The Blocks to Disability Leadership and the mercantile economy of Kenya Author Mugambi Paul

Should disability leaders give up their work?

What world you do when you are in an office and all documents are inaccessible?
What would you do if you turned up for work and you had to climb a 3-meter brick wall to get into the office?
Ask the Nyeri law courts.
What about if everyone conducted team meetings
using PowerPoint and print materials?
How would you feel if you complained and nobody seemed to care?
The Kenyan public space has basically normalized this habit.
Yet, Kenya is the signatory and has domesticated the UNCRPD.
Kenya is known worldwide to have progressive laws and policies.
Imagine if we would have at list 10 % implementation of accessibility!
Let me give an example of the normalcy which occurs daily.

Some contemporaries of mine went to work the other day.

No big deal, hey. Lots of people go to work every day.

The difference is these colleagues are disability leaders. They are well respected in their various fields and regularly lead the public conversation about
disability. They are somehow not tough people I know, allot much gets in their way.
They mostly forget to bring the cows home by not demanding what’s is rightfully and constitutionally there’s.
!
This is to say, most of the public and private conferences in Kenya are held inaccessible areas.
Mostly, the disability leaders aren’t able to transact their work obligations as expected because the workshops and business areas are normally inaccessible. Very inaccessible. Should I say even the Kenyan parliament is among the list?
A place where the largest minority or marginalized group are supposed to find solace.
Should we continue with boardroom discussion on how to make accessibility real?
Or just continue with our social media rhetoric discussions?
Should we wait for another Kibaki moment to actualize the dreams of our heroes and heroines in the disability world?
Where is the accessibility voice space?
Who should be bringing the sector in to order?
The government and human rights bodies in Kenya “hamwoni hi ni dhuluma?” What I am
particularly annoyed by isn’t the inaccessibility, well actually that does annoy me, rather I’m very annoyed that a bunch of disability leaders have continued this trend to
work expecting to perform at their usual high standard, and they are unable to do so.

Most of them can’t live the venues or have alternative mode of communication.
That’s why in Kenya we are still talking in boardrooms about accessibility.
If one day the disability leaders walked out in protest of inaccessible venues and products it will be the turning point.
Through a social media survey, I actually noted that some disabled leaders aren’t involved by public and private entities into workshops.
They are normally left out and remain in offices.
There bosses tend to claim they are stubborn when they demand for reasonable accommodation.

How many local and international conferences have taken place in Kenya and accessibility becomes an afterthought?

This is a total distress and lack of engagement.
This affirms why disabled persons are not represented in most of the forums and become last to be remembered.

How is that the answer? Should disability leaders be giving up their work, or should conferences and workplaces be more committed to ensuring accessibility?

Newsflash: accessibility isn’t an extra or a nice thing to have, its mandatory if you want disabled people in the room. If you think diversity is of any
value at all then accessibility is part of your regular processes, it’s just how you operate. You budget for it, make it happen, build it in from the outset.
You choose venues that work, and make sure there are rapid responses to any issues that arise. You don’t argue and able plain and put the onus back onto
the disability leader to get less disabled, you take responsibility for making accessibility happen and you fix it quickly when it doesn’t.
which government building in Kenya is accessible for the disabled persons?
Most importantly, you make sure the people designing the access are those who know about access and have professional experience in accessibility.
This means they will also be disabled people. These access experts should be paid for their work, just like your sound technicians and caterers.
Obviously, lack of recognition of disabled experts has been normalized by the system, which we need to break.
and that makes it unusual. Most incidents of inaccessibility happen to individuals, often in workplaces that aren’t supportive or have managers who think
they know better, or they are single barriers affecting individuals at offices, seminars rather than everyone, so we never hear about them.
Mostly when organizers realize their mistake.
They normally result in a formal apology during the final plenary. Unfortunately, most of the disability leaders accept and move on.
Additionally, most apologies do not include a commitment to recruit disabled people onto the organising committee in the
future, nor did they include a reference to the same situation happening at the previous conference and this incident being a repeat.

There are still significant barriers to disability leadership.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.

Why the disabled in Kenya should stop reading lamentation Author Mugambi Paul.

Generally speaking, Kenya is facing deteriorating standards an alarming trend and of service delivery to persons with disabilities.
Of course, Recently, there has been lots of reports of rights violations of disabled and more so among girls and women with disabilities. Some of the atrocities have ranged from rape, inflicting gross bodily harm, to murder.
Noticeably, Disabled persons organizations and social media users have broadcasted the information.
What next?
Another example is a case of
a lady 20 years, made National News after she gave birth at Uhuru Park. The previous night having been kicked out of her lodging in Muthurwa for failing to pay half US dollar. She could not even afford a tenth of a US dollar to use a public toilet when she resorted to be at the park and there, she had her baby. All heathy as the dailies in Kenya reported.
How did we find ourselves here?
For how long shall we have the broken system in place?
Disability policy makers should have an ardent call to adjust their belts and raise the alarm.
This is by fastening the legislative agenda and pushing for real implementation and oversight of the current laws.
Additionally, in our pursuit to champion for the rights and equalization of opportunities for persons with disabilities, ensuring their safety in the society
must always take predominate position.
This is well articulated in the ]UNCRPD 2006[which Kenya has signed and ratified.
Historically, I can vividly remember the great promises that successive governments have made since I was newcomer in the movement. Thus far we are still advocating for the same. For instance, we were told in the early 2000 inaccessible of buildings will be a thing of the past.
Yet many infrastructure projects still do not observe the standards even after the gazettement 2015.
theoretically speaking Kenya has great policies but poor implementation.
This is not to say attempts have not been done to save the situation.

However, it seems the government and the disability policy makers are still engaging in pull and push game.
Why aren’t we represented in the building bridge initiative?
Why aren’t we represented at the independent election and boundaries commission?
This clearly shows the low expectation exhibited by policy makers on the capacities of disabled persons.
Its high time the disabled persons enjoy the national cake not just to take the crumps
Should the disability policy makers change tact?
I observe that during 2018 global London summit Kenya marketed itself as a leader on disability mainstreaming and inclusion.
Nevertheless, the top brass leadership din’t take the lead like the UK counterpart.

Observers expected the Kenyan presidency to take the lead.
It is imperative that the disabled persons and policy stakeholders stands firm and retrieve the lost glory and dreams of the founders of the disability movement in Kenya.
In most developed nations there is a cabinet secretary assigned to handle the exclusively the disability docket.
The latest entrant is Australia.
Where the Liberal MP Stuart Robert will enter cabinet as the minister for the NDIS after the scheme was taken out of the social services portfolio.

Should the disability sector be moved to the presidency?
The jury is out there.
Should the policy makers become innovative and engage more disabled persons?

Apparently, the lack of factual information among the disabled population leads to misinformation and low demand of actual rights.
Furthermore, most decision makers are based in the Nairobi city thus lack of involvement of the rural disability sector.
Most Kenyan policy makers use top bottom approach in decision making.
Moreover, the lack of economic resource has made disabled persons to be vulnerable.
Thus, often taken advantage of.
This is by either accepting to receive poor services or suffer in silence.
Its high time disabled persons in Kenya stopped lamentation.
The focus should be on self-advocacy and knowing the rights.
As individuals and institutions, we all are aware of the barrier’s persons with disabilities face.
They include lack of support systems in place. Poor resourced government services. Lack of representation in the workforce, private sector, low literacy rates among disabled persons,
Inaccessible building and infrastructure.
Lastly,
Low legislative agendas among parliamentarians with disabilities. Etc.
Kenya is arguably, the most unequal society.
According to world bank report 2018 43.6 of persons in Kenya live below the poverty line.
Obviously, disabled persons are triple affected.
It is high time we restored dignity and decency among disabled persons.
One way is by adopting universal basic income to all persons with disabilities.
This will promote economic independence among the largest minority group in Kenya.
This is because it will be a game changer by restoration of dignity on lives of disabled persons.
instead of the current cash transfer system which targets a few individuals with severe disabilities.
As a scholar I believe Inclusion of people with disabilities creates a strong economy by enabling a diverse community contribution which drives future growth.
Why do we have well written policies with poor implementations?
This can happen when disabled persons realize that it’s not the disabled leaders who are the problem.
The problem is individual disabled persons who doesn’t want to take responsibility of self-advocacy and engaging in systematic advocacy.
Of course, This is what the disability leadership has taken advantage of.
The disability leadership knows that the true liberation of disabled community will happen when many more self-advocates have taken their positions
Meanwhile the disabled persons organizations have to live to the promise of transparency and accountability in order to be the real watchdog of government institutions serving persons with disabilities.
This agenda should start among the disabled persons organization membership and structures.
Additionally, the legislators with disabilities have to change by living to the call of being leaders.
Being a leader calls for constant interaction with the disabled people. Listening to the citizens forms the basis of representation and legislation.
This will aid the parliamentarians to lobby and advocate for economically viable legislations to reduce the economic inequalities experienced by 99 % of the disability population in Kenya.
Together we can create new opportunities for inclusive economic growth with benefits for everyone in the community, as well as the person with disability, who may become a customer, client, employee, student, team member or holidaymaker at your organisation, sports club, business, shop, restaurant or rental property.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.

Kenyan budgeting is a failure without urgent intervention on Disability agenda. Author: Mugambi M. Paul.

Kenyan budgeting is a failure without urgent intervention on Disability agenda.
Author: Mugambi M. Paul.

To begin, as a follow up of lasts years global summit held in London.
The ministry of labor and stakeholders have started the process of ensuring the global summit commitments are implemented.
This is evidently seen by the upcoming report by development pathways and agency in UK on matters social protection.
However, taking a snapshot of the Kenyan budgeting processes and procedures this dream might not be realized.
This is because Its just 2 months towards the presentation of budget by the treasury.
Persons with disabilities have not gotten the opportunity to participate and be engaged in the budgeting processes.
As a public scholar I affirm that Kenya government will remain to fail the disability community by not fixing this abnormally.
The Kenyan government can ensure proper disability budgeting procedures are implemented in all its plans, policies and regulations.
The Kenyan government should at list plan for one % of its budget on disability matters.
This will ensure the social protection systems become disability-inclusive.
Through the ministry of labor, they can present a memorandum of understanding to the ministry of treasury and the parliamentary budgeting committee.
This should be executed by both national and county governments.
On the other hand, persons with disabilities need to claim their public spaces.
This will enable enhancement of participation and increase of there voices being hard by policy makers.
This can take place in the local chapters of budgeting review processes.
It’s a proven fact that the bottom to top approach has necessitated lots of changes in the public sector agenda making processes.
For this to be well articulated the disability persons organizations need to up their game.
This is by mobilizing resources towards a budget campaign
Through media and engaging the parliamentary committees.
campaign in the lead-up to the reading Budget to call on the government and opposition to deliver on their bipartisan promise to actualize the disability mainstreaming agenda a reality.
All in all, when disability budgeting is implemented it will ensure Kenya moves out of the current charity model of delivery of services thus realizing the social reformative agenda.
This is well articulated in the 2010 constitution and the UNCRPD
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.

Twelve Crimes of being disabled in Kenya Author: Paul M. Mugambi.

Twelve Crimes of being disabled in Kenya
Author: Paul M. Mugambi.

Twelve Crimes of being disabled in Kenya
Author: Paul M. Mugambi.

1. Only in Kenya where most government documents are written “physically challenged” in reference to persons with disabilities.
2. Only in Kenya both Government and private sector demand for a driving lisence even when they know Blind and Deaf-Blind persons will never drive on the Kenyan roads. Thus, denial of employment opportunity.
3. Only in Kenya we pay for the long and dreary processes of acquiring the disabled card while the national identity card is readily available and its free.
4.
Only in Kenya where government service providers one has to explain his or her disability before service is offered or denied. I wonder if other non-disabled citizens undergo this trauma.
5. Only in Kenya where Kenya revenue Authority demands renewal of tax exemption certificates to the disabled persons as if the permanent disabled persons got a miracle. You wonder why Kenya claims to be an IT herb while the KRA system can’t just update itself.
6. Only in Kenya where the invisible disabled persons are not recognized and lots of explanation is done.
7. Only in Kenya persons with disabilities have to organize themselves to educate service providers of their roles and responsibilities in service delivery to disabled persons.
8. Only in Kenya where most government offices are either inaccessible or located in inaccessible places.
9. Only in Kenya most government websites are in accessible and do not offer alternative formats in documentation.
10. Only in Kenya where most public and private adverts are written “Persons with disabilities are encouraged to apply” but they don’t take any extra measure to ensure disabled persons are brought on board.
11. Only in Kenya where disabled persons pay for the “disabled car sticker” for packing and even the disabled packing is already occupied by the non-disabled individuals.
12. Only in Kenya where disabled artists, musicians, sportspersons beg for government or private sector sponsorship to participate in both local and international events and obligations.

The views expressed here are for the author and do not represent any agency or organization.
Paul Mugambi is a public policy and diversity and inclusion expert.

Economics of disabilities; what we’re not told Kenyan story

July 24th 2018 the UK government, in partnership with Kenya and the International Disability Alliance (IDA), co-hosted the first ever high level global
disability summit in London. The aim of the meeting was to galvanise global efforts to address disability inclusion.
The summit brought together more than 700 delegates from governments, donors, private sector organisations, charities and organisations for persons with
disabilities. Mr Ukur Yattani, the Cabinet Secretary for Labour and Social Protection led the Kenyan team.

Globally, one out of every seven people live with some form of disability, the majority in low and middle-income countries. In these settings, disability
is both a cause and consequence of poverty because people with disabilities often face significant barriers that prevent them from participating fully
in society, including accessing health services and attaining education and employment.

According to the World Health Organisation, about six million Kenyans are persons with disabilities. The Kenya National Survey for Pwds, 2008, says nearly
80 per cent of these six million people live in rural areas where they experience social and economic disadvantages and denial of rights. Their lives are
made more difficult by the way society interprets and reacts to disability. In addition to these barriers, Kenya still lacks a policy that operationalises
laws on disability. The National Disability Policy has remained as a draft since 2006!

But let us look at disability from different frames. Have we thought about the significant contribution in the economy made by people with disability as
consumers, employers, assistive technology developers, mobility aid manufacturers and academics among others? According to Global Economics of Disability,
2016 report, the disability market is the next big consumer segment globally — with an estimated population of 1.3 billion. Disabled persons constitute
an emerging market the size of China and controlling $1 trillion in annual disposable income.

Do people working directly in these industries pay taxes? Does anyone have an idea of the revenue — direct or indirect— collected by government from disability
industries, organisations, import duty charges on assistive devices and other materials used by persons with disabilities? What of the multiplier effect
of the sector; transporters, warehouses, and PWDs themselves who are active spenders and who pay both direct and indirect taxes.

SH40 BILLION

Just look at it this way; six million Kenyans (going by WHO’s estimate) are persons with disabilities and its assumed about two million of them are wheelchair
users. The cheapest outdoor wheelchair fabricated locally is about Sh20,000, translating to a staggering Sh40 billion! Imagine the rest using crutches,
hearing aides, white canes, braille services and costs of hiring personal assistance. Undoubtly, this is a huge market.

The contribution of people with disabilities far outweighs what is allocated to them through affirmative/charity considerations.

President Mwai Kibaki signed The Persons with Disabilities Act, 2003, in what turned out to be the most unprecedented disability legal framework in Kenya.
The Act led to creation of a State agency called the National Council for Persons with Disability. During his second term in office (May 2008), Kenya ratified
the United Nation Convention on the Rights of Persons with Disability.

MEANINGFUL PARTICIPATION

One fact that most people have glossed over is the allocation given to the National Council for Persons with Disabilities, compared to the contribution
made by PWDs to the social, political and economic spheres in the country. But then, in Kenya, studies to ascertain the actual contribution of disability
as a sector have not been conducted.

We must change the narrative of disability for us not to leave out this vibrant community in development and other spheres of life. Disability must be
viewed not as a burden but as a part of diversity, like any other. Disability is not about someone’s impairment but rather about a barrier – environment
and attitudinal – in front of this person to freely and meaningfully participate in the society.
By a Guest writer
HARUN M. HASSAN

17 Easy Ways To Make A Blind AKA mpofu Person’s Day

1. When introducing yourself, use loud, exaggerated speech. Since we’re
blind, it’s safe to assume we’re a little dim, too.

2. Don’t speak directly to us. It’s always best to talk over our heads like
we’re not there at all, especially if you are offering a service. Example:
“What would she like to order?” Be sure to ignore our attempts to answer
for
ourselves.

3. Grab or otherwise manipulate our bodies whenever and wherever you deem
necessary. For example, if you intuitively perceive that we’re going the
wrong way (even if you haven’t asked where that is) just snatch the nearest
limb and lead on, Macduff!

4. If you aren’t in a position to grab us, you can always shout
instructions
in the hope that we’ll know what you’re talking about. If we look baffled,
just keep repeating the instructions in an increasingly frantic tone. We’ll
clue in eventually.

5. Remind us often how grateful we should be that people are willing to
provide accommodations for us. While it’s unlikely that we will ever, ever
forget this for more than five minutes at a time, it’s a good idea to slam
the thought home when we’re not expecting it. It builds character.

6. Stage loud conversations about us while we’re in the room, because we
won’t hear. If we hear, it’s okay, because we won’t understand. If we
understand, it’s okay, because we won’t care.

7. Keep all conversation firmly focused on blindness. If we try to
interject
by discussing our education or interests, just redirect us. We get carried
away trying to be all normal, so it’s helpful to keep us on track!

8. Be sure to describe all the other blind people you’ve ever met, in
extravagant detail. We couldn’t be more fascinated by that blind guy who
skied, and that other blind guy who went to school with you, and that blind
girl you met on the train once-the one with the cute puppy.

9. Make a habit of asking us why we’re “here”. If we’re on the bus, ask us
why we’re out alone. If we’re at work, ask us how we got the job. If we’re
in class, ask us why we’re in university. If we seem offended, ignore us:
deep down inside, we really enjoy presumptuous interrogation!

10. Dispense advice about how we should live our lives; the less you know
us, the more valuable your feedback will be. If you need a good starting
point, you can begin by analyzing our mobility tool of choice (cane or dog)
and emphatically demanding that we switch. We love that.

11. Involve yourself in our love lives, specifying exactly the type of
person we should date and why. If you think we should date a sighted person
because they’ll be able to take care of us, we’ll want to hear all about it.
If you think we should date a blind person because we should “stick to our
own kind” we will be all ears!

12. Give us things-money, coupons, whatever-because you pity us and want to
make our day better. Don’t be phased by any apparent expressions of
confusion. (“Oh, that’s just my gratitude face!”)

13. Stop us on the street and thank whomever we’re with for helping/taking
care of/being so kind to us. It’s not as though we have real friends who
genuinely enjoy our company. No: if we’re out with a sighted person, they
are fulfilling a purely charitable role. They will appreciate your praise,
and we will feel extra extra grateful!

14. Place your hands on us in any public place and pray. If we gently
explain that we don’t want to be prayed for, rest assured that it’s just
the
secular cynicism doing the talking. When our sight is miraculously
restored,
you’ll be the first to know.

15. Make as many potentially dangerous practical jokes as you can think of.
A few good ideas include warning us of imaginary obstacles (“Watch out for
that tree-just kidding!”), concealing our possessions, and encouraging
us to
“find” you while you run gleefully around us in circles. These were a
staple
of primary school, and I treasure many pleasant memories from that era. Do
me a favor, and bring back the nostalgia!

16. Refer to us as “that blind person” even after you know our names.
Blindness is so integral to our identities that our names are really just
decorative, so there’s no need to remember or use them. If we fail to
answer
to “Hey, blind girl/guy!” just keep trying. We’ll learn to love it.

17. Assume that our default status is “Help!” If we reassure you that we’re
okay, thanks, don’t fall for it. Insisting upon rescuing us every time we
cross paths places us into a position of dependence, which is exactly where
we belong.
Article Thanks to our guest writer:
Dan Hicks

Autism Is My Superpower By a Guest writer. Michael R. Whary

Autism Is My Superpower
It does not matter what sixty-six percent of people do in any particular situation.
All that matters is what you do.
John Elder Robison, Look Me in the Eye
My parents were concerned because my speech was not as advanced as other children
at age two and a half and I did strange things like lining up all my toys in rows
throughout the house, spinning around in circles, and throwing tantrums. In addition,
my motors skills such as running and hand strength were delayed. I also had a lot
of trouble with balance.
My neurologist recognized the signs immediately and informed my parents that I was
autistic. My parents asked what my long-term outlook might be and they were told
that I would most likely never be independent. They were told that because of my
lack of motor skills I probably would never be able to ride a bike, motorcycle, or
drive an automobile. This news made my parents very sad as they had lost my older
brother in childbirth two years earlier.
My parents immediately enrolled me in speech and occupational therapy classes. I
don’t remember much about it, but they said I went to classes five days a week for
four years. Early on my parents believed that if they could get me enough training
that somehow I would
outgrow or no longer be autistic. As I went to classes later I noticed that almost
all of the parents believed the same thing. It wasn’t just about helping their children
fit into society. It was also about trying to hide the autism from the world. A lot
of the kids sometimes felt like Rudolph in the movie
Rudolph the Red-Nosed Reindeer
 when his dad tried to hide his red nose.
While my autism caused me to develop slower than other children in some areas it
also gave me some abilities that others didn’t have. I learned my alphabet at age
one and I could read at a fourth grade level by eighteen months. In preschool the
teacher always read a story before naptime to the class, but was so amazed at how
well I could read that I took over and was the official storyteller for my preschool.
It was easy for me to read the words on the page fluently, but I had difficulty having
a simple conversation.
My dad had been a star athlete in high school and college, but because of my delayed
motor skills I was not able to play organized sports early on. I really wanted to
follow in his footsteps because he enjoyed football so much, but it just wasn’t possible.
Instead I joined the Cub Scouts. It was so much fun, and at each meeting I learned
a new life skill, from cooking to tying knots to hiking. It was also the first time
that I spent a lot of time with neurotypical children. This was important because
I would copy how the other scouts acted and that’s how I learned to interact and
take part in organized events. All of the physical activity improved my motor skills
too.
I earned the Arrow of Light Award and the Cub Scout Super Achiever Award because
I had earned every pin that the Cub Scouts offered.
Since I had such a wonderful time in Cub Scouts I bridged over to Boy Scouts. It
was not an easy transition as Boy Scouts are “boy run.” This means that I was no
longer taking classes from patient adults, but being given orders from older scouts
who were in high school. It was difficult because I could not process what they wanted
me to do as quickly as regular developing children. I was sometimes overlooked for
leadership positions and not given a chance. I did come home very upset sometimes,
but I always remember my father saying, “If
it’s easy everyone would do it. It’s the hard that makes it great.” He always knew
what to say to motivate me. I doubled my efforts and slowly I was able to do the
jobs that were needed and in turn I was given positions of responsibility.
I believe that scouting is very good for autistic children because they learn hands-on
life skills through merit badges. An Eagle Scout must have twelve Eagle required
badges and twenty-one total merit badges to even be considered. The Eagle requirements
are very difficult. Everything from First Aid, Citizenship, Accounting, Family Planning,
and Physical Fitness are learned along the Eagle Trail. I currently have all of the
Eagle required badges and a total of forty-five merit badges. I enjoy learning new
things from the experts in the field who teach the merit badges. My favorite was
the Aviation merit badge. We went to an actual flight school and learned all about
navigation, instruments, weather conditions, and the different planes. We then got
to ride in a small plane and I even got to fly it for a little bit. It was amazing!
When I was thinking about an Eagle Scout project there were so many options to consider.
The churches all needed help with their facilities, and all of the fraternal organizations
like the Elk, Moose, and Veterans clubs had things I could have helped with, but
none of the options seemed quite right.
Then a little over a year ago I came down with a terrible fever and my mother took
me to the emergency room. The EMT who was there took my information and when they
were told I was autistic the doctor asked him to stay in case they needed to hold
me down while I got shots. I guess the doctor had experience with other children
on the spectrum. I calmly allowed them to give me the shots and the EMT and doctor
were both shocked when I didn’t put up a fight.
The EMT stayed with me and asked a lot of questions about being autistic. Then he
followed us out into the parking lot and explained why he was asking all the questions.
It seemed that his nephew had just been diagnosed with autism and he and his sister
were very upset. With a tear in his eye he told us that I was such a well-mannered
young man and in control of my surroundings, which gave him hope for his nephew’s
future. He said that I inspired him and he was so
happy that he met me.
As I thought about what he had said it came to me that maybe I could help other parents.
I could make them understand that autism is not something to be ashamed of and that
if their child is on the mid to higher end of the spectrum anything is possible.
I want parents to embrace their children for who they are and not carry the guilt
that they did something wrong. According to the CDC, one in forty-two boys in the
USA is somewhere on the autism spectrum. If I could inspire new parents who are so
devastated by the news then maybe I could make the world a better place.
Currently, I am a high school sophomore and enjoy playing the piano and the trumpet
in our marching band and jazz band. I’m also in ROTC and was honored by being inducted
into the Kitty Hawk Honor Society for members with good grades. I take advanced classes
and I am on track to graduate with honors. I currently have a 3.75 GPA. I threw shot
put and discus for my school’s track team and also ran the 100-meter dash. I will
be attending a university upon graduation. I am hoping to get accepted into the Wharton
Business School at Penn, or another Ivy League school, but if not then possibly Baldwin
Wallace University in Berea, Ohio. After graduation I would like to own my own business,
possibly in computers.
How would I define my autism? I was never considered an “Aspie” because of my diagnosis.
I use the word “autistic” because it is a word most people understand, but in the
end it is just a word. To be honest my answer may sound strange, but I am not defined
by my autism. I am Michael Whary. I cannot be defined by any set “definition.” What
I have learned is that no matter who you are or what disabilities you have to overcome
in this life if you want something badly enough anything is possible! God gave everyone
a special gift, a “superpower” if you will. Autism is mine. It has taught me to overcome
my physical, mental, and social difficulties.
Every year we celebrate my birthday with a cake and candles as most people do. When
I blow out the candles and make a wish it’s always the same, “I wish that all of
the suffering in the world would end and in so doing there would be peace on Earth.”
I thank the powers that be for giving me this life. I thank my parents for their
guidance, patience, love, and understanding. And I wish nothing but good things for
others on the autism spectrum.