throughout all COVID-19 planning and response.
In other words, for maximum community results in the recent updates from the national and county governments there is the need to close the glaring gap of inclusivity.

Available facts:
Children and adults with disabilities and older adults are 2-4 times more likely to be injured or die in a disaster due to a lack of planning, accessibility, and accommodation. Most people with disabilities are not inherently at a greater risk for contracting COVID-19, despite misconception that all people with disabilities have acute medical problems.
Kenyan government Actions taken now can make a big difference in COVID-19 outcomes
Additionally, the disability sector from both the state and non state actors need to raise the voice not just to remain mum.
Are disabled persons represented at the national emergency committee established by the president?
Are the needs of the disabled catered for in the contingency plans?

Lessons learnt:
One of the greatest lessons in the fight of HIV aids in Kenya is that the disabled persons were not involved nor consulted in the plans strategies for combating the menace.
It took few disability stakeholders to get the national aids control council to ensure inclusivity is realized.
When shall the disabled stakeholders learn not to be left behind?
Should the disability society be involved after the rest of the population? we
Moreover, USAID was very critical in supporting disabled stakeholders in achieving active disability engagements.
Worst still, many disabled persons weren’t aware of how to prevent themselves from the HIV AIDS infection. Many disabled Kenyans died, and many being taken advantage of by the society perceptions and behaviours [HI 2007]
This is because of the late response to the needs of disabled persons.
Several studies showed the greater involved of disabled Kenyans in awareness, contributed to reduction of stigma and discrimination associated with disability and HIV aids.
It also ensured representation in National aids committees, and prevention promoted reduction of spread of the disease. [NACC 2008, Liverpool 2007 HI 2007[.

Role of the disability sector:
Needless to say, disability stakeholders can play a crucial role by facilitating support to the ministry of health on inclusive strategies which will address the needs of the disabled Kenyans.

Legal Obligations and Training
On the other hand, Public and private agencies that provide services to persons with disabilities must be aware of their legal obligations and must train their employees appropriately. When public and private agencies and businesses are unclear about their legal responsibilities, there are no limitations in providing greater than minimum levels of support and services to persons with disabilities. Lack of understanding is NEVER an acceptable reason for failing to meet legal obligations, including throughout emergency circumstances.
Furthermore, the ministry of health has a has a legal obligation to provide equal access to public health emergency services to disabled Kenyans, including throughout a pandemic since our president issued an executive order
Coupled with the support one of the pillars of the big 4 agenda, of Kenyan 2010 constitution on right to access to health services and international conventions.

Needs of disabled Kenyans:

I observe disabled Kenyans require the same resources and assistance that all citizens deserve.
in other words, adequate information and instructions, social and medical services, and protection from infection by those who might contracted the virus. However, some disabled Kenyans may have needs that warrant specific reasonable accommodation by the public and private sectors that may not be necessary for Kenyans without disabilities. This is not much to ask since the current strategies by both national and county governments have not addressed the reasonable accommodations.

For instance, Communications Authority has approved sending of bulk information messages on coronavirus by the Ministry of Health to all subscribers of local mobile phone operators.
I beg to ask:
Are persons with intellectual impairment, Deaf, Blind, psychosocial disabilities able to consume this information?
1. Can the government provide alternative formats of communication in awareness raising? Disabled Kenyans need to be informed of why Ministry of health believe that certain actions are warranted, to be given an opportunity to ask questions and receive answers in an accessible format, and to be afforded the opportunity to object and propose alternative solutions.
2. Another example, the Bagathi hospital has been designated to be the official self-quarantine place.
Has it met accessibility standards?
Are the beds easily accessible and user friendly to Kenyans with mobility impairments?
Moreover, in some places, the distribution of protective equipment, food, and medical supplies might be warranted. If Point of Distribution locations are established, government and private stakeholders must address how these supplies and equipment will be distributed and accessed by disabled Kenyans, elderly and others who have difficulties in movement and lack means of travel. Disabled Kenyans have the right to receive services in the most integrated setting appropriate to their needs.
All in all, the existing legal protections of disabled Kenyans remain in effect under all circumstances. These protections are not subject to waivers or exceptions, even during public health emergencies or declared pandemics.
I Hope there will be no contrition on this journey of ensuring disabled become part of the solutions.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Celebrating our super parents: Guest Author Odumbe Kute

It occurred to me yesterday after something I posted that prejudice and discrimination, whether conscious or sub-conscious is a very big deal in our lives.
I’ve been a disability and human rights activist for over 24 years and the one thing that rings true through all the work I’ve done around the world is
this. No amount of legislation, education and advocacy will ever cover for ignorance and prejudice about disability that is experienced every single day
by those affected.

It’s not just the general public. The worst offenders are family, close relatives and people who masquerade as friends. The thing is this. Most people
act the way they do, discriminate like they do, judge like they do, say really stupid and very hurtful things like they do, gossip like they do, show their
prejudice like they do because they’re afraid. You’d like to think that they’re just ignorant, but the truth is that they’re afraid. Afraid of what is
different, afraid of their own insecurities, afraid of how they would cope if they were ever in a situation where they would acquire a disability, give
birth to a child with a disability, have a spouse who acquires a disability or have to care for someone with a disability.

They go around calling themselves “normal”, whatever the hell that is. Here’s a wake up call. At least 1 of every 5 people in the world has a disability
of some sort, most of them hidden and not visible to people. It could be mental health, it could be chronic back pain, it could be sickle cell, it could
be a neurological condition ranging from autism to ADHD, it could be any number of debilitating conditions that people are shit scared to talk about for
fear that they might get labelled or judged. They refuse to look at it as a disability. They only choose to consider disability as a physical and medical
thing.

I haven’t even begun to talk about the hundreds of thousands of parents who have a differently abled child. Our society is brutal. Take the mothers of
kids with a disability from autism to CP, from physical to sensory disabilities. Those who stay in relationships and marriages after giving birth to a
differently abled child are considered the lucky ones. But are they really? Most mothers of children with a disability are single because they’ve been
abandoned at the traffic lights. They’ve been ostracized and become outcasts in their own families, in their marital families, amongst their friends and
relatives. They are seen as vessels of witchcraft, accused of bringing forth defective offspring that sully the gene pool of the family. They not only
have to deal with the challenges their child or children face, they are also as individuals, totally discriminated against and judged for every move they
make.

Let me tell you something about these women. They are amazing. They are Ninjas. They are super women, most of whom have to give up their entire lives,
their hopes and dreams and they sacrifice everything to give their differently abled children the best chance they have in life. They live isolated lives
because of the open and mostly hidden discrimination they face by people closest to them. But the one thing that will never be taken away from them is
their resolve, unconditional love, determination and sheer stubbornness in not giving up their default role as primary care givers to their children.

Most if not all these women go through hell every single day to make sure that their children have the best they can have in life, despite their individual
means. Some can hustle and get a shilling here and there, some don’t have that opportunity. Even for families who would ordinarily be financially stable,
the cost of therapy, medication, education, nutrition – you name it, is capable of bringing them to their knees. Some of these women cry themselves to
sleep every single night praying to their God and asking why he or she has forsaken them. And yet, the next morning, they wake up and do it all over again.

I submit to you that you “normal” people as you call yourselves; you people who have perfect lives that allow you to pass judgement over those who have
a different life; you people who stare and shake your head in disgust at a mother whose autistic child is having a melt-down in a supermarket and saying
that “what is wrong with that mother, her child is spoilt”; you people who have the luxury of not knowing the pain of a mother with a non-verbal autistic
child who is in unbearable pain and distress and unable to express themselves; you people who judge and come out with ignorant and stupid comments like
“that one was bewitched”, “that one’s dowry wasn’t paid and that’s why they have a disabled child”, “that one must have done something in a previous life”
– I submit to you that whichever God you pray to is kind enough to have spared you and gave you the right to be ignorant and stupid. Because if you were
ever in the situation that others are in, society has to be lucky that your not one of the ones who will be able to cope with the burden and responsibility
of caring for and loving someone who is different. Pray to that God of yours to never put you in a situation that you become disabled, a spouse or child
of yours becomes disabled, or you give birth to a child with a disability.

Why have I written this post you may ask. It’s because of the sheer amount of in-box messages I’ve got from parents of children with a disability, mostly
those on the autism spectrum, who were absolutely furious that I had to explain that my son is autistic to parents that commented on my post and took the
“your child is bloody spoilt” view. There is a parallel here to real life where the constant need to explain to those who are discriminatory and prejudicial
has become tedious for them and enough is enough.

Let me conclude with a simple example. A couple of weeks ago, a distressed mother on one of the support groups posted a question asking what they can give
their autistic child to calm them down when she has guests. Let me first say, many kids on the autism spectrum will be on medication, and this should only
be for their benefit and if it improves their development. But the thought of having to medicate your autistic child to make it easier for guests? I was
like – Fuck that. The only intervention needed is to bitch slap those guests out of your house. If your own guests cannot come to terms with the fact that
your child is autistic, they have absolutely no right to be guests in your home, let alone friends.

Disabled Kenyans outcry of the elusive accessible housing plans: Author Mugambi Paul

According to the Convention on the Rights of Persons with Disabilities it recognizes the right of persons with disabilities to adequate housing and their right to social protection (article 28). The Convention was adopted in 2006 and ratified by 180 countries, where Kenya is one of the earliest countries to do so.
more importantly in 2017 Kenya adapted the big 4 agenda where affordable housing is one of the key issue.

Where are we:
Arguably, there have been back and forth debates on how the public will be entitled to the affordable housing schemes in Kenya.
There has no been any agreeable way between the 3 arms of government and the public at large.
The lack of public participation in the affordable housing seam to have reached rock bottom.
This is coupled with lack of clear policy frameworks which could ultimately have guided the process.
In Jamuhuri 2019 the president of Kenya seem to have soften the stand on involuntary housing contribution. This has led to treasury in 2020 February budget policy estimates to the Parliament to say that it will allocated 0 budget for housing plan.
Although the private sector is investing on the housing agenda.

What’s happening at the National level?

In 2015, the UN Member States adopted the Sustainable Development Goals which call for access for all to affordable housing and implementation of appropriate social protections systems for all, including persons with disabilities (Goals 11 and 1).
But Kenyans with disabilities remain largely invisible in the implementation, monitoring and evaluation of these commitments. Notably, Lack of reliable and timely data, evidence and research on persons with disabilities continue to pose challenges to the inclusion of persons with disabilities and the full implementation of Sustainable Development Goals, including Goals 1 and 11.
This is affirmed by the latest Kenya bureau of statistics 2020 where disabled numbers dwindled.
Lessons for policy makers in the disability sector:
Mobilization of expertise on disability inclusion in housing agenda needs to be considered.
Disabled persons organizations need to participate in public participation forums to ensure their issues are hard by the ministry of housing and transport.
The disability sector policy makers need to resource and facilitate disabled Kenyans to this process of ensuring inclusive measures are observed.
The disability sector should demand 15 % of the housing units being constructed to be accessible and owned by disabled Kenyans.
The UN report 2018 shows that despite the progress made in recent years, persons with disabilities continue to face numerous barriers to access affordable and adequate housing and a disproportionate number of persons with disabilities are homeless. They face many barriers that prevent them from enjoying their right to adequate housing, including higher levels poverty, lack of access to employment, discrimination and lack of support for independent living.
On the other hand, On 19th February 2020 the gavel fell on the
58th session of the UN Commission for Social Development,
which agreed the text of the historical first United Nations resolution on homelessness. A serious violation of human dignity, homelessness has become
a global problem. It is affecting people of all ages from all walks of life, in both developed and developing countries.
Relevance of data:
Globally, 1.6 billion people worldwide live in inadequate housing conditions, with about 15 million forcefully evicted every year, according to UN-Habitat,
which has noted an alarming rise in homelessness in the last 10 years. Young people are the age group with the highest risk of becoming homeless.

The UN Commission’s resolution recognizes that people are often pushed into homelessness by a range of diverse social and economic drivers.

“It could happen to anyone. It’s not always drugs, alcohol. It’s not always something external. Life happens. And life can happen to a whole lot of us.
It did during the great financial crisis, and it could very well happen again”, said Chris Gardner, who had described his experience of homelessness in
his bestselling book, “The Pursuit of Happiness”.

“We, as a great human society, we are diminished, we lose the gift of their creativity, the gift of their curiosity, the gift of their potential when it
is marooned by all downstream consequences of homelessness”, said Mary McAleese, Former President of Ireland.

“I will never forget my first experience with homelessness. I, unfortunately, was born into a family plagued by a chain of events which included domestic
violence”, added Chris Gardner. “My one regret about being here today is that the two most important people in the world to me couldn’t be here today‐‐‐I’m
referring to my granddaughter and my goddaughter. One of them says that she wants to become the President of the United States and the other one says
that she wants to become an astronaut and go to the moon. And you know what I say to both of them every day? Let’s go!!! THAT’S THE POWER of ONE!”

In its resolution of the UN Commission for Social Development calls for a response by all sectors within Governments and societies. The Commission recommended
the resolution for adoption by the UN Economic and Social Council later this year.

The Commission also celebrated the
25th anniversary of the World Summit for Social Development
and its Copenhagen Declaration. Stakeholders and experts from all over the world expressed strong support for the work of the Commission, noting that
the outcome of the Copenhagen Summit remains relevant today and continues to guide social development in their countries.
Kenya ministry of social protection was recognized on this event.
All in all with the current trends in Kenya it remains a pipe dream for having accessible housing in place.
This is because there are no adequate measure or regulation in place to ensure real inclusion is achieved in housing agenda.
What remains is the low confused undertones among the Kenyan disability community without knowing which direction to take!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The Deep Crises in the Kenyan disability sector Author Mugambi Paul.

Kenya is a country faced ultimately by many challenges as a developing nation.
Issues of disabled persons seem to be hanging in the Kenyan movie of activities.
No one or any institution seems to understand how to handle the first pace changes taking place in the global disability sector.
The disability sector seems to be blaming each other for the failures and the inadequacies felt by the wanjikus with disabilities.
Issues ranging from lack of representation in the building bridge initiative, lack of adequate data from the Kenyan bureau of statistics to delayed
Service delivery.
Let me not dwell on the Corana virus.
As a public policy scholar let be engrain me to the importance of collecting desegregated
data for disabled. Persons.
According to standard media, the release of additional census data by the Kenya National Bureau of Statistics (KNBS) should be a wake-up call to policy makers in both the county and national governments. The numbers present valuable information on trends and patterns within the country’s demographic that should inform policy decisions and resource distribution
This was after the realise of the numbers byt the Kenya bureau of statistics. Unfortunately, for disabled person it was a bitter peal to take having lots of expectations.
The data presented seem to have reduced the numbers of persons with disabilities.
What happened?
The reality check indicates the lack of proper representation and lack of technical knowhow of disability data desegregation took place.
did the disability sector participate in the cycle of activities at the Kenya bureau of statistics?
The data released seems to be negative.
Reasons?
First application and training of the use of the Washington group of questioners was not properly conducted.
Secondly no pilot activity was done on how to collect disability desegregated data.
Thirdly the training of enumerators was a second thought.
Fourthly, were the organization of disabled persons involved in the process?

Facts for consideration:
It is well known. That
An estimated one billion people worldwide live with disabilities. Of the world’s poorest people, one in five live with disabilities.
Notable, in developing nations like Kenya conditions where we lack material resources as well as opportunities to exercise power, reach our full potential, and flourish in various aspects of life. (WHO and World Bank, 2011).
Globally, People with disabilities were not listed as a priority in the Millennium Development Goals. This is also true in the Kenyan context where disabled persons are not listed in the big 4 agenda. As a result, there is exclusion from many development initiatives, representing a lost opportunity to address the economic, educational, social, and health concerns of millions of the Kenyan’s most marginalized citizens (UN, 2011). In contrast, for the 2030 Agenda for Sustainable Development, United Nations member states pledged to leave no one behind, recognizing that development programming must be inclusive of people with disabilities.
Expected irreducible minimum:
To ensure disability-inclusive development, disability data must capture the degree to which society is inclusive in all aspects of life: work, school, family, transportation, and civic participation, inter alia. Disaggregating disability indicators will allow us to understand the quality of life of people with disabilities, towards developing programs and policies to address existing disparities.
Opportunity for Kenya disability movement:
Kenyan disability movement should stop board room meetings among themselves and join where the cake is being mashed and prepared.
At the Global Disability Summit in July 2018, the World Bank announced new commitments on disability desegregated data support to countries.
Specifically, the Bank pledged resources to strengthen disability data by scaling up disability data collection and use, guided by global standards and best practices.
This commitment is aligned with the World Bank’s October 2015 pledge to support the 78 poorest countries in conducting household surveys every three years. Regular household surveys are an excellent option for disability measurement, as they can be stratified to oversample people who are more likely to experience limited participation in society. In multi-topic household surveys, disability data can be collected along with other socioeconomic data, enabling a richer analysis of the experiences of people with disabilities. Finally, regular household survey programs can measure the change over time and space in key indicators such as the frequency of types of disability, severity of disability, quality of life, opportunities and participation of people with disabilities, and rehabilitation needs. For example, the recently launched 50×30 initiative may offer a good opportunity to collect disaggregated farm- and rural-related indicators by disability status
The Kenyan disability sector should stop ghetorization of disability issues and we shall realize real mainstreaming when we speak to where barriers exist.
It is encouraging that more disabled persons in the social media are demanding a specific census for persons with disabilities.
Weather this will be executed time will tell.
All in all, we need a model survey for disabled persons in order to have proper planning and ensure we get the Kenyan national cake.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.