Will it be the “White smoke” from the 10 billion Cash transfer to the disabled Kenyans? Author Mugambi Paul and DR Siyat.

Over the last 3 weeks the Kenyan government has been excoriated on the measure it would avail to the poor due to the hard-economic times and the coming in of Covid-2019 pandemic. Talking of poverty,

several studies show disabled Kenyans are the largest minority who face this tragedy.

Kenyans with disabilities are disproportionately affected by the current situation, as we are by all-natural disasters and major crises. It is vital that our

voices are part of developing solutions, innovating, problem solving.

as 2 experts we are deeply concerned about the impact of the COVID-19 pandemic on disabled Kenyans, chronic ill persons and the elderly. Bearing in mind that Kenyans with disabilities are among the Kenya’s most marginalized and stigmatized even under normal circumstances.

This requires us all to act, interact and communicate in different ways than we are used to. However, the social inequalities

degeneration COVID19’s impact on Kenyans with disabilities are not new. The risk in the response to the current crisis is that disabled Kenyans

will be left behind once again. The good news is that we already know what works. Fundamentally, we need social justice, equality of opportunities and

decent work.

According the UN Special Rapporteur on the rights of persons with disabilities “The pandemic is an unprecedented public health,

social and economic emergency that requires swift and effective action by Kenyan public and private sectors, and the society at large.

We know that COVID-19 is more serious for those with underlying health conditions and particularly those who are immunocompromised. What does this outbreak mean for the Kenyan Disability community?

Both national and county Governments should ensure they take

all necessary measures to ensure the protection and safety of disabled persons, aged and persons with chronic illnesses] Ilo 2020 WHO 2020 UN 2020 HI 2020 [.

 Legal framework:

The United Nations Convention on the Rights of Persons with Disabilities states that people with disability have the right to health without discrimination

on the basis of disability, including access to population-based public health programmes (Article 25) and that governments also have a duty to take all

necessary measures to ensure the protection and safety of persons with disabilities in situations of risk (Article 11).

 

Facts to consider:

Providentially, even in non-pandemic circumstances, people with disability are more likely than the general population to have health issues, compromised immunity, increased

risk of morbidity, comorbidities and are more likely to die from preventable causes] Whiteford 2011 DFID 2013, HI 2015un 2012].

According to several studies Some disabled Kenyans will be unable to maintain social distancing

practices because they rely on support workers for vital daily personal care, such as eating, drinking, walking, mobility toileting and dressing.

in addition, disabled Kenyans often rely on family, friends and care givers to provide essential services. During the Corona pandemic, these people may not be able

to provide their usual support.   

Also, in different Kenyan social media platforms disabled Kenyans like many in the broader community, are expressing anxiety about the COVID-19 pandemic.

Of course, this nervousness is exacerbated by the feeling that they are being left behind or ignored by Kenyan government, private sector and community Corona responses.

Background of social assistance programmes:

Current social assistance programmes include the Older Persons Cash Transfer Programme; the Orphaned and Vulnerable Children Cash Transfer Programme; the Persons with Severe Disabilities Cash Transfer Programme; the Hunger Safety Net Programme; and the Urban Food Subsidy Programme. The effective implementation of these programmes is constrained by challenges such as how to refine inclusion and exclusion criteria and how to determine appropriate transfer amounts.

 

Corona Rescue plan:

We acknowledge the efforts made by Kenyan government by the issuance of the additional 10 billion Kenyan shillings to the ministry of social protection for the vulnerable population in form of cash transfer.

Definitely in the coming days disabled Kenyans expect a white smoke at the NSSF building which houses the ministry of social protection in Kenya.

Most disabled Kenyans are highly expectant of the policy regulations and guidelines on the 10 billion promise by the executive order by the president of Kenya.

Unequivocally, with proper feedback mechanisms and regular consultation disabled Kenyans will be able to know if cash transfer policy programmed will meet their policy needs.

In other words, disabled Kenyans will comprehend how  the 10 billion cash transfer injection to the inua jamii will target the current registered severe disabled persons, elderly, orphans and vulnerable children or it will be meant  for targeting additional new  vulnerable individuals due to the effects of  of Corona 2019. Arguably, much of the debate about cash transfer among disabled Kenyans programmes revolves around the issues of targeting. This is because with the current strategy only severe disabled persons are targeted and considered.

https://labour.go.ke/wp-content/uploads/2019/09/MLSP-Strategic-Plan-2018-2022_17.09.2019.pdf

 

 

This will be a great test as different stakeholders and policy makers in the social protection department scratch their heads on the right footing on which to take in the implementation policy framework.

Will the policy makers ensure inclusion of other disabled Kenyans since they are also mostly vulnerable?

We believe the cash transfer will avert the short-term impact of the Corona crisis and attenuate its long-term negative effects on human development outcomes.

Nonetheless, it is one thing to say that Kenya with Inua jamii -like programmes are sheltering the more vulnerable from the worst consequences of the Corona crisis, and another to recommend that Inua jamii programmes be designed and implemented during a crisis Lehmann, C. (2012. Several steps are involved, political will is required, and funds must be committed. The ministry of social protection has a pivotal role to ensure coordination, operation and more resources even from development partners.

We observe, the Cash transfer programme will be effective if it will be implemented under a sustainable social protection strategy. Such a strategy should enable better coordination among programmes, between the national and county government ,and among the different international players in order to avoid duplication of effort and waste of resources.

For instance, Mombasa have already started a SMS service asking those who aren’t in the Cash transfer to register “widows, orphans, persons with disabilities, and persons with pre-existing conditions into the emergency plan

Has Mombasa county link up with the national cash transfer programme?

Data base and registration for the cash transfer:

Due to social distance directive as a preventive measure of spread of Corona. Will the ministry of social protection work on vigorous registration, collection of data and automation of all new persons with disabilities, orphans and the elderly?

Or will the ministry of social protection synchronize the current departments databases of children services, NCPWD and   department of social development under the strategic guidance of the National Social Protection Secretariat programme?

This will enable to identify the unmet needs through geographic, demographic and welfare status.

Furthermore, quite a lot of reports indicate the current enhanced single registry adapted through the social assistance programme has improved efficiency and reduction of bottlenecks experienced when the ministry of social protection had 3 separate registries [development pathways 2020[.

Through this policy integration the ministry has    a clear database and actualize its programmes effectively Bobonis, G. and F. Finan (2019).

Such database can enable the ministry to build an array of indicators on disabled persons, orphans and vulnerable children, elderly socioeconomic conditions. Therefore, this is a powerful tool for mapping the different needs. and they could be used to guide other policies. Like the current need of food, water, soap and hand sanitizers.  Moreover, Registries enhance monitoring of the poorest families’ access to social services and infrastructure in a more calibrated way than household surveys. The latter, though they are nationally representative, are often based on small samples that do not facilitate sound analysis for local-level interventions. This knowledge base allows rapid crisis response when programmes may need to expand in order to cover a larger proportion of those that fall into poverty.

Key considerations for the cash transfer:

We consider that the ministry of social protection will cast tis net wider in order to seek input from people with disability, leading disability experts, organizations of persons with disabilities and advocates

in developing their dedicated cash transfer strategy, and in particular, in its COVID-19 Coordination

secondly, Disabled Kenyans with disability, particularly slum dwellers and rural inhabitants, may be disproportionately affected by the pandemic due to increased risk of

infection, higher number of co‑morbidities and because of underlying health conditions such as chronic diseases and respiratory illnesses. Numerically speaking, most disabled persons in Kenya live in slum areas and rural areas without basic amenities. Some live-in solitude while others have been housed.

Most of the disabled population and other low-income earners live hand to mouth. This is to say, COVID-19 will spread rapidly and is especially dangerous to people living in close proximity to others in closed settings [WHO 2020].

Worse still, Thousands of adults and children

with disabilities in Kenya live in segregated and often overcrowded residential settings where they can face neglect, abuse, gender-based violence, and inadequate health care and lack human Rights.

Of particular concern are women and girls with disabilities.

This affirms that disable Kenyans are survivors in this country [KNHR 2015]

 

Thirdly disabled Kenyans continue to face barriers in accessing health care, including prevention, testing, screening and treatment for COVID-19. Fourthly, disabled Kenyans will be   unable to access regular and vital medications and therapeutic services due to low supplies and restrictions in access. Fifthly, disabled Kenyans may not have access to mental health services at a time when the need for accessible and responsive mental health is heightened. Sixthly,

disabled Kenyans will be unable to easily access essential health supplies to keep themselves safe, such as personal protective equipment, hand sanitiser and sterilising

Equipment.

lastly are worried that discrimination or unconscious bias could impact their access to critical and lifesaving health care during this crisis.

to we hope the measures taken will ensure the needs of all Kenyans with disabilities are included in

the response to the pandemic.

As experts we appreciate and acknowledges the challenges that national and county governments and private sector are facing during this pandemic.

 

We call upon all national and county governments to ensure that, in their responses, they include dedicated disability strategies to protect and support disabled Kenyans.

Long term solutions:

We opine that Kenya is still a developing nation We therefore suggest inclusion of one our BBI recommendations which we presented at the task force in February 7th, 2020 as a long-term solution.

  1. Ministry of social protection to establish a disability employment service department under the national employment authority since the authority is in charge of all Kenyans in need of employment. so that they are able to execute employment needs of persons with disabilities Through this agency real disability mainstreaming will be achieved. If this recommendation will be adapted, we believe rapid change will take place. We opine disabled persons won’t need to be in cash transfer for long since cash transfers are not meant for long term programming.
  2. We hope the ministry of social protection can take advantage of the Corona crises to execute of reasonable accommodation plans in all its organs and offer vital lessons to both public and private sector.

All in all, our policymakers will have to come up with a homegrown resolution for ensuring disabled Kenyans rights are protected. And this will not be easy.

 

 

 

The views expressed here are for the authors and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Dr Siyat is a  independent  consultant and systemic advocacy service provider.

 

Why Social Isolation is a Greek term to the disabled Kenyans: Author Mugambi Paul

Several studies indicate that in an emergency person who are disabled, aged and who have chronic illnesses are mostly left behind and most at risk [Help age 2012, HI 2019, UN 2020, WHO 2020].

This is because persons without disabilities will be fighting and running away for their fate. As evidenced many Kenyans have started to go back to the rural places.

 

As a public policy scholar and with lived experience of being disabled and advocate for inclusive approaches in both humanitarian and development spheres.

I am concerned on the current and feature effects of Corona on lives of disabled Kenyans and chronically ill people who are currently falling into cracks.

In other words, they are

being hit and particularly hard by the virus outbreak and access to support services seem to be becoming scarce and finally

will be cut as the crisis worsens.

Evidently, in Nairobi and other major towns Panic buying of cereals, groceries, toilet papers, hand sanitizers and other protective equipment, which also disabled and chronic ill people need have suddenly doubled the prices and also have started to be scarce.

I  observe,  Kenyans without disabilities  and who can stockpile are the ones who are probably less at risk because they were able to rush out to the shops, whereas a lot of disabled Kenyans like  me,  elderly, e and persons with   chronic illnesses just can’t get these commodities.

This is coupled with high poverty levels among the disabled Kenyans.

On the other hand, the Cabinet secretary of Health gave a directive prioritizing the elderly and persons with disabilities in the queuing system in the supermarket [daily nation Friday March 2020[

This pronouncement shows that disabled persons have started to be brought in in Corona conversations though much needs to be done in order not to live us behind. If this directive will be followed, we are yet to see.

 

Could the Kenyan supermarket borrow a leaf from Tesco in the United Kingdom or supermarkets in Australia?

In both nations they have reasonable accommodation for ensuring disabled persons, elderly and persons with chronic illnesses are able to shop comfortable and provision of delivery for those with large shopping.

The Corona virus has equalized us all and it has led to the realization that what works for all works for disabled too] UN 2006 UNDP 2017 ILO 2019 Whiteford 2019].

 

Dilemma of social distance: you

 

Social distancing is not an option for disabled Kenyans. The Kenyan government and more so the ministry of health and disability stakeholders need to go back to the drawing board in order to address the needs and priorities of disabled Kenyans so that we can have inclusive corona interventions.

Of course, many Kenyans with out disabilities take things for granted. This is because most will never fit in to our shoes till when they join our disability club.

For instance, Kenyans    with a disability, who rely on care givers and support workers for daily living and sighted guide services including washing and dressing.

I am talking about people with spinal cord injuries, muscular dystrophy, cerebral palsy, sometimes people with intellectual disability, psychosocial disability, the elderly, Down syndrome,

that might need assistance with showering, with going to the toilet.

Moreover, social stigma in Kenya is still ripe,

Shoppers who ar blind and vision impaired will not get sighted guided assistance in the shopping spree due to the continued pronouncement by Kenyan government that we should be one metre point five away and avoid handshakes.

in case the president issues an executive order of total or partial lock down, I observe the disabled will be worst hit even withing there local surroundings.

Did you know most of the local shopping areas are highly squeezed and have low ventilation?

How will my fellow wheelchair users avoid assistance not being close while many of the wheelchairs in Kenya are manual?

Furthermore, some disabled creep on the floors!

How will they shopwith out contacts?

Most Kenyan roads are inaccessible how will the Blind and vision impaired avoid falling in to ditches and trenches?

Our independence and self estieem by the use of assistive divides is being questioned!

How can this non handshake apply to mobility impaired persons like Blind, Crutch users, wheelchair users?

Does the Cabinet secretary of Health and policy makers know our devices are metallic?

What if the care giver is infected and need to self-isolate?

This will make Disabled persons become at higher risk,

Additionally, the actual time and effort of finding somebody else, finding the right person that’s going to fit, as well

as then training someone up from scratch again, is a huge effort for people with very high support needs who are going to be in that really high-risk category. The ministry of health needs to train its front-line staff on basic disability inclusion tips

 

Why are the disability sector and stakeholders silent as the lack of disability inclusive Corona continues?

Are they contributing to uninterrupted discrimination and injustice to the larger wanjikus with disabilities?

I suppose they are hiding and later after the Corona era is over, they will claim we were left behind!

The Kenyan media should rise to the occasion and speak on behalf of the disabled Kenyans and persons with chronic illnesses.

Contribution by disability sector:

The disability sector, human right bodies and other policy stakeholders have the role to monitor and report the government organs on the said implementation.

This is actually time for disabled experts, disabled persons organizations, human right bodies state organs practising disability mainstreaming should contribute to more inclusive Corona interventions.

What if the Kenyan disabled stakeholders changed tact and start to advocate for now the silent revolution of reasonable accommodation being implemented?

To put it differently why doesn’t the disability sector join the table instead of awaiting to be in the menu?

I opine, Kenya has great public policies on reasonable accommodation now is the right time to,

push for implementation.

let me illustrate

What if the disability sector and stakeholders pushed the national construction authority now to publish and implement real accessibility standards of buildings?

Most likely we shall have makeshift hospitals. Will they be accessible?

Why don’t the disability stakeholders within their budgets adjust and contribute to the ministry of health on inclusive approaches?

For instance, developing Kenyan sign language clip on how to prevent Corona virus then distribute to the mainstream media and social platforms?

Why don’t the disability stakeholders produce material into braille and distribute all over the country through the free matter for the blind service offered by poster corporation as entrenched in the persons with disabilities act 2003?

Does the disability sector know the time is now for implementing the Marrakesh treaty?

Could the global commitment made by Kenya government, private sector and disability stakeholders be revisited in the area of innovation and make non-metallic assistive devices?

 

All in all, this coronavirus comes with a silver lining. At least, it will pep up people to take normal civic sense to a higher status. So that besides coronavirus

we actually end up also fighting other issues like discrimination faced by Kenyans with this will lead to breaking some if not all the barriers that disabled Kenyans face.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

 

Why the DISABLED Kenyans are pregnant in the Corona era: Author Mugambi Paul

 

Generally speaking, The COVID-19 pandemic occurring in Kenya should be of utmost concern to every citizen. This is because we need to work together around the country in solidarity.

Ofcourse, the risen times are extra-ordinary. This is the times that will redefine Kenyan human spirit.

 Are we going to ensure disability-inclusive, accessible disaster-response?

On my own behalf and the disabled Kenyans

 We acknowledge the great leadership displayed by cabinet secretary Mutahi Kagwe of ministry of health under this difficult circumstance. Moreover, the CS is communicating in to minds and hearts of all citizens. Could this be adapted as the new norm to Kenyan organization culture of governance?

 

On the other hand, the Corona virus seems to have equalized all of us and the realization of the economic inequalities that exist among low income Kenyans

Amongst these is the largest minority “Kenyans with disabilities” of who make up more than 15 % of the population [WHO 2011]. we need to examine corona virus by waring the disability lenses.

On March 20th, 2020 during the daily updates a more disability inclusive approach was adapted.

This affirms that the CS is a great communicator.

though much needs to be done to realize disability Inclusive approaches.

As a  public policy scholar and a  person with lived experience of being blind I  opine that if what the CS health interventions were to be made long term policy execution the Kenyan  government will  overcome many challenges of including persons with disabilities and resolve the  unemployed citizens  mystery.

In other words, our policies must not discriminate. Disabled and low-income people must be included in every policy, every fund, every new law.

This is the real meaning of disability mainstreaming.

 

Background:

 

Kenyans with disabilities’ needs and concerns should be adequately addressed in existing COVID-19 Kenyan relief packages. 

I affirm that Disability impacts every community and occurs at every stage of life. In addition to impacting Kenyans with disabilities more disparately, the virus is also likely to create disability while people recover [WHO 2020].

Fact to consider:

I believe The Corona virus has awaken the public consciousness of what works for the disabled Kenyans can also work for all

Challenges faced by disabled Kenyans:

Unfortunately. Clean water and sanitation facilities aren’t always available or accessible, particularly for Kenyans with

Disabilities and the low-income earners [UNICEF 2017[.

Are the newly 500 water points in Nairobi accessible to all disabled Kenyans?

 Life-saving information often doesn’t reach those who are deaf, blind, using wheelchairs, illiterate, Deafblind or living in remote areas.

I uphold this global health emergency, the ability to read timely information in an accessible format is even more critical than usual. I   believe the more people access and act upon the information that Ministry of health leaders and public officials are

providing, the better we Kenyans can all cope with the rapidly evolving situation.

 

 

 Furthermore, the corona virus puts people with chronic diseases, Kenyans with disabilities, and the elderly most at risk. could the ministry of health issue a statement regarding rationing of care to ensure that when rationing treatment begins, decisions about how medical treatment should be allocated are made without discriminating based on disability?

 

 Worse still, the Kenyan health system is

not prepared. In China it is reported already some disabled persons have died due to starvation and nonattendance.

Information campaigns and medical care must include the needs of Kenyans with disabilities. It is pivotal that Kenyan state as a duty bearer identify and monitor people with

disabilities in their communities. Frontline staff need training on caring for people with disabilities in the crisis.  The ministry of health should also ensure protection of the front-line health workers by provision of the equipment which they need to execute their work safely

masks, gowns, shields, gloves, suits, and other equipment. Therefore, preventing further spreading of COVID-19.

I urge the Kenyan public policy makers and stakeholders to think boldly and broadly in their response to this pandemic and waste no time saving lives and have actionable long-term policies and regulations.

 

Different ILO studies have affirmed with proper reasonable accommodation execution productivity is high and brings diversity. For instance, If the ministry of public service, ministry of labour, federation of Kenya employers, employment authority, ministry of transport, disability experts can work together via video link can craft a reasonable accommodation regulation.

This is to say with flexibility and

creative solutions are more important than ever in this Corona era.

With this regulation, the president with his executive power ascent can save Kenya a great deal.

several studies and additional public health experts have stated that disabled Kenyans are more vulnerable to COVID-19. Beyond the specific conditions or diagnoses that may raise susceptibility to the virus itself, Kenyans with disabilities are particularly vulnerable to the broader social, civil, and economic impacts of the coronavirus pandemic.

Thus life in Kenya will never be the same again.

will this be a turning point for Kenyan Parliament and senate to ensure a inclusive social protection cover for the marginalized?

  Outlined below are a series of expectations that could benefit Kenya in the long run:

  1. Prioritize and Expand Home delivery services. This can be done through acceleration of M-post services since most Kenyans have Mobile phones additionally more private delivery companies can also be incorporated with a particular county. This would reduce the social contacts since most Kenyans go seeking for goods outside there vicinities.
  2. 24 shift working economy: this can be accelerated by both public and private employers thus even reduction of man hour spent on traffic. Moreover, through shift working economy it would increase work productivity. Some best practises can be borrowed from the private sector. Could this be an opportunity for implementing 2030 vision? Additionally, if adopted in Nairobi, Kisumu, Meru and Mombasa can say by bye to the traffic menace. Could the new Nairobi Metropolitan team adapt this?
  3.  

Prioritize access of digitalized documentation: if this was to be adopted most government documents would be gotten easily. For instance, one of the best recently successful is acquiring renewal of tax exemption among the Kenyans with disabilities although now with the advent of Corona Kenya revenue authority and NCPWD needs now more than ever to decentralize the service. This would actually reduce the transport expenses incurred by Kenyans and also save working hours.

  1. Cash transfer uptake: As the coronavirus crisis has caused a significant economic downturn, I believe that it is essential for ministry o of treasury  to authorize an increase in cash transfer programme to the ministry  of social protection in order to reduce the economic shocks among persons with disabilities,  the seniors of Kenyans   and their care givers. Who are already vulnerable and not covered with the current cash transfer programme.

This move will enable government of Kenya to reduce vulnerability levels.

5 food access:

Regular access to healthy food is key to maintaining strong immune systems. I   encourage the Kenyan government to expand access to food distribution during this period especially to chronic ill persons, the low-income earners, disabled Kenyans, the slum areas and vulnerable populations.

Regrettably, many Kenyan families even before corona era were living under distress for lack of one meal a day.

 Sadly, many Kenyans ability to keep and maintain employment will be impacted by both the business and transit closures.

If short term measures are not taken this might lead to civil strife and increase of psychosocial disabilities among Kenyans.

6.Access to transport: the Kenyan government can support the public transport sector by having reduction of oil prices thus preventing Kenyans from paying extra charges.

Additionally, the government owned busses offer the services to support the private owned public transport services with the new half full caring capacity policy implementation. Where are the NYS busses?

 I observe there has been increased discipline in the Matatu industry by the reduction of congestion by the ministry of Health directive.

Environmentally speaking, drastic air pollution has reduced.

 

How I wish it was a daily Norm in the public transport.

Could the government offer tax wavers for public transport to acquire disability inclusive buses?

 

7. Implementation of accessibility standards.

The national construction authority and disability stakeholders should rally behind and ensure when makeshift hospitals,

isolation facilities and construction of new hospitals are fully accessible and equipped with accessible beds.

Therefore, Duty bearers should ensure disability civil rights protections are fully protected since rights   are not negotiable. I believe time is ripe to enforce and implement article 27, 54 of the constitution and persons with disability act 2003 for protecting rights of disabled Kenyans.

  1. inclusive economic stimulus: Kenyans with disabilities must be included in the economic relief proposals now under consideration by the private sector and Kenyan government. Given that COVID-19 poses unique risks for Kenyans with disabilities and other low-income earners that may make it more difficult for those who are not in any form of employment. This will enable people with disabilities and low-income earners to be able to survive during the current crisis. The economic stimulus should be easily and equitably available for all. Of particular concern are men, women, girls and boys with disabilities.
  2. All of these recommendations are critical to addressing the spread of COVID-19 and addressing our nation’s public health more broadly and ensuring we meet the SDGS by not living any one behind.

As the Rev. Dr. Martin Luther King said, “We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.” The fragile state of this “network of mutuality” has become all too apparent during the coronavirus outbreak. Though we may be vulnerable, we are not dispensable. In fact, disabled Kenyans have critical experience to share in adapting to challenging and constantly changing situations affecting our health, employment, education, housing, and families–experience that all fellow Kenyans will need in the days and weeks ahead. We are grateful for the urgency with which the Ministry of Health is moving to make sure that the Kenyan people never feel the worst of this pandemic, and am seeking  only to protect Kenyan disability  community from the unintended but all too foreseeable impacts of discrimination.

especially during all phases of disaster preparation, response, recovery, and mitigation.

 

 

The views expressed here are for the author and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert

the catastrophe of being Blind and Disabled in the Corona era “Lessons for Policy makers!” Author Mugambi Paul.

Kenyans living with disability are a vulnerable group; a larger proportion are older, and with underlying health conditions. Almost half of all people with disability
are aged 65 and above. And only 24% of adults with disability experience very good or excellent health, compared with 65% of without disability [world report 2011].
Apparently in Kenya, Disability is generally very misunderstood and very unacknowledged, even though 15 % of disabled Kenyans make up the population.
The world is paying close attention to the outbreak of novel coronavirus, following its emergence in December 2019 in Wuhan, China but the voice of disabled Kenyans is still inadequate.
This is because of lack of political influence, inadequate social services and lack of opportunities to adapt.
This indicates The rest of 85 % of Kenya’s population is engaged.
Over the last six years, the health sector in Kenya has exhibited significant developments, including the introduction of the Linda Mama (free maternity) initiative, the Beyond Zero campaign, efforts to revamp the National Hospital Insurance Fund (NHIF), as well as a multi-million dollar Medical Equipment Leasing scheme aimed at bringing advanced medical equipment closer to citizens across the 47 counties and in key referral facilities.
The inclusion of health in the president’s legacy priorities (Big Four Agenda) underlined this stated commitment to improving healthcare.
This obviously follows the Constitutional requirement, Kenya Health Act 2014 and Kenya Health Policy 2014-30. In addition, Kenya has ascribed to the Sustainable Development Goals (SDGs), including SDG No 3, that commits governments to provide quality healthcare for all.
Are these Kenyan Health regulation disability inclusive?
Data evidence:
According to latest data over 132,000 cases of Coronavirus disease (COVID-19) have been reported and 4,900 people have died. The virus has reached 123 countries [WHO 2020[.
How does the virus spread?

Epidemiological evidence shows that 2019 nCoV can be transmitted from one individual to another. During previous outbreaks due to other coronaviruses, including Middle East respiratory syndrome coronavirus (MERS CoV) and the Severe Acute Respiratory Syndrome coronavirus (SARS CoV), human to human transmission most commonly occurred through droplets, personal contact, and contaminated objects (fomites). The modes of transmission of 2019 nCoV are likely to be similar.
The precise zoonotic (animal) origin of the 2019 nCoV is still uncertain. The virus has been identified in environmental samples from a live animal market in Wuhan, and some human cases have been epidemiologically linked to this market. Other coronavirus, such as SARS and MERS, are also zoonotic, and can be transmitted from animals (civet cats and dromedary camels, respectively) to humans.
On the other hand, With the outbreak of a novel coronavirus declared a pandemic by the World Health Organisation, people worldwide are working to address it.
According to the WHO Director-General Tedros Adhanom Ghebreyesus said in a terse statement that this is the first time the world is battling a pandemic against a coronavirus disease.
This has seen nations executing travel bans to sport shutdowns. Meanwhile other countries like Italy, Denmark, Estonia, Latvia and rwanda have locked out their countries.
coronavirus is changing life as we know it. It’s tough to know who to trust – that’s why it’s vital to receive facts.
Disabled Kenyans are at higher risk due to the multifaceted related factors in addition of having a disability. WHO is warning people across the world to avoid contact?
But populations in less developed countries like Kenya are wondering how that is possible when they still need to go to search for food, work, purchase items, go to church or mosque or connect with family and friends.
Key factors:
Rise of stigma and discrimination.
Already in existence it will be Upsurge by the lack of shaking hands as announced by the ministry of health.
Of course, Many Blind and disabled persons require support when crossing the busy Thika superhighway or the Westland routes.
For instance, Crutch and white cane users tend to touch metal rails, touching escalator handrails, using traffic light buttons, reaching for train door opening buttons and holding safely
on to handrails on public buses and Matatus while crossing, some may require to be held while crossing.
how can we avoid handshake?
I observe many disabled Kenyans are anxious. This is because we can control what we touch, but we can’t control what
other people have touched.
Will the ministries of health or ministry of transport provide qualified volunteers?
Or will the ministry of health or transport provide protective products like hand sanitizers to the public transport providers?
I observe, With the Corona in place discrimination and stigma will rise in totality since citizens with out disabilities will be having social distance thus disabled Kenyans might stop seeking services or refuse to travel.
Coupled with poverty levels many disabled Kenyans will not afford the buying of the required protective gears like hand sanitizers.

Second factor is Isolation:
Several studies show disabled persons have lived in isolation for long and this will be a lesson for persons without disabilities.
majority disabled Kenyans are at increased risk of serious or fatal complications from COVID-19 (coronavirus). In an active community outbreak, the
safest option may be to self-isolate at home, perhaps for weeks or longer. In order to prepare for this possibility, I believe its high time the Kenyan ministry of health recommends
that people at high risk stock up on necessities, including maintenance prescription medication.
Worst still, many disabled Kenyans can’t take this advice because m95 % of the disabled do not have insurance.
This is a great chance of disability stakeholders to network with the national hospital insurance fund to probably register all disabled persons visiting the health service providers.
Moreover, the lack of insurance as a social protection measure has left many disabled Kenyans to be more vulnerable.
Solution for NHIF:
I would suggest NHIF recognizes and automates its system to include the disability card issued by NCPWD.
Absolutely this would increase the uptake of insurance among disabled Kenyans.
Will the Kenyan legislature enact an insurance regulation of eliminating the wait time for employment insurance payments?
Third factor is Logistics:
Unfortunately, accessing the pharmacy can be risky for some disabled Kenyans and people with chronic illnesses and even pregnant women.
. Some people with disabilities may also face logistical challenges in getting to the pharmacy if support services become disrupted
due to sudden rise of isolations and being left behind.

Moreover, the Kenyan pharmacy are yet to embrace the mailing services. This could have been a solution instead of putting all at risk.
Will the delivery companies in Kenya grab the opportunity?
The ministry of health has announced measures of
Of ensuring localized outbreaks and social distancing measures are observed.
Absolutely, in some countries already there is massive disruption of supply chains. What can Kenyans with disabilities learn?
Disabled Kenyans and persons with chronic illnesses can’t stake their lives on the assumption that the availability of medications will remain stable in the coming weeks and
months. They need to be able to stock up now.

I opine that Disrupting treatment always endangers patients, but even more so in a pandemic.
The need for inpatient treatment will likely exceed capacity in many communities. this is because Kenya and other developing countries we still have weak health systems and inadequate health infrastructure. COVID-19 is expected to heavily tax the resources of the Kenyan health care system.
Will Kenya now revisit the Abuja declaration on Health Budgeting?
Further Than, outpatient clinics are likely to have a high number of patients
seeking treatment for COVID-19 symptoms, making avoidable visits risky for those more vulnerable to complications. Additionally, patients whose chronic
conditions are destabilized are in danger of becoming more severely ill if they are infected with COVID-19.
Water access:
In Kenya water access is a major challenge for all. Will the Kenya government break the cartels in the water industry to ensure water is readily available?
In Nairobi, Mombasa, Kisumu and other major towns its proven fact that many households go for several months without accessing running taps and forced to buy. According to UNICEF 40 per cent of the world’s population, or 3 billion people, do not have a handwashing facility with water and soap at home. Nearly three quarters of
the people in least developed countries lack basic handwashing facilities at home. Further, 47 per cent of schools lacked a handwashing facility with water and soap affecting 900 million school-age children. Over one third of schools worldwide
and half of schools in the least developed countries like Kenya have no place for children to wash their hands at all.
Forth factor nonvisual access:
Kenyans who are Blind or visually impaired do not have equal access to quantitative information including charts, graphs, and maps. For example, many of
us simply cannot perceive the data visualizations and dashboards that are regularly published by mainstream news organizations. As a result, we often have
limited or non-existent access to critical data, including information we aneed to make informed decisions pertaining to our work, finances and health. As
charts depicting the spread of Coronavirus and modelling how to flatten the curve are seen and discussed worldwide with Blind and visually impaired people
largely excluded from the conversation, we are starkly reminded that nonvisual access to data is vital to our equality and well-being.
The charts and graphics popularly known as “data visualizations” can – and should – be represented in formats that Blind and visually impaired Kenyans can
use.
Effects of COVID-19 on employment:
Centrally, my thoughts seem to be telling me a silent reasonable accommodation revolution in workplaces is being executed globally by Covid-19
as envisaged in the UNCRPD.
For instance, some tech companies Multinational like apple and google are demanding their employee to work at home. According to ILO 2017 with proper reasonable accommodations companies can benefit allot
This is to say that allowing employees to work remotely encourages more equality in the workforce by allowing more people with chronic illness and disabilities to participate and some studies show employees even report that they perform better in remote arrangements.
.
I believe working at home will assuaged persons with chronic illnesses and also individuals’ who are having low immunity.
Will the disability policy makers and employment gurus stakeholders rise to the occasion and present a reasonable accommodation legislation?
Now the people without disabilities we see your ableism tendencies being put in the right place
This shows implementation of disability related rights is possible. Should public and private sector await a catastrophe to implement disability laws?
It’s a fact that in Kenya after the road tragedy in 2002 by the Third president who was sworn on a wheelchair made the signing of the persons with disabilities act 2003.
Will public and private sectors reduce demand for office spaces?
Will public and private sectors in developing nations like Kenya adopt 24 hour economy by having there staff to work on shifts in order to avoid social contact?
Will companies in developing countries stop the analogue economy and switch to digitalization?
What does this mean to both employed and unemployed disabled?
What does COVID-19 mean to the almost 70 % of informal employment in Kenya who do not use digital devices?
All in all, we need disabled persons organizations to be engaged in advocacy on protecting people with disabilities from COVID-19 in both national and county levels.
This is by way of ensuring we have inclusive emergency plans and actions.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

“DISABILITY LENCE” The unspoken truth of the Kakamega school tragedy! Author Mugambi Paul

In the recent past more schools in Kenya are reporting deaths and newly disabled pupils in unclear circumstances. Yet we have lots of resources’ and commitments towards achieving sDG number 4 and meeting the Kenya 2030 vision.
Kakamega school is not the last in this zero-game played by lack of observation of accessibility standards.
Kenya has lots of different pieces of legislations which needs harmonization and have a clear state organ to lead in implementation.
In September 2019 a classroom crushed at Precious Talents Top School in Nairobi killing 8.
Up to now no one has been convicted nor a report produced.
How many more should die or get disabled?
I opine that Schools have become death traps for future leaders and different influencers.
The unspoken truth is that the lack of observation of built accessibility standards seems to be the major setback towards this issue.
How many more will die or get disabled so that policy makers will protect the innocent lives?
Schools are meant to be safe heaven away from the harsh times in Kenya.
I believe the different policy makers seem not to grasp what is ailing lots of buildings in the country.
Kenya seems to be mark timing on the root course of collapsing of buildings and stampede in build environment.
The voice of the disabled:
the disability sector in Kenya have maintained the traditional tune of wait and see who will blink first.
I observe that more persons have become disabled in search kind of disasters.
How are disabled persons included in disaster management?
How are the newly disabled persons included in the new club membership?
What are the support measures put in place to ensure the persons who have acquired disabilities have a smooth ride of inclusion?
According to different studies, it is moment like this when the disabled persons organizations and allies of the disability sector are needed to raise the voice of accessibility.
It would be prudent to see policy makers within and without the disability sector setting record stay straight on having national accessibility standards.
One of the commitments made by the Kenyan government is about inclusive education in July 2019.
Could the stakeholders in the disability sector stand up and make a statement?
Shall we continue to be left behind?
Disability media reporting:
This is one of the major gaps in the media industry.
The exact desegregated data of the newly disabled persons is not given nor reported.
Recommendation:
The national construction authority needs to conduct an accessibility audit of all schools.
This will aid the non-compliant schools to be shut down by the ministry of education.
The national construction authority has the capacity in resource mobilization and expertise in built environment.
Moreover, what they might need capacity on is technical support on conducting inclusive audits.
When will the ministry of education issue a decree on accessibility standards in school just like the way the Cabinet secretary ordered pregnant girls to be admitted in form one?
All in all, as a public policy scholar I believe disability mainstreaming will be achieved when all institutions take responsibility and not to wait for a policing unit to actualize inclusion.
When we make built environment accessible for all it benefits everyone not the disabled only.
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The cost of remaining mum on Kenyans living with disabilities and individuals with chronic illness Author Mugambi Paul

Research shows that most chronic illnesses can affect every single part of individuals life, but it doesn’t really look like it. Some chronic illnesses have constant pains and fatigue among individuals [WHO 2011].
On the other hand, I have engaged several individual in the social media platforms.
This has led me to learn several lessons
You might not know a person is suffering if you don’t communicate ]HI 2011].
I classify some of these individuals as having invisible disabilities.
This is to say invisible disabilities mean that often times,
people don’t believe that actually individuals can be sick. This leads to people saying common things that, despite usually having good intentions, can come off as rude,
dismissive, and ableist.

The one I’ve heard the most is something that has undoubtedly been said to every person with an invisible disability or illness – the dreaded ‘but you
don’t look disabled nor sick!’. This happens all too often as an offhand comment, but it’s also been followed by heartbreaking situations like eventually losing friends
who haven’t believed that chronic illness or having impairment was real because people don’t look or act sick in the way they think one should be?
So, to give you a bit of a crash course, here’s some examples of what NOT to say to people with chronic illness.

‘But you don’t look sick!’

Yep, I know – but I am. These five words reduce health down to appearance, which is not the case at all. You might be saying this with the best intentions
(hopefully shock, because someone look ~too stunning~ for someone who’s actually very ill) but what it actually does is hits on one of the biggest fears of chronically
ill people – that people don’t believe them.
Actually,
Personally, whenever someone says this, it just reminds me of the many times people haven’t believed I can’t see because I didn’t *look* Blind. You might mean it supportively,
but all I hear is doubt.
This is because am super in mobility and orientation especially in familiar territories.
Sometimes it’s an anxious moment for me when individuals with out disabilities just plainly discuss behind my back “look at him, he is just pretending, he is comfortable” not knowing I have to go an extra mile to orient myself, secondly he or she doesn’t know that I have to do it since I don’t have alternative.
Additionally, I note that Not all illnesses are visible.
I can guarantee you; every chronically ill person has tried absolutely everything they physically and financially can. I cannot think of one person who’s
simply said, ‘ah bugger, I’m chronically ill. I’m not going to bother trying things to feel better!’
Trust me, some have tried it all; all the doctors’ and specialists’ suggestions, and yes, a bunch of the tinfoil hat ones too (desperation and lack of medical
answers make for strange bedfellows).

Examples of suggestions of what my friends the blind community and other persons with disabilities have tried including: various supplements, Chinese herbs, marijuana, LSD, ketamine, essential
oils, drinking their own urine, crystals, B12 shots, spirulina, charcoal, detoxes and juice fasts, prayer and religion – the list goes on,
as a blind fellow you can guest which one of them, I have tried I’ll let you ponder on which).

And before you ask, yes
You have seen many disabled persons, the chronic ill persons going to work, or you saw a photo of one catching up with a friend on the weekend. That’s irrelevant to whether he or she look ‘okay’ to you now
He or she still remains ill, and he or she maintains his or her impairment since they do not disappear.
According to several studies they indicate the nature of chronic illness is, sadly, extremely can be unpredictable. One can have totally manageable levels of pain and fatigue one day, and barely able to
walk the next. Sometimes it’s because one accidentally overexerted himself and went over my limits, but sometimes symptoms flaring can be completely random.
If you find it annoying, just try to imagine how frustrating it is for individuals with chronic illnesses. Regardless, some have always sick and in pain – some days some are just able to manage
it (and hide it!) better than others.

‘You just need to snap out of it and push through.’

‘Pushing through’ actually makes someone, and many others with chronic pain and illness, worse.
In Kenya and other developing countries there is no particular policy framework addressing concerns of persons with chronic illnesses although a mention here and there on different framework.
Most families carry the burden of taking care of chronic ill individuals and this affects the economic and social wellbeing of the society at large. The resources used to trat could have been used for other functions [ILO 2017, undp 2016].
Its high time we have particular social protection measure to address persons who have chronic illnesses.
Moreover, one of the major experientials in the disability world and chronic illness which seems to be similar is the way the society expects us to push ourselves beyond our limits
Obviously its so great to push beyond limit but this doesn’t apply to all persons. What the society doesn’t understand persons with disabilities and individuals with chronic illnesses are not a homogenous group.
one is sick or disabled every single day, and know their body and their limits better than anyone – so telling one to ‘push through’ is actually
the worst possible advice. When you’re talking to someone with disability or a chronic illness, remember just because you’d be able to manage something, doesn’t mean
they can or should. Don’t assume someone’s health and limits for them. It totally removes their agency as a human being.
Besides having a disability some individuals might also be having chronic illnesses.
‘You’re too young to be sick!’ or sometimes for disabled persons they say woyee woyee how comes he is blind?

Yep! He or she is young! And sick or having a disability! It sucks. But sickness and chronic illness isn’t exclusively the domain of the elderly; people of all ages can get sick. The society needs to understand that Doesn’t
make their experiences less valid, or their identities abnormal. They just sick in a cool young person way, I guess. I don’t know – it’s a weird thing to
say, so just don’t.

‘If you stopped talking about it all the time and looked on the bright side, you’d feel better.’

I do! To be totally frank, as a blind fellow if I didn’t look on the optimistic side, I wouldn’t be alive right now. Being blind for 23 years now it’s not a walk in the park.
It takes strong will to be in this unjust society.
This also applies to other fellow disabled persons.
Needless to say,
Being chronically ill is also tough as hell, and many chronic
illnesses have strong ties to mental illness. One has to look on the bright side A LOT, otherwise their depression and just the daily battle of being sick
would drag one down and some can’t be able to get out of their beds.

All in all, people should be able to talk about their lived experience as much as they deem appropriate, and disability and chronic illness is not spoken about
enough. Let them vent, let us explain, let them talk about their day!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Untold success story of the Cash transfer programme in Kenya Author Mugambi Paul

Rising inequality isn’t a new concern. Many countries in the global are facing this phenomenon.
Oliver Stone’s movie “Wall Street,”
with its portrayal of a rising plutocracy insisting that greed is good, was released in 1987. But politicians, intimidated by cries of “class warfare,”
have shied away from making a major issue out of the ever-growing gap between the rich and the rest.
The best argument for putting inequality on the back burner is the depressed state of the economy. Isn’t it
more important
to restore economic growth than to worry about how the gains from growth are distributed?
I will look at the social protection aspects in Kenya and how it has contributed to changing the lives of most vulnerable persons in the society.
Secondly, I will strive to highlight the misgivings of the global commitments.
To begin, the 2019 to 2020 Kenyan Budget raised the issue of implementing a Single Registry for all social protection programmes. This will improve the coordination of social
protection programmes, which have been highly fragmented leading to numerous inefficiencies. According to the social assistance project the ministry of labour and social services will highly improve the outcomes of the social protection programme by having the 3 cash transfer programmes in one registry. This is a great move which will reduce the flows experienced in the systems.
However, the Registry should not only create a data base of
beneficiaries from all programmes but should also track beneficiaries until they are able to graduate. As a public scholar I recommend the Ministry of labour and social services and its partners should develop A strategy for non-labour
constrained households who have the potential to graduate to entrepreneurship and gainful employment. This will help in eliminating increased dependency
on social safety nets.
Secondly, the government of Kenya has scaled up the uptake of the universal health cover though not much has been discussed on the inclusivity of disabled persons to this well intended programme.
However, Today, the risk of childbearing related deaths has become rare among Kenyans mothers. Infant deaths have also declined significantly, while more children
can now live beyond their fifth birthdays than before. Although non-communicable diseases are emerging and threatening the health of many people, the health
system has grown stronger and more resilient to be able to eliminate this threat. The county and national government need to enhance the human resource capacity in the health sector and reduce the cost of health by also adapting a single registry in both public and private hospitals which all the medics can access under privacy laws of the clients with out incurring extra charges as in the current situation. another aspect of promoting well being of citizens is the availability of water supply.
Scaling up urban projects to improve water and sanitation
The state of water and sanitation in Kenya is worryingly poor. Urban areas are prone to water borne diseases that break out almost every year. Recently,
Kenya experienced a Cholera outbreak that claimed more than 56 people, with the majority being Zin Nairobi.
is December 2019 Kirinyaga county is adding to the statistics.
Accordingly, the allocation to water and sanitation in the 2019 budget allocation was increased. in 2019. This is the highest level in five years, and though the nation has fiscal limitations, the allocation is justifiable to address water issues and
prevent disease outbreaks in the country. Despite the usual concerns on disbursements from the national treasury to the counties, the 2019 budget shows improvements, as 45% of the approved budget
was disbursed as of October 2019, compared to 2018 financial year. With such improvements, Kenya will be able to address its water and sanitation
problems in 2020.
On the other hand, the floods experienced in Kenya in November 2019 could have saved Kenyan millions of shillings if the ministry of water and irrigation had proper mechanism of conserving the rainwater.
Instead of the havoc caused and 152 lives lost we would have seen more water reservoirs being put in place.
The more challenging factor on this is that a dry spell will be kicking off and more request for food donation will take place as evidenced by the support by United states of America
https://www.nation.co.ke/news/Kenya-receives-Sh340m-food-aid-from-US/1056-5396952-egea2j/index.html

additionally, Social protection programmes have led to Kenyan households being able to afford more than one meal a day, achieve more diet diversity, afford more shoes
and clothes for their children, attain some level of education, and empower small scale farmers. However, recently there have been concerns among stakeholders
regarding the administration of these programmes, which the Government should aim to adequately address. These efforts should help reinstate donor confidence
in the administration of these programmes.
All in all, the government of Kenya has highly enhanced the development of well-crafted legal frameworks which now need to be executed for the benefit of the most marginalized and vulnerable members of our society.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

2 disability experts paints a grim picture on the BBI report “why the disabled Kenyans always fall into cracks” Authors: DR Siyat Abdi and Mugambi Paul.

According to the World Bank, WHO and the United Nations One billion people, or 15% o

f the world’s population, experience some form of disability.
Persons with disabilities, on average as a group, are more likely to experience adverse socioeconomic outcomes than persons without disabilities. Such as less education, poorer health outcomes, lower levels of employment, and higher poverty rates.

Barriers to full social and economic inclusion of Kenyans with disabilities include inaccessible communication, navigating the physical environments, inaccessible transportation, the unavailability of assistive devices and technologies, non-adapted means of communication, gaps in service delivery, utter unemployment inequality and generally discriminatory prejudice and stigma in Kenyan society.

From our professional lenses and in-depth analysis, we observe that the voice of this largest minority was never hard on the BBI 156-page report.
Notwithstanding, understanding the influence of different stakeholders in public policy making is very Critical “Carolyne 2016].
Although the BBI Taskforce had lots of public network in executing some of the insisted public approaches [Carolyne 2017], the task force did a total disservice and provided just a window dressing of Kenyans with disabilities.

In our collective opinion, the first omission and a major setback was the lack of representation of persons with disability in the BBI task force for persons living with disabilities.
This affirms the incessant notion of the government of Kenya of not ensuring article 54 of the 2010 Kenyan Constitution is realized.
Our expectations were high, and therefore, we expected the Taskforce would provide a clear direction on accessible representation that responds to the needs of persons with disability.

Secondly, on behalf of all Kenyans with disabilities who are the largest minority, we affirm the term “Disability” appeared 9 times in the BBI Report.
This was not in reference to any commitments to the 9-point agenda in their Terms of Reference but giving basic information of the experiential circumstances people with disability find themselves in Kenya.
In other words, the task force deliberated on the historical background on issues regarding persons living with disabilities without offering any commitment on how the nation will address the historical and traditional social injustices encountered by person with disabilities in Kenya.
Instead, the Taskforce echoed the common cliché we are used to by outlining traditional principles which clinically failed to work in the past.
No doubt, the BBI task force affirms what Paul Mugambi said in one of his articles, emphasising why the disability movement in Kenya must change tact once and for all!
http://www.mugambipaul.com/2019/11/17/why-the-disability-movement-in-kenya-should-stop-crying-faw/.
Increasing inclusivity on a political, economic, social, religious, cultural, youth, and gender basis is not Inclusivity devoid of disability.
How long are we going to continue being marginalised both in the national government and in the Counties?

It is worth noting the reflective theoretical commitment of Kenya to the 2030 Agenda for Sustainable Development goals.
It affirms clearly that disability cannot be a reason or criteria for lack of access to development programming and the realization of human rights.
Additionally, the SDGS framework have already been integrated in both short- and long-term Kenyan plan strategies, but limited wheels of implementations are in actions.
Its significant, to pronounce that the SDG framework has seven targets, which explicitly refer to persons with disabilities, and six further targets on persons in vulnerable situations, which again include persons with disabilities.
The SDGs address essential development domains such as education, employment and decent work, social protection, resilience to and mitigation of disasters, sanitation, transport, and non-discrimination – all of which are important obligations for the Kenyan government.

Unfortunately, the BBI task force team clearly seem to have been communicating to persons with disabilities in the charity model.
This is to mean the expressions reference to persons living with disabilities seem to be a separate group from Kenyans and this shows that there was exclusion in addressing persons with disabilities in the BBI report.
Thirdly, the term inclusion appeared 24 times.
The only relevant was the 22nd mention.
The cruel irony is that Article 174(e) of the Constitution provides that one of the objectives of devolution in Kenya is ‘to protect and promote the interests and rights of minorities and underserved or discriminated-against communities.’
It is for this reason that the Taskforce strongly feels that measures leading to greater inclusion, equality, equity, and basic fairness at the National level should be mirrored in the Counties, both in law, policy and administration.”
Do you think people with disability will enjoy this commitment?

Fourthly, the term Physical access has been mentioned twice and the 2nd one is relevant to persons with disabilities.
Increase physical access for people with disabilities into buildings, particularly public ones, and transport.
This shows the limitation of the BBI report since it’s not just enough to talk of physical access of built environment and transport only.
Kenyans living with disabilities still need more in area of universal and accessible housing, employment opportunity, and access to building (public and social facilities), communication and access to adaptive technology among many other disability services.
Fifthly, the term “has access” has been mentioned 42 times in the report.
The only relevant area is the 2nd mention. “
The aim should be for all Kenyans to have to cover the same distances to access public services.”
The access to information seems to be one of the major recommendations for the BBI task force but they avoided to demand for alternative accessible formats which could have ensured those with vision loss (blind), those with cognitive disability and other print disabled access information.
The BBI task force would have well utilized the Marrakesh treaty as a benchmark on access to information with excellent literature support from the United Nation Convention for the Rights of Persons with Disability (UNCRPD).

The BBI report missed opportunities to present across several mechanisms on enhancement of rights of people with disability in Kenya:
For instance, we anticipated that they would have an opportunity to present a structured Social protection systems that would be barrier-free and inclusive, and in a manner which ensures that everyone has equal opportunities to access social protection schemes, which may require special measures for particular categories of the population who may face additional barriers, such as persons with disability and the elderly Kenyans.
They missed to articulate the structure and design implementation of social protection, taking into account Human rights principles and standards at every stage of the schemes in the context of the level of marginalisation experiences of persons with disability both in the national government and in the Counties.
We welcome the Taskforce proposal to change the County Executive, including, but not limited to, the running mate of every candidate for the position of Governor.
While it is commendable to suggest consideration of the opposite gender, window of opportunity should have been given for any governor to decide their running mate, and if possible opportunity to make informed decision to pick a person with a disability as a Deputy Governor.
Another missed opportunity was to empower the National council for People with Disability NCPWD to be elevated a disability commission instead of a semiautonomous body incapable of servicing people with disability.
This could be either through a referendum or by legislation which could have subsequently ensured that the disability commission is well resourced and has the capacity to provide appropriate disability services based on social model and ensure the realization of disability rights.

On a positive note, the beauty of the BBI report is the importance of public participation and engagements. We hope people with disability will be fully engaged in decisions that matter to them.

In conclusion, the BBI report seem to have nailed the coffin for persons with disabilities by claiming that people with disabilities in Kenya are bunch of winchers, always complaining of injustices.
It seems the task force doesn’t understand that people with disabilities in Kenya are tired of the prolonged injustices experienced.
Yes, we must complain and continuously complain because we don’t expect civil and political elections of representatives in Party primaries and nominations to be fair; free and transparent elections in the context of persons with disability.
We must raise our voice because we are severely marginalised both in the national government and in the Counties in terms of employment and social services.
We cannot be satisfied with the BBI solution of just using reputable private recruitment companies to help, but to put in place recruitment legislations that give Kenyan people with disability opportunity to exercise their skills and talents to maintain their livelihood.
What the Kenyan people with disabilities need is real tangible implementation of legal and policy frameworks and ensuring persons living with disabilities actually access all government and private services just like any other Kenyan.

The views expressed here are for the authors and do not represent any agency or organization.

DR Siyat Abdi
Is a independent disability consultant.
Mugambi Paul is a
Public policy diversity and inclusion expert.

Public participation event

address to the public on importance of engaging disabled persons

Why the Kenyan census 2019 remains a mystery to the many poor and disabled Kenyans! Author Mugambi M. Paul

Over 1 billion people globally, including 494 million in Sub-Saharan Africa (roughly 45% of the population), lack government-recognized proof of identification [UN 2017.] This hampers their access to critical financial and social services and raises barriers to exercising political and economic rights. Obviously, several studies have shown that lack of desegregated
data among the disabled persons has greatly impacted negatively towards lives of the disabled community [world bank 2011].
According to [KBS 2009] Kenyans with disabilities make up 3.8 %.
However, these statistics are debatable and disabled persons organizations have argued that proper mechanisms were not in place.
Will the 2019 August census in Kenya be different?
The answer lies on the shoulders of the Kenya neural of statistics.
They have been able to adapt the Washington set of questions, but this will be put in to test during the data collections.
However, in the development of the censor’s committees still disabled persons organizations nor the county disability officers are not represented.
This is a great setback of ensuring inclusivity and raising the voice of persons with disabilities.
The policy makers need to adopt measures urgently at the ministry of interior to ensure disability representatives are added. This should not just be for quantity but provide quality and real representation in public participation.
Additionally, the county governments need to be keen on what the data of persons with disabilities mean in matters of service delivery and enhancement of proper support for persons with disabilities ]2010 Kenyan constitution]. It’s prudent to mention that the county governments are the service providers in their own counties.
persons with disabilities and thee organizations need to knock on the county government to ensure that the census collected becomes meanful in service delivery and planning.
At list a third of the counties have enacted county disability laws but are yet to implement.
I take note that Persons with disabilities face several challenges in receiving identification documents and presenting these documents to access services.
There is no exact information to show how many disabled persons have received particular government or private sector services.
What is emerging clearly as a public policy scholar I uphold Kenya should adapt to data driven analysis.
is in order to fight poverty.
Thus having need evidence-based thinking and plenty of good data.
The Kenyan census should be huge part of this phenomenon. Although it can be easy to overlook, it’s actually incredibly important because this data will inform the Kenyan government decisions that will shape millions of lives.
Recognizing this, I believe Kenya has a chance of its new census data to be more accurate, comprehensive, and granular than in the past. Will the Kenya beural of statistics switch to digital tablets? Will the Kenya bural of statistics use satellite imagery to make sure households in rural areas don’t go undiscovered and uncounted? The jury is out there.
I look forward for a disability desegregated data at the county levels.

I trust The government is now seriously committed to a “leave no one behind” ethic, which means counting every single person in the population. That includes people who are sometimes called “the invisible” — those who live in slums, disabled persons , who are homeless, or who are institutionalized.

These people are harder to reach, but without counting them and identifying which places they’re concentrated in and which services they lack, it’s difficult to design targeted interventions that will actually help them. Kenya and other African countries are increasingly treating this kind of data-driven approach as crucial to their development.
The Kenya bural of statistics must adapt many new ways which Kenya is leveraging data. That includes a biometric national ID system the so called Hudumanumber. (more than 30 million Kenyans have registered for it so far.
I suggest that Kenya adapts a digital address system (whereby every five square meters in the country will have its own unique address).
This way government can target services to people, once you know where they are.
How do you count “the invisible”?

Kenya’s census will take place in August 2019 for 3 days not a lot of time to survey a population of approximately 50 million people. But I believe the preparations begun well in advance, and this time, they will include a lot of help from new technology.

For the first time, will the enumerators use digital tablets to survey the population?I opine that through this they will be able to have answers to be checked for inconsistencies or omissions in real time. Will the Kenyan bural of statistics use Electronic maps?
This will help enumerators make sure they’re counting everyone in their demarcated area. GPS will pinpoint and record the exact location where each interview will be conducted.

Meanwhile, will the Kenyand government officials use satellite imagery to identify all housing structures in the country?
I affirm that if the enumerators go out into the field, an image showing which locations they’ve covered will be overlaid on top of the satellite imagery.
This will allow the officials to determine which areas may have been missed.

Usually it’s in rural areas, enumerators may not have known people are living there.
The Hudumanamba enrollment should be a wake-up call before the census begins.
Most developed and developing nations are increasingly looking to leapfrog challenges with traditional ID systems by moving to digital identification systems through the use of new technologies. Kenyan government has not been left behind since it’s a leader in digital Enovation in Africa.
The Kenyan government has introduced Hudumanamba system for its all citizens and the diaspora populations.
Digital identification systems are attractive to governments due to potential benefits of universal coverage and unique authentication. Were persons with disabilities, organizations for persons with disabilities consulted on the process?
It seems the government of Kenya denied its citizens the public participation
And say on this agenda. This has led to a court case making it voluntary to register for Hudumanamba.
On the other hand, Kenyans who need services might find themselves at catch 22 when the hudumanamba services will be rolled out.

Digital identification systems use a range of technologies include biometrics scanners, facial recognition, artificial intelligence, and other emerging mobile technologies.
The rapid moves towards digital identification systems raises both opportunities and challenges in ensuring that persons with disabilities can register for, receive, and use their unique identification. Will the disabled persons stop using the disabled cards?
Will the registration of newly disabled persons be conducted after the Huduanamba registration?
What’s the link between the registration for disabled persons and the hudumanamba roll out?
It seems the Kenyan government still stand accused of enhancing bureaucracy towards achievement of vital services to persons with disabilities with this unlinked processes and procedures.

Hudumanamba card is speculated it will offer alternative mechanisms to ensure that the lack of breeder documents (e.g. birth certificates) do not hamper individuals’ abilities to receive important credentials and open pathways to receiving economic and social services. At the same time, they need to be carefully designed to ensure accessibility and inclusion. Some of the Problems that emerged during the Hudumanamba registration included when persons with disabilities were unable to provide biometric data. e.g. due to lack of an iris or fingerprints), algorithms did not recognize certain facial features, or most hudumanamba centers fail to provide accessible accommodations and exceptions.
For instance, lack of alternative formats for the information, which was being gathered to the Blind, vision impaired, intellectual impaired and the Deafblind,
Another example is the inaccessible venues for the hudumanamba registration.
This was also coupled by Lack of staff training, and awareness of disability issues.
Furthermore, many disabled persons allegedly reported mistreatment during the process.
Thus, having significant challenges in the process of registration.
Will the Kenya bural l of statistics take lessons for the upcoming census?
The jury is outside!
All in all, the globe is embracing the digitalization of government services.
Disabled persons are not to be left behind.
Solution is to ensure we have inclusive policy and regulations
Thus, enabling the policy implementation to cater for the needs and priorities of disabled persons.
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.

“Open letter to the Newly NCPWD chair” Mugambi Paul

“Open letter to the NCPWD chair”
Mugambi Paul

This letter is sent to our newly Chair of the NCpwd:
Dear sir,
Kenyan persons with disabilities
want the same opportunities as everyone else in the community – somewhere to work, somewhere to live, somewhere to enjoy the company
of family and friends, the chance to follow their passions and interests. We want NCPWD that makes these things possible – not stands in their way.

Using the ideas that have been collected for the last 15 years.
I have come up with the three C’s: three useful targets to help get the NCPWD
back on track. 1. Control

Kenyan persons with disabilities must be in the driver’s seat. It is their experience and their views that must determine priorities and drive change. Choice and
control must not be undermined or restricted by poor policies and processes.
For instance, it should no longer be business as usual for the Blind and vision impaired persons to receive brailed version of vision 2030 after a decade when it was out.

No disabled representative is at the building bridge initiative! Persons with disabilities must be empowered by their experience in the NCPWD, not further disempowered
and marginalised. And above all we want good outcomes for everyone –not just those who are educated, or well-resourced or who have an advocate.

So how do we make this happen?
list of 5 items
• Quicker, simpler and easier processes. Simple and plain communication that is easy to understand, more so for persons with developmental disabilities and Deafblind etc

• More help for people, families and carers at every stage of the process including application for assistance, peer support and advocacy

• Fully functioning and fit for purpose IT system that works for both consumers and producers of disability services at the county and national levels.
participants and providers

• Focused and resourced attention on groups who need more support – such as those with complex needs, severe disabled persons, Blind and those who have never been hard.

• More staff to clear backlogs. And competent well-trained staff with the right experience and expertise
Additionally, a 51 per cent disability employment target across all levels of the NCPWD including senior leadership. Currently
just 25 per cent of the NCPWD workforce have a disability.
Furthermore, on the public service I believe more needs to be done to stop the disability community
being shut out of public sector jobs
.
The 5 % has the target did not go far enough, given the consistent decline of employees with disability
in the sector.
According to public service survey 2015 Kenya has not yet achieved even 1 % target of employment opportunities to persons with disabilities.
I opine that targets needed to be supported by a comprehensive strategy to address the “unacceptably low” employment rates of people with disability
across the APS and in mainstream employment more generally.
A Kenyan National Jobs Plan to fix systemic problems that people with disability face finding and keeping a job.

This plan would include measures to strengthen the transition of young people with disability from school into tertiary education and mainstream jobs,
and would integrate with the social security system to support people with episodic disability moving in and out of employment.
Moreover, a whole-of-government and whole-of-community approach is needed to enable employers to create meaningful, flexible and inclusive employment, make workplaces
more accessible, remove discrimination and build positive employer and community attitudes.

2. Certainty

Persons with disabilities, their families and carers want to know the NCPWD will be there for them when they need it. Those who have made applications want to know
services will be there when and how they need them. And for those who do not have an assistances, other programs and services must continue. No one should be left
without support because Kenyan government can’t get it together.
Instructively, Kenya has been on top from the global disability forums that no one should be left behind.
So how do we make this happen?
list of 5 items
• Full funding should be enshrined in the upcoming national and county budgets and persons with disabilities 2019 bill

• Active support and intervention to make sure people have a diverse range of quality services to choose from. Intervene early to prevent failure and lock
in crisis support so no-one falls through the cracks

• Independently let NCPWD become policy formulator and a facilitator instead of an implementor.
For instance, immediate action on the way NCPWD works with other systems like health, justice and transport. All levels of government must sit down and work out how to synchronize services instead of making disabled persons to suffer.

• Greater develop and resource of the Information, Linkages and Capacity Building program. This will ensure NCPWD funds the disability persons organization to further efforts of advocacy instead of fighting each other.

• New timeframes for entry into the NCPWD, plant and equipment approvals and plan reviews;

• More help for people to navigate the NCPWD and get their assistance plans into action including more support for advocacy; and

• Targeted outreach for people who require additional support such as children, people who are Blind, psychosocial support and or Culturally or
Diverse backgrounds.
list end
but also initiate or restoration of other programs and services
that support people with disability, their families and carers
list end this should be reflected in the county and national levels.

3. Community

The NCPWD was never intended to work in isolation. The gap in life outcomes between those with a disability and those without will never close without action
in all areas of life – employment, health, education and transport are all areas that need immediate action.

So how do we make this happen?
list of 3 items
• Greater attention and resourcing to the Kenyan National Disability Strategy

• Immediate action on employment, education, housing, transport and health. Targets must be set – and met.
More so the big four agenda.

• An immediate timeline for a board of trusty’s actions in issuance of
funding

I observe that All across the country persons with disabilities
, their families and carers and people who work in the sector have been holding formal and informal forums in the social media, mainstream media and public forums. events and coming together to demand
urgent change.
Obviously, many policy makers know what’s need to be fixed but they aren’t doing so.
As the chair you need to listen to us. After all, people with disability and their families know what is and what is not working when it comes to the NCPWD –
and we know how best to fix it.
Scholars and researchers have recommended
The disability persons organizations should join together with a government and work collaboratively so we can get the ncpwd working well for everyone who needs it.
This is very true in many countries.
NCPW is a body mandated to promote and protect equalization of opportunities and realization of human rights for disabled persons in Kenya to live dignified live.
as a public policy scholar, I affirm that and There is no question that when the NCPWD works it absolutely changes lives. We see its life-changing power every day. But, for too many people, the NCPWD
is not working well. It is too complex and too bureaucratic – and as a result some people are falling through the cracks while others are missing out altogether,
we know of some truly heartbreaking stories of people who are really being let down by the NCPWD. There are people with disability waiting two years
for a wheelchair, there are persons with disabilities waiting for the disability card for 7 months, there are blind persons awaiting a braille display but told to have a white cane etc
There are families pushed to breaking point without essential support for their child. There are people hospitalised as a direct result
of the stress of trying to work their way through a bureaucratic nightmare.

“Situations such as these cannot be allowed to continue. That is why, today I have written this letter. calling on the new chair to
listen to persons with disability and commit to getting the NCPWD working the way it should – the way it is mandated in respect to the UNCRPD, SDG and the Kenyan constitution.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy and diversity and inclusion expert.