As of 3 September 2021, over 218 million confirmed cases of COVID-19 and over 4.5 million deaths have been reported to WHO. The estimate of total persons affected with sequelae after experiencing COVID-19 remains unknown, but published reports identify that about 10% or more COVID-19 patients experience persistent symptoms for weeks/months after SARS-CoV-2 infection.
Obviously, the big question where are the data for persons with disabilities?
as disability sausage media we believe Data can be a very powerful tool to achieve change. It informs action, drives campaigning and advocacy, shapes policy change, and is essential to tracking progress over time.
The lack of an independent monitoring, evaluation and accountability collaboration to hold governments and other stakeholders to account has for too long been a critical gap in global disability inclusion. most importantly, Most global south ministry of health have been able to provide demographic data but not the numbers for persons with disabilities during the pressers in the COVID era.
Its not just enough to have the location, gender, age and demography.
With the introduction of vaccination, we aren’t sure how many persons with disabilities have been able to accede service.
How can we strengthen the collection and analysis of data on disability, and why is?
it so important?
To ensure compliance with the UN Convention on the Rights of Persons with Disabilities
(CRPD), governments all of the world who are the duty bearers are required to assess whether their strategies
and projects are inclusive of persons with disabilities. All government programs
and projects which include administrative, questionnaires and regulations must collect data on disability and disaggregate it by disability in order to
monitor their quality and impact, and to ensure that people with disabilities in general and
specific groups of people with disabilities are not left behind.
Moreover, looking on the global disability summit commitments made in 2018 by global south nations and private sectors we need to establish the numbers of persons with disabilities who have been engaged meaningfully in employment, economic empowerment programmes and know their different impairments.
As disability sausage media we are against the check boxing exercises.
Actually, for better provision of the upscaling of the universal health coverage ministry of health should strive to have its tools of data collection to be inclusive. another example, the ministry of social protection in Kenya in collaboration with partners intends to have data disability champions and also have a data base where both public and private stakeholders can be reporting on disability desegregated data.
If this is what will ensure everyone complies let it be.
Will we have persons with disabilities as champion for this course?
Or will it be the ableist tendency as seen in most state and non-state representation of persons with disabilities?
Additionally, representation of persons with disabilities and their organizations is crucial for this process to be achieved.
We need to establish the disability desegregated data in order to foster easy government and private planning and also access the gaps that exist in different thematic areas.
All in all, public and private sectors need to move out of the board rooms and actualize the dreams of our forefathers on the rights of persons with disabilities as enshrined in different constitutions, disability policies and legislations and the gospel of the United Nations convention on right of persons with disabilities.
Join us in the disability sausage YouTube channel for much mouthwatering articles
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.
Australian Chief Minister Award winner
“Excellence of making inclusion happen”