Will it be the “White smoke” from the 10 billion Cash transfer to the disabled Kenyans? Author Mugambi Paul and DR Siyat.

Over the last 3 weeks the Kenyan government has been excoriated on the measure it would avail to the poor due to the hard-economic times and the coming in of Covid-2019 pandemic. Talking of poverty,

several studies show disabled Kenyans are the largest minority who face this tragedy.

Kenyans with disabilities are disproportionately affected by the current situation, as we are by all-natural disasters and major crises. It is vital that our

voices are part of developing solutions, innovating, problem solving.

as 2 experts we are deeply concerned about the impact of the COVID-19 pandemic on disabled Kenyans, chronic ill persons and the elderly. Bearing in mind that Kenyans with disabilities are among the Kenya’s most marginalized and stigmatized even under normal circumstances.

This requires us all to act, interact and communicate in different ways than we are used to. However, the social inequalities

degeneration COVID19’s impact on Kenyans with disabilities are not new. The risk in the response to the current crisis is that disabled Kenyans

will be left behind once again. The good news is that we already know what works. Fundamentally, we need social justice, equality of opportunities and

decent work.

According the UN Special Rapporteur on the rights of persons with disabilities “The pandemic is an unprecedented public health,

social and economic emergency that requires swift and effective action by Kenyan public and private sectors, and the society at large.

We know that COVID-19 is more serious for those with underlying health conditions and particularly those who are immunocompromised. What does this outbreak mean for the Kenyan Disability community?

Both national and county Governments should ensure they take

all necessary measures to ensure the protection and safety of disabled persons, aged and persons with chronic illnesses] Ilo 2020 WHO 2020 UN 2020 HI 2020 [.

 Legal framework:

The United Nations Convention on the Rights of Persons with Disabilities states that people with disability have the right to health without discrimination

on the basis of disability, including access to population-based public health programmes (Article 25) and that governments also have a duty to take all

necessary measures to ensure the protection and safety of persons with disabilities in situations of risk (Article 11).

 

Facts to consider:

Providentially, even in non-pandemic circumstances, people with disability are more likely than the general population to have health issues, compromised immunity, increased

risk of morbidity, comorbidities and are more likely to die from preventable causes] Whiteford 2011 DFID 2013, HI 2015un 2012].

According to several studies Some disabled Kenyans will be unable to maintain social distancing

practices because they rely on support workers for vital daily personal care, such as eating, drinking, walking, mobility toileting and dressing.

in addition, disabled Kenyans often rely on family, friends and care givers to provide essential services. During the Corona pandemic, these people may not be able

to provide their usual support.   

Also, in different Kenyan social media platforms disabled Kenyans like many in the broader community, are expressing anxiety about the COVID-19 pandemic.

Of course, this nervousness is exacerbated by the feeling that they are being left behind or ignored by Kenyan government, private sector and community Corona responses.

Background of social assistance programmes:

Current social assistance programmes include the Older Persons Cash Transfer Programme; the Orphaned and Vulnerable Children Cash Transfer Programme; the Persons with Severe Disabilities Cash Transfer Programme; the Hunger Safety Net Programme; and the Urban Food Subsidy Programme. The effective implementation of these programmes is constrained by challenges such as how to refine inclusion and exclusion criteria and how to determine appropriate transfer amounts.

 

Corona Rescue plan:

We acknowledge the efforts made by Kenyan government by the issuance of the additional 10 billion Kenyan shillings to the ministry of social protection for the vulnerable population in form of cash transfer.

Definitely in the coming days disabled Kenyans expect a white smoke at the NSSF building which houses the ministry of social protection in Kenya.

Most disabled Kenyans are highly expectant of the policy regulations and guidelines on the 10 billion promise by the executive order by the president of Kenya.

Unequivocally, with proper feedback mechanisms and regular consultation disabled Kenyans will be able to know if cash transfer policy programmed will meet their policy needs.

In other words, disabled Kenyans will comprehend how  the 10 billion cash transfer injection to the inua jamii will target the current registered severe disabled persons, elderly, orphans and vulnerable children or it will be meant  for targeting additional new  vulnerable individuals due to the effects of  of Corona 2019. Arguably, much of the debate about cash transfer among disabled Kenyans programmes revolves around the issues of targeting. This is because with the current strategy only severe disabled persons are targeted and considered.

https://labour.go.ke/wp-content/uploads/2019/09/MLSP-Strategic-Plan-2018-2022_17.09.2019.pdf

 

 

This will be a great test as different stakeholders and policy makers in the social protection department scratch their heads on the right footing on which to take in the implementation policy framework.

Will the policy makers ensure inclusion of other disabled Kenyans since they are also mostly vulnerable?

We believe the cash transfer will avert the short-term impact of the Corona crisis and attenuate its long-term negative effects on human development outcomes.

Nonetheless, it is one thing to say that Kenya with Inua jamii -like programmes are sheltering the more vulnerable from the worst consequences of the Corona crisis, and another to recommend that Inua jamii programmes be designed and implemented during a crisis Lehmann, C. (2012. Several steps are involved, political will is required, and funds must be committed. The ministry of social protection has a pivotal role to ensure coordination, operation and more resources even from development partners.

We observe, the Cash transfer programme will be effective if it will be implemented under a sustainable social protection strategy. Such a strategy should enable better coordination among programmes, between the national and county government ,and among the different international players in order to avoid duplication of effort and waste of resources.

For instance, Mombasa have already started a SMS service asking those who aren’t in the Cash transfer to register “widows, orphans, persons with disabilities, and persons with pre-existing conditions into the emergency plan

Has Mombasa county link up with the national cash transfer programme?

Data base and registration for the cash transfer:

Due to social distance directive as a preventive measure of spread of Corona. Will the ministry of social protection work on vigorous registration, collection of data and automation of all new persons with disabilities, orphans and the elderly?

Or will the ministry of social protection synchronize the current departments databases of children services, NCPWD and   department of social development under the strategic guidance of the National Social Protection Secretariat programme?

This will enable to identify the unmet needs through geographic, demographic and welfare status.

Furthermore, quite a lot of reports indicate the current enhanced single registry adapted through the social assistance programme has improved efficiency and reduction of bottlenecks experienced when the ministry of social protection had 3 separate registries [development pathways 2020[.

Through this policy integration the ministry has    a clear database and actualize its programmes effectively Bobonis, G. and F. Finan (2019).

Such database can enable the ministry to build an array of indicators on disabled persons, orphans and vulnerable children, elderly socioeconomic conditions. Therefore, this is a powerful tool for mapping the different needs. and they could be used to guide other policies. Like the current need of food, water, soap and hand sanitizers.  Moreover, Registries enhance monitoring of the poorest families’ access to social services and infrastructure in a more calibrated way than household surveys. The latter, though they are nationally representative, are often based on small samples that do not facilitate sound analysis for local-level interventions. This knowledge base allows rapid crisis response when programmes may need to expand in order to cover a larger proportion of those that fall into poverty.

Key considerations for the cash transfer:

We consider that the ministry of social protection will cast tis net wider in order to seek input from people with disability, leading disability experts, organizations of persons with disabilities and advocates

in developing their dedicated cash transfer strategy, and in particular, in its COVID-19 Coordination

secondly, Disabled Kenyans with disability, particularly slum dwellers and rural inhabitants, may be disproportionately affected by the pandemic due to increased risk of

infection, higher number of co‑morbidities and because of underlying health conditions such as chronic diseases and respiratory illnesses. Numerically speaking, most disabled persons in Kenya live in slum areas and rural areas without basic amenities. Some live-in solitude while others have been housed.

Most of the disabled population and other low-income earners live hand to mouth. This is to say, COVID-19 will spread rapidly and is especially dangerous to people living in close proximity to others in closed settings [WHO 2020].

Worse still, Thousands of adults and children

with disabilities in Kenya live in segregated and often overcrowded residential settings where they can face neglect, abuse, gender-based violence, and inadequate health care and lack human Rights.

Of particular concern are women and girls with disabilities.

This affirms that disable Kenyans are survivors in this country [KNHR 2015]

 

Thirdly disabled Kenyans continue to face barriers in accessing health care, including prevention, testing, screening and treatment for COVID-19. Fourthly, disabled Kenyans will be   unable to access regular and vital medications and therapeutic services due to low supplies and restrictions in access. Fifthly, disabled Kenyans may not have access to mental health services at a time when the need for accessible and responsive mental health is heightened. Sixthly,

disabled Kenyans will be unable to easily access essential health supplies to keep themselves safe, such as personal protective equipment, hand sanitiser and sterilising

Equipment.

lastly are worried that discrimination or unconscious bias could impact their access to critical and lifesaving health care during this crisis.

to we hope the measures taken will ensure the needs of all Kenyans with disabilities are included in

the response to the pandemic.

As experts we appreciate and acknowledges the challenges that national and county governments and private sector are facing during this pandemic.

 

We call upon all national and county governments to ensure that, in their responses, they include dedicated disability strategies to protect and support disabled Kenyans.

Long term solutions:

We opine that Kenya is still a developing nation We therefore suggest inclusion of one our BBI recommendations which we presented at the task force in February 7th, 2020 as a long-term solution.

  1. Ministry of social protection to establish a disability employment service department under the national employment authority since the authority is in charge of all Kenyans in need of employment. so that they are able to execute employment needs of persons with disabilities Through this agency real disability mainstreaming will be achieved. If this recommendation will be adapted, we believe rapid change will take place. We opine disabled persons won’t need to be in cash transfer for long since cash transfers are not meant for long term programming.
  2. We hope the ministry of social protection can take advantage of the Corona crises to execute of reasonable accommodation plans in all its organs and offer vital lessons to both public and private sector.

All in all, our policymakers will have to come up with a homegrown resolution for ensuring disabled Kenyans rights are protected. And this will not be easy.

 

 

 

The views expressed here are for the authors and do not represent any agency or organization.

 Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Dr Siyat is a  independent  consultant and systemic advocacy service provider.

 

The Outrage of the missing data of women with disabilities in Kenya “where are you my sisters?” Author Mugambi Paul.

The upcoming international women day’s gives scholars, practitioners and other public policy stakeholders to ask ourselves the pertinent question.
Has Kenya done well in advancing the rights of women and girls with disabilities?
Has Kenya broken the barriers of inclusion of women with disabilities?
Has the disability space been accommodative of women with disabilities?

As a public scholar I join in the reflection of the Kenyan disability public space.
Absolutely not, this is one of the debates which the stakeholders in the disability sector need to engage.
Are women with disabilities actively engaged?
I live that to other analysts. As a matter of principle, I say representation matters.
On the other hand, I thank the president of Kenya having appointed Madam MUkhobe at the highest decision-making organ in the country since 2013.
Where is the Data and statistics of the disabled?
Numbers don’t lie.
Globally disabled persons are at 15 %.
3.8 of the are persons with moderate to severe impairment.
5.1 % of the children with disabilities are below the age of 14.
0.7 % have severe functional impairment.
19 % are women with disabilities world report 2011.
To put matters into perspective, In the latest 2020 national council of population report has no data of women or girls with disabilities.
Does this mean that women and girls with disabilities do not get pregnant?
Are women and girls with disabilities not sexually active?
Different media channels on a weekly basis in Kenya have been reporting of how women and girls with disabilities have been experiencing gender-based violence in the hands of family members or even under the institutions mint to support them.
I believe This is another big blow to disabled persons in Kenya after the release of Kenya bureau of statistics 2019 census report. Which in essence reduced the data of disabled Kenyans.

Will disability sector continue with the same old ways of addressing this challenge?
Will the disability sector move out of board rooms and actualize the dreams of girls and women with disabilities?
Does the national council of population have a disability mainstreaming committee?
The lack of disability desegregated data will obviously affect planning and service delivery for girls, boys, men and women with disabilities.
In other words, the national council of population affirms that women and girls with disabilities have never experienced gender-based violence nor gotten pregnant.
Let me remind the disability stakeholders women with disabilities are more likely to experience sexual violence than women without disabilities.
This is also coupled with disabled Kenyans who face barriers to accessing services in both public and private sectors.
Most disability policy stakeholders know the barriers that disabled Kenyans face but have refused to actualize them.
Disabled Kenyans persons have been left chanting in the social media as a tool of advocacy.
Am not surprised to note in March 4th, 2020 a person with physical impairment was begging for a wheelchair on in one of the social media platforms.
Which system works for disabled Kenyans?
Will the Big four agenda be realized for disabled persons?
When will Kenya declare begging an economic enterprise for disabled persons since the constitution provisions aren’t working for disabled Kenyans?
several studies show Women and girls living with disabilities often face additional marginalization in their experiences of abuse as well as specific barriers to accessing services, due to:
• economic and/or physical dependence on the abuser, which challenges efforts to escape (particularly within family and sometimes institutional set ups. Several research in Kenya have indicated women with disabilities have suffered from forms of abuse specific to women living with disabilities (e.g. withholding of right medications, like the case of national children council exposed by NTV Kenya in 2019.
research done by women with disabilities organizations in Kenya show denial of assistive devices is also rampant.
Additionally, there is also refusal to provide personal care), which are less documented and may not be explicit within legal definitions of abuse.
For instance, Menstrual Health in Kenya: Landscape Analysis published in May 2016 never showed the extent to which women and girls with disabilities can’t access sanitary pads.
As Well lack of or limitations in physical accessibility of venues for women with disabilities still remains one of the barriers.
Furthermore, perceptions by service providers like health continue to plague the system in place.
This is because many believe that they cannot provide services for women with disabilities given their resource or capacity limitations. Mainstream women organizations and women service providers have not entrenched any inclusive measures of engaging or consulting women with disabilities.
In other words, lack of programming informed by and implemented in consultation with Kenyan women with disabilities or misinterpretation of their needs in escaping and overcoming the abuse they have experienced. Thus, having gaps in collaboration between disability organizations and service providers supporting survivors, as well as assumptions by each group that survivors are served by the other. A study by Kenya national human rights commission in 2015 indicated low sensitivity among law enforcement personnel or other service providers, who may not inquire about abuse by caretakers, or disregard reports from women with visual, speech/communication or motor coordination disabilities (e.g. cerebral palsy), assuming they are intoxicated or are not serious in their claims. The KAIH who have been working closely in the legal apparatus affirm that biases among judicial personnel and courts is evidently seen.
For instance, cases of provision of preferential treatment to the abuser in child custody due to the victim’s disability (

What can disability sector and stakeholders do to change the narrative?
Develop Strategies and tools to prevent violence against women with disability. E.g. have inclusive training tools on gender violence.
Ensure collection of data collected is gender, age and disability desegregated in reporting and monitoring
Share best practices of gender and disability equitable practice
develop inclusive Referral system and services which can assist in responding to women with disability who experience violence
have more role models among women with disabilities.
Collaborative initiatives with the mainstream women organizations
list end support men with and without disabilities who are supporting reduction of gender-based violence initiatives.
Conduct inclusive training to service providers in both health and law enforcing agencies.
Ensure engagement and meanful consultation with women and girls with disabilities from rural and urban set up.
This will actualize the slogan not living any one behind as the sustainable development goals advocate.
global commitments 2018.

In conclusion:
The truth of the matter is Kenya is known to have progressive disability
related laws and policies but poor implementation is the order of the day.
As a result the dire state of affairs of women with disabilities is not due to lack of new ideas. The biggest problem is lack of capacity to take up and implement the new ideas in existing policy documents.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Disabled Kenyans outcry of the elusive accessible housing plans: Author Mugambi Paul

According to the Convention on the Rights of Persons with Disabilities it recognizes the right of persons with disabilities to adequate housing and their right to social protection (article 28). The Convention was adopted in 2006 and ratified by 180 countries, where Kenya is one of the earliest countries to do so.
more importantly in 2017 Kenya adapted the big 4 agenda where affordable housing is one of the key issue.

Where are we:
Arguably, there have been back and forth debates on how the public will be entitled to the affordable housing schemes in Kenya.
There has no been any agreeable way between the 3 arms of government and the public at large.
The lack of public participation in the affordable housing seam to have reached rock bottom.
This is coupled with lack of clear policy frameworks which could ultimately have guided the process.
In Jamuhuri 2019 the president of Kenya seem to have soften the stand on involuntary housing contribution. This has led to treasury in 2020 February budget policy estimates to the Parliament to say that it will allocated 0 budget for housing plan.
Although the private sector is investing on the housing agenda.

What’s happening at the National level?

In 2015, the UN Member States adopted the Sustainable Development Goals which call for access for all to affordable housing and implementation of appropriate social protections systems for all, including persons with disabilities (Goals 11 and 1).
But Kenyans with disabilities remain largely invisible in the implementation, monitoring and evaluation of these commitments. Notably, Lack of reliable and timely data, evidence and research on persons with disabilities continue to pose challenges to the inclusion of persons with disabilities and the full implementation of Sustainable Development Goals, including Goals 1 and 11.
This is affirmed by the latest Kenya bureau of statistics 2020 where disabled numbers dwindled.
Lessons for policy makers in the disability sector:
Mobilization of expertise on disability inclusion in housing agenda needs to be considered.
Disabled persons organizations need to participate in public participation forums to ensure their issues are hard by the ministry of housing and transport.
The disability sector policy makers need to resource and facilitate disabled Kenyans to this process of ensuring inclusive measures are observed.
The disability sector should demand 15 % of the housing units being constructed to be accessible and owned by disabled Kenyans.
The UN report 2018 shows that despite the progress made in recent years, persons with disabilities continue to face numerous barriers to access affordable and adequate housing and a disproportionate number of persons with disabilities are homeless. They face many barriers that prevent them from enjoying their right to adequate housing, including higher levels poverty, lack of access to employment, discrimination and lack of support for independent living.
On the other hand, On 19th February 2020 the gavel fell on the
58th session of the UN Commission for Social Development,
which agreed the text of the historical first United Nations resolution on homelessness. A serious violation of human dignity, homelessness has become
a global problem. It is affecting people of all ages from all walks of life, in both developed and developing countries.
Relevance of data:
Globally, 1.6 billion people worldwide live in inadequate housing conditions, with about 15 million forcefully evicted every year, according to UN-Habitat,
which has noted an alarming rise in homelessness in the last 10 years. Young people are the age group with the highest risk of becoming homeless.

The UN Commission’s resolution recognizes that people are often pushed into homelessness by a range of diverse social and economic drivers.

“It could happen to anyone. It’s not always drugs, alcohol. It’s not always something external. Life happens. And life can happen to a whole lot of us.
It did during the great financial crisis, and it could very well happen again”, said Chris Gardner, who had described his experience of homelessness in
his bestselling book, “The Pursuit of Happiness”.

“We, as a great human society, we are diminished, we lose the gift of their creativity, the gift of their curiosity, the gift of their potential when it
is marooned by all downstream consequences of homelessness”, said Mary McAleese, Former President of Ireland.

“I will never forget my first experience with homelessness. I, unfortunately, was born into a family plagued by a chain of events which included domestic
violence”, added Chris Gardner. “My one regret about being here today is that the two most important people in the world to me couldn’t be here today‐‐‐I’m
referring to my granddaughter and my goddaughter. One of them says that she wants to become the President of the United States and the other one says
that she wants to become an astronaut and go to the moon. And you know what I say to both of them every day? Let’s go!!! THAT’S THE POWER of ONE!”

In its resolution of the UN Commission for Social Development calls for a response by all sectors within Governments and societies. The Commission recommended
the resolution for adoption by the UN Economic and Social Council later this year.

The Commission also celebrated the
25th anniversary of the World Summit for Social Development
and its Copenhagen Declaration. Stakeholders and experts from all over the world expressed strong support for the work of the Commission, noting that
the outcome of the Copenhagen Summit remains relevant today and continues to guide social development in their countries.
Kenya ministry of social protection was recognized on this event.
All in all with the current trends in Kenya it remains a pipe dream for having accessible housing in place.
This is because there are no adequate measure or regulation in place to ensure real inclusion is achieved in housing agenda.
What remains is the low confused undertones among the Kenyan disability community without knowing which direction to take!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The Deep Crises in the Kenyan disability sector Author Mugambi Paul.

Kenya is a country faced ultimately by many challenges as a developing nation.
Issues of disabled persons seem to be hanging in the Kenyan movie of activities.
No one or any institution seems to understand how to handle the first pace changes taking place in the global disability sector.
The disability sector seems to be blaming each other for the failures and the inadequacies felt by the wanjikus with disabilities.
Issues ranging from lack of representation in the building bridge initiative, lack of adequate data from the Kenyan bureau of statistics to delayed
Service delivery.
Let me not dwell on the Corana virus.
As a public policy scholar let be engrain me to the importance of collecting desegregated
data for disabled. Persons.
According to standard media, the release of additional census data by the Kenya National Bureau of Statistics (KNBS) should be a wake-up call to policy makers in both the county and national governments. The numbers present valuable information on trends and patterns within the country’s demographic that should inform policy decisions and resource distribution
This was after the realise of the numbers byt the Kenya bureau of statistics. Unfortunately, for disabled person it was a bitter peal to take having lots of expectations.
The data presented seem to have reduced the numbers of persons with disabilities.
What happened?
The reality check indicates the lack of proper representation and lack of technical knowhow of disability data desegregation took place.
did the disability sector participate in the cycle of activities at the Kenya bureau of statistics?
The data released seems to be negative.
Reasons?
First application and training of the use of the Washington group of questioners was not properly conducted.
Secondly no pilot activity was done on how to collect disability desegregated data.
Thirdly the training of enumerators was a second thought.
Fourthly, were the organization of disabled persons involved in the process?

Facts for consideration:
It is well known. That
An estimated one billion people worldwide live with disabilities. Of the world’s poorest people, one in five live with disabilities.
Notable, in developing nations like Kenya conditions where we lack material resources as well as opportunities to exercise power, reach our full potential, and flourish in various aspects of life. (WHO and World Bank, 2011).
Globally, People with disabilities were not listed as a priority in the Millennium Development Goals. This is also true in the Kenyan context where disabled persons are not listed in the big 4 agenda. As a result, there is exclusion from many development initiatives, representing a lost opportunity to address the economic, educational, social, and health concerns of millions of the Kenyan’s most marginalized citizens (UN, 2011). In contrast, for the 2030 Agenda for Sustainable Development, United Nations member states pledged to leave no one behind, recognizing that development programming must be inclusive of people with disabilities.
Expected irreducible minimum:
To ensure disability-inclusive development, disability data must capture the degree to which society is inclusive in all aspects of life: work, school, family, transportation, and civic participation, inter alia. Disaggregating disability indicators will allow us to understand the quality of life of people with disabilities, towards developing programs and policies to address existing disparities.
Opportunity for Kenya disability movement:
Kenyan disability movement should stop board room meetings among themselves and join where the cake is being mashed and prepared.
At the Global Disability Summit in July 2018, the World Bank announced new commitments on disability desegregated data support to countries.
Specifically, the Bank pledged resources to strengthen disability data by scaling up disability data collection and use, guided by global standards and best practices.
This commitment is aligned with the World Bank’s October 2015 pledge to support the 78 poorest countries in conducting household surveys every three years. Regular household surveys are an excellent option for disability measurement, as they can be stratified to oversample people who are more likely to experience limited participation in society. In multi-topic household surveys, disability data can be collected along with other socioeconomic data, enabling a richer analysis of the experiences of people with disabilities. Finally, regular household survey programs can measure the change over time and space in key indicators such as the frequency of types of disability, severity of disability, quality of life, opportunities and participation of people with disabilities, and rehabilitation needs. For example, the recently launched 50×30 initiative may offer a good opportunity to collect disaggregated farm- and rural-related indicators by disability status
The Kenyan disability sector should stop ghetorization of disability issues and we shall realize real mainstreaming when we speak to where barriers exist.
It is encouraging that more disabled persons in the social media are demanding a specific census for persons with disabilities.
Weather this will be executed time will tell.
All in all, we need a model survey for disabled persons in order to have proper planning and ensure we get the Kenyan national cake.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The missing 11 opportunities in 2020 for disabled Kenyans Author Mugambi Paul

Background:

Tribalism and Gender come up frequently in both social media and mainstream media discussions in Kenya.

But what about disability?
It’s a known fact that The largest minority group in Kenya constitute about 7 million.
but despite that huge number, many disabled people face challenges reaching their full potential in social, economic, cultural and political spheres.
How do we break the chains?
as a public policy scholar and being blind I would like to author the missed opportunity of the Kenyan disability movement.
This is to say I highly understand the barriers that disabled Kenyans face in sea, land and air.
This is coupled with inadequate policy and legislation execution.
I opine that three quarters of the disabled Kenyans are poor, and this is catastrophic
This problem cannot be address with the normalcy which is currently perpetuated by the current disability movement
We have to adapt new way of thinking and be ready to make the systems work for persons with disabilities.
Miss opportunities:

1. The treasury normally conducts public budget engagement every year both at national and county levels: the disability movement could have presented their own version of budget which could have been adopted by the budget committee.
2. BBI committee: the disability movement could have advocated for representation in the BBI task force team.
3. Housing agenda: the Kenyan disability movement could have demanded 15 % of the new housing schemes should be fully accessible.
4. Opportunity at the national employment authority: the Kenyan disability movement could have demanded a robust plan and execution of disability employment services targeting disabled persons.
5. Accessible toilets: the Kenyan disability movement could have emphasized at list enforcement of usage of accessible toilets in most government and private entities instead of the toilets being used us storage facilities.
6. Accessible bank notes: the Kenyan disability could have demanded the central bank to issue accessible bank notes instead of allowing the president to cheat the Blind persons like me as evidenced in June 1st, 2018.
7.
Organizational culture: the Kenyan disability movement should mirror itself and see if it’s being an enabler of inclusion or it’s a talk show entity.
This is to say Beyond just bringing diverse disabled people together, persistent initiatives, specific behaviours, and intentional practices that support inclusion are needed for tapping and invigorating the potential of diversity and for leading to disability inclusive organisational cultures.
Thus, having proper leadership commitment, accountability, and contextualization.
8. utilization of online and live streaming services during workshops and conferences: at this era of digitalization and the faster collection of both true and fake news the Kenyan disability movement could have had robust plans of ensuring combining the old way of board room meetings with technology in order to collect diverse views and opinions.
9. Identity registration: the Kenyan disability movement could collaborate with the interior ministry of the super CS Mating’I and ensure the disabled get the disabled card much faster just like the planned Identity card and passport issuance.
10. Bodaboda transport: 80 percent of disabled Kenyans are mostly likely to use bodaboda for accessing public places but the Knyan disability movement went mum as the interior ministry developed regulations. Obviously the bodaboda reforms will have adverse effects on the wanjikus with disabilities.
11. Secondary school transition: the Kenyan disability movement could have joined the ministry of education and campaigned for grater transition of learners with disabilities. Moreover, the disability movement could have pushed for the ministry to fund all student with disabilities joining form one.
Could the 4.811 students be learners with disabilities?
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Will you Be my Valentine? “Tips for an extra special day with your blind partner” Author Mugambi Paul

Friendship, love, and romance are in the air with Valentine’s Day in Nairobi..

Whether you’re on your first date, or it’s your tenth with your true love, planning the right date night, getting the right flowers, a gift, dinner reservations,
etc can be a bit stressful.

And you may imagine that going on a first date with someone who is blind or visually impaired can even be more awkward.

But in reality, going on a date with someone who is blind or low vision is no different than dating any other person.

Here are a few tips for sighted companions or partners to help make your date memorable.

#1 Sighted Guide

Consent is key! Once you’ve selected a place, made a reservation or planned an activity, don’t forget to brush up on your sighted guide technique.

There is an etiquette to offering sighted guide assistance to a blind person. Always ask first, don’t grab or push.

Now a days I combine my White cane experience with Sunu Band
to navigate indoor spaces like restaurants and cafes. Moreover, it has aided me with the line like at theaters, so I know when it’s my turn to move up in the queue.

The Sunu Band is also great for when you are doing a sighted guide as the blind or low vision person being guided retains awareness and more control.

#2 Be descriptive

But not overly so – allow your partner the chance to soak in the ambiance.

Now that you’ve arrived at that fancy, romantic restaurant or place, offer a lite description of where you are to your partner.

Allow your blind partner the chance to ask about his/or her surroundings.

#3 Don’t just read the menu

make it conversation instead of reading a list.
You know Nairobi hotels and restaurant do not offer braille, or large print menus, you have to check with your partner their preference.

If those aren’t available, you can start by asking what are they’re in the mood for drink and food? If it’s a place you know well, make a recommendation
or mention the specialty of the house.

But whatever you do, don’t order or speak for your blind or low vision partner. Especially, don’t allow waiters or staff to ask you to speak for your blind
partner.

In the event it happens, tell your waiter to direct the question or comment to your partner.

#4 Table manners are still king

And throw away the messy stereotypes. Enjoying a meal with someone who is blind or low vision is just like eating or drinking with anyone else. Again being
a little bit more descriptive is good.

When the meal arrives, you may offer a quick description of where things are on the table. For example, your wine glass is to your left or at your 9 O’clock.
Sometimes using the clock reference is helpful.

Remember, don’t overdo it and stress about the vision impairment. Just be yourself and enjoy each other’s company through great conversation, drinks, and
food. At the end of the date, the most important thing is that you both have fun.

Additionally, everyday should be a valentine.
You should even practise self-love.
Self-love means allowing yourself to be happy. Too often, we manipulate ourselves instead of increasing the amount of joy we bring to our lives.

So, every day, do things that make you feel good. Even 10 minutes of self-care can add up and make you feel much better in the long run. But you’re worth
more than 10 minutes. You are the most crucial person in your life. Act, accordingly, show love, and be open to receive love.
All in all, do things that fulfill your soul. Get rid of people who don’t make you feel good.
What others say or think about you has nothing to do with reality. It’s just their perception.

Sure, we’d all like to be around people who are kind and loving, but the harsh reality is that rudeness exists. Yet, it doesn’t need to affect you and
especially not your wellbeing.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Disability charity boss jailed after stealing from pension fund | Guest author Steven Morris

Patrick McLarry was guilty of ‘appalling dishonesty and a breach of trust’, the judge said. Photograph: Ben Mitchell/PA
Patrick McLarry was guilty of ‘appalling dishonesty and a breach of trust’, the judge said. Photograph: Ben Mitchell/PA
The former head of a charity has been jailed for five years after he admitted defrauding a pension scheme for workers with disabilities and using the money
to buy houses in England and France.

Patrick McLarry took more than £250,000 from the pension scheme of Yateley Industries for the Disabled and used it to buy homes for himself and his wife
and pay off a debt for a pub lease.

The charity was so badly affected by the sophisticated fraud that it came within days of closing and service users and staff have been left traumatised.

Sentencing him at Winchester crown court, the judge, Andrew Barnett, described the fraud as “an appalling dishonesty and breach of trust”.

He said: “You quite deliberately and in a very calculating way milked the fund of a considerable amount of money which was spent for your own needs and
your wife’s.”

Linda Matthews, the chief executive of the charity, said in a statement read to court that the pension scheme faced “significant difficulties” because
of the stolen funds and had led to “immense stress and anxiety” for staff and users.

Alex Stein, prosecuting, said McLarry carried out the fraud by setting up a new company to manage the pension fund, of which he was one of only two directors
and in the habit of authorising decisions.

He also set up a third company, which used the cover of trading in antiques to transfer the stolen money to France in order to buy two properties abroad
before creating a fictional loss to explain the missing funds. Stein said outside court: “This was a complex, sophisticated fraud undertaken over a number of years against vulnerable victims. Mr McLarry held himself
out as a pillar of the community, a legitimate businessman and a man with an MBE.

“It took a persistent and tenacious investigation to uncover one of the most substantial pension frauds prosecuted to date.”

Nicola Parish, the executive director of The
Pensions
Regulator, which brought the prosecution, said: “McLarry tried every trick in the book to hide his actions and squander the pension pots of those he was
responsible for but we were able to uncover the truth and bring him to justice.

“We will now work to seize assets from McLarry so that as much of the money as possible is returned to its rightful owners, who will rightly rely on it
to deliver their pensions in retirement.”

McLarry, from Bere Alston village near Plymouth in Devon, was also previously convicted of failing to disclose his bank statements to the regulator’s investigators.

McLarry’s wife, Sandra, 59, was initially charged with four counts of money laundering but at an earlier hearing the prosecution said it would not proceed
with the charges and offered no evidence. She was found not guilty.

Hampshire-based Yateley Industries has a onsite factory that trains and employs about 60 people with disabilities. It focuses on specialised packing, including
machine shrink-wrapping and boxing.

The work and pensions secretary, Therese Coffey, said: “Defrauding disabled people of their hard-earned pension savings is a despicable crime. I welcome
today’s sentence.

“This government will ensure that individuals who pocket people’s retirement funds feel the full force of the law. To protect savers further we are introducing
new laws, with a maximum jail term of seven years, for those who wilfully or recklessly endanger pensions.”

As 2020 begins… we should take great lessons and ensure we don’t enhance disability corruption.
For those who have been corrupt repent and repent time is coming when you will cry alone.
The friends and colleagues you have been eating with will no longer be with you.
Imagine the lives of the marginalized disabled persons you have ruined and denied them the opportunity to thrive or enjoy life just like you.

Crime,

“DISABILITY LENCE” The unspoken truth of the Kakamega school tragedy! Author Mugambi Paul

In the recent past more schools in Kenya are reporting deaths and newly disabled pupils in unclear circumstances. Yet we have lots of resources’ and commitments towards achieving sDG number 4 and meeting the Kenya 2030 vision.
Kakamega school is not the last in this zero-game played by lack of observation of accessibility standards.
Kenya has lots of different pieces of legislations which needs harmonization and have a clear state organ to lead in implementation.
In September 2019 a classroom crushed at Precious Talents Top School in Nairobi killing 8.
Up to now no one has been convicted nor a report produced.
How many more should die or get disabled?
I opine that Schools have become death traps for future leaders and different influencers.
The unspoken truth is that the lack of observation of built accessibility standards seems to be the major setback towards this issue.
How many more will die or get disabled so that policy makers will protect the innocent lives?
Schools are meant to be safe heaven away from the harsh times in Kenya.
I believe the different policy makers seem not to grasp what is ailing lots of buildings in the country.
Kenya seems to be mark timing on the root course of collapsing of buildings and stampede in build environment.
The voice of the disabled:
the disability sector in Kenya have maintained the traditional tune of wait and see who will blink first.
I observe that more persons have become disabled in search kind of disasters.
How are disabled persons included in disaster management?
How are the newly disabled persons included in the new club membership?
What are the support measures put in place to ensure the persons who have acquired disabilities have a smooth ride of inclusion?
According to different studies, it is moment like this when the disabled persons organizations and allies of the disability sector are needed to raise the voice of accessibility.
It would be prudent to see policy makers within and without the disability sector setting record stay straight on having national accessibility standards.
One of the commitments made by the Kenyan government is about inclusive education in July 2019.
Could the stakeholders in the disability sector stand up and make a statement?
Shall we continue to be left behind?
Disability media reporting:
This is one of the major gaps in the media industry.
The exact desegregated data of the newly disabled persons is not given nor reported.
Recommendation:
The national construction authority needs to conduct an accessibility audit of all schools.
This will aid the non-compliant schools to be shut down by the ministry of education.
The national construction authority has the capacity in resource mobilization and expertise in built environment.
Moreover, what they might need capacity on is technical support on conducting inclusive audits.
When will the ministry of education issue a decree on accessibility standards in school just like the way the Cabinet secretary ordered pregnant girls to be admitted in form one?
All in all, as a public policy scholar I believe disability mainstreaming will be achieved when all institutions take responsibility and not to wait for a policing unit to actualize inclusion.
When we make built environment accessible for all it benefits everyone not the disabled only.
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The cost of remaining mum on Kenyans living with disabilities and individuals with chronic illness Author Mugambi Paul

Research shows that most chronic illnesses can affect every single part of individuals life, but it doesn’t really look like it. Some chronic illnesses have constant pains and fatigue among individuals [WHO 2011].
On the other hand, I have engaged several individual in the social media platforms.
This has led me to learn several lessons
You might not know a person is suffering if you don’t communicate ]HI 2011].
I classify some of these individuals as having invisible disabilities.
This is to say invisible disabilities mean that often times,
people don’t believe that actually individuals can be sick. This leads to people saying common things that, despite usually having good intentions, can come off as rude,
dismissive, and ableist.

The one I’ve heard the most is something that has undoubtedly been said to every person with an invisible disability or illness – the dreaded ‘but you
don’t look disabled nor sick!’. This happens all too often as an offhand comment, but it’s also been followed by heartbreaking situations like eventually losing friends
who haven’t believed that chronic illness or having impairment was real because people don’t look or act sick in the way they think one should be?
So, to give you a bit of a crash course, here’s some examples of what NOT to say to people with chronic illness.

‘But you don’t look sick!’

Yep, I know – but I am. These five words reduce health down to appearance, which is not the case at all. You might be saying this with the best intentions
(hopefully shock, because someone look ~too stunning~ for someone who’s actually very ill) but what it actually does is hits on one of the biggest fears of chronically
ill people – that people don’t believe them.
Actually,
Personally, whenever someone says this, it just reminds me of the many times people haven’t believed I can’t see because I didn’t *look* Blind. You might mean it supportively,
but all I hear is doubt.
This is because am super in mobility and orientation especially in familiar territories.
Sometimes it’s an anxious moment for me when individuals with out disabilities just plainly discuss behind my back “look at him, he is just pretending, he is comfortable” not knowing I have to go an extra mile to orient myself, secondly he or she doesn’t know that I have to do it since I don’t have alternative.
Additionally, I note that Not all illnesses are visible.
I can guarantee you; every chronically ill person has tried absolutely everything they physically and financially can. I cannot think of one person who’s
simply said, ‘ah bugger, I’m chronically ill. I’m not going to bother trying things to feel better!’
Trust me, some have tried it all; all the doctors’ and specialists’ suggestions, and yes, a bunch of the tinfoil hat ones too (desperation and lack of medical
answers make for strange bedfellows).

Examples of suggestions of what my friends the blind community and other persons with disabilities have tried including: various supplements, Chinese herbs, marijuana, LSD, ketamine, essential
oils, drinking their own urine, crystals, B12 shots, spirulina, charcoal, detoxes and juice fasts, prayer and religion – the list goes on,
as a blind fellow you can guest which one of them, I have tried I’ll let you ponder on which).

And before you ask, yes
You have seen many disabled persons, the chronic ill persons going to work, or you saw a photo of one catching up with a friend on the weekend. That’s irrelevant to whether he or she look ‘okay’ to you now
He or she still remains ill, and he or she maintains his or her impairment since they do not disappear.
According to several studies they indicate the nature of chronic illness is, sadly, extremely can be unpredictable. One can have totally manageable levels of pain and fatigue one day, and barely able to
walk the next. Sometimes it’s because one accidentally overexerted himself and went over my limits, but sometimes symptoms flaring can be completely random.
If you find it annoying, just try to imagine how frustrating it is for individuals with chronic illnesses. Regardless, some have always sick and in pain – some days some are just able to manage
it (and hide it!) better than others.

‘You just need to snap out of it and push through.’

‘Pushing through’ actually makes someone, and many others with chronic pain and illness, worse.
In Kenya and other developing countries there is no particular policy framework addressing concerns of persons with chronic illnesses although a mention here and there on different framework.
Most families carry the burden of taking care of chronic ill individuals and this affects the economic and social wellbeing of the society at large. The resources used to trat could have been used for other functions [ILO 2017, undp 2016].
Its high time we have particular social protection measure to address persons who have chronic illnesses.
Moreover, one of the major experientials in the disability world and chronic illness which seems to be similar is the way the society expects us to push ourselves beyond our limits
Obviously its so great to push beyond limit but this doesn’t apply to all persons. What the society doesn’t understand persons with disabilities and individuals with chronic illnesses are not a homogenous group.
one is sick or disabled every single day, and know their body and their limits better than anyone – so telling one to ‘push through’ is actually
the worst possible advice. When you’re talking to someone with disability or a chronic illness, remember just because you’d be able to manage something, doesn’t mean
they can or should. Don’t assume someone’s health and limits for them. It totally removes their agency as a human being.
Besides having a disability some individuals might also be having chronic illnesses.
‘You’re too young to be sick!’ or sometimes for disabled persons they say woyee woyee how comes he is blind?

Yep! He or she is young! And sick or having a disability! It sucks. But sickness and chronic illness isn’t exclusively the domain of the elderly; people of all ages can get sick. The society needs to understand that Doesn’t
make their experiences less valid, or their identities abnormal. They just sick in a cool young person way, I guess. I don’t know – it’s a weird thing to
say, so just don’t.

‘If you stopped talking about it all the time and looked on the bright side, you’d feel better.’

I do! To be totally frank, as a blind fellow if I didn’t look on the optimistic side, I wouldn’t be alive right now. Being blind for 23 years now it’s not a walk in the park.
It takes strong will to be in this unjust society.
This also applies to other fellow disabled persons.
Needless to say,
Being chronically ill is also tough as hell, and many chronic
illnesses have strong ties to mental illness. One has to look on the bright side A LOT, otherwise their depression and just the daily battle of being sick
would drag one down and some can’t be able to get out of their beds.

All in all, people should be able to talk about their lived experience as much as they deem appropriate, and disability and chronic illness is not spoken about
enough. Let them vent, let us explain, let them talk about their day!

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Inside the Kenyan disability corridors of power Author Mugambi Paul

Over the past few years, the discourse agenda of many disabled Kenyans has been dominated by service delivery and public participation debate] Mugambi 2017] this is because both incredibly important issues. But amid these dominating subjects, have the voices of disabled Kenyans been hard?
Has Kenya improved its level of inclusiveness?
Globally, persons with disabilities are estimated to represent 15 per cent of the world’s population, but in many developing nations this percentage
can be significantly higher] world report 2011 UN enable 2011].
this is to say, population of 1.3 billion, disabled persons constitute an emerging market the size of China. Their Friends and Family add another 2.4 billion potential consumers who act on their emotional connection to PWD] Ilo 2017].
Together, PWD control over $8 trillion in annual disposable income] ILO 2016].
The aging Boomer population is adding to the number of the disabled daily. As Boomers’ physical realities change, their need and desire to remain active in society dovetails with the demands of PWD. This group controls a larger share of the national wealth than any previous generation. Does Kenya government know this?
Just like many developing nations Kenya is on automobile settings on matters disability inclusion.
Most public policies are well woven but poorly executed. This is quite evidenced by the rare and sometimes absence seen in leadership and decision-making roles, the visibility in
popular culture and media are low, absence of disabled representation in key policy decision organs and stakeholders, and recognition of the work as thought leaders and influencers is almost non-existent. What has been happening?
The Kenyan government has strongly concentrated on developing policies geared towards social safety nets. In other words, the Kenya government sees disabled persons as people who need care and do not deserve to contribute to the economy.
Debatably, if the Kenyan government could turn the coin, they would gain more tax collection from this single largest minority in Kenya.
This can be achieved once the government realizes and focusses on effective, first service and maximization of social assets] Whiteford 2018].
How will Kenya government meet the sustainable development goals 2030?
How will the vision 2030 be achieved?
How will the big 4 agenda be achieved?
The reality is disabled Kenyans have been left behind.
This has led to artist and disability activist to start to compose or entertain with the song “do not live us behind”
As evidenced in twitter tags and music.
Moreover, The work of the disability rights
movement often consists of them highlighting their absence from the public domain.
In other words, most regulations and legislation on disability are still shelved in the cabinet. this has led to continuous charity model of delivery of service with out clear roadmap towards right based approach. This is affirmed by the implementation of education policy practises etc
Needless to say, its popular for public and private organisations to claim that they are being inclusive, yet retention rates remain low for disabled people in most organisations, with very
few moving into positions of leadership or responsibility.

I observe, A key factor in understanding inclusion is that it lies in the eye of the beholder. Many organisations have good intentions on inclusion, yet their staff
members from minority groups don’t feel comfortable and leave within a short period. For other organisations inclusion is a reality, so long as everyone
fits in and conforms to company culture] eddy robber 1988].

It’s very easy to say you are being inclusive, it’s another matter to be viewed as being so by those who are the target for being included. I don’t want to sound like a broken glass “why should someone claim his or her organization, yet a disabled person can’t access a toilet?”
According to my findings Most people mean
well, but they forget their unconscious behaviours. Very few people are comfortable with stepping back to allow a person from a minority group (like a
disabled person) to take an opportunity over themselves. Even fewer seem comfortable with a disabled person being their supervisor.
Could this be one of the reasons of the low rate employment recorded by Kenyan public service report
in 2015?
There are those who consider inclusion to be not “seeing” a person’s difference. This isn’t inclusion, its assimilation.
There isn’t much point in having disabled employees to your team if they aren’t valued for their contribution. This seems like an unnecessary thing
to say, yet social media has heard many stories about disabled staff who are never sent the documents in a format they can read
and work on, or aren’t given time to hear what is happening via their interpreter, and even highly experienced employees who are never given the opportunity
to speak and share their views. They are, quite literally, token appointments.
As a public policy scholar and with lived experience on disability, I affirm that the focus must shift from charity model and have accommodation to a plan focused on specific actions to attract customers and talent in disabled persons markets.
Even the available market opportunities for the disabled are being snatched under our noses.
Why aren’t we represented in many government bodies?
Who is supposed to audit the leadership gaps in the disability sector?

All in all, many disabled people work in invisible ways, shifting ground from within existing business and government structures. This work is just as important, just
as necessary, as the work of those who use the public domain to challenge assumptions and perspectives on disabled people. Internal institutional barriers
need to be addressed as much as social assumptions and social policy. Without taking our place as 15% of Kenyan employment and leadership we won’t be in a position to
challenge the ableist structural barriers which deny an equitable disabled presence across the public and private domains.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Why disabled academicians in Kenya have botched the fellow disabled! Author Mugambi Paul

Approximately 15% of the world’s population lives with some form of disability, according to a 2011 World Health Organization report.
Its expected by July 2020 the Kenya bureau of statistics will author new numbers.
Going by the world report and UN estimate we are 6 million with disabilities.
Historically, Disabled persons worldwide have become conscious
Of their rights] un 2018].
for instance, for disabled Kenyans in particular, decolonization held additional possibilities and potential. National independence promised
not just majority rule but also an all-inclusive citizenship and the commitment to social justice. Among the blind and visually impaired of Kenya, such collective
aspirations led to the birth of the Kenya Union of the Blind in 1959. In 1964, after years of futile correspondence with government officials, the Union
organized a street march to the prime minister’s office to attract attention to its grievances. The result was a government panel, the Mwendwa Committee
for the Care and Rehabilitation of the Disabled, whose published report became the blueprint for social and rehabilitation programs.
More importantly, in the early 90’s evolution of disability persons organizations led to high demand for government to put in place legislative measures.
Therefore, Kenya was not left behind and thus a formation of a taskforce in 1993by the longest serving attorney general in Kenya Mr Amos Wako.
It seems to be a torturous journey to achieve mere policy or regulations concerning disabled Kenyans.

Moreover, it took 10 years to have the persons with disabilities act of 2003.
This seemed to be an act of charity just because the then president Kibaki had joined the club [Eddy Robert 1874]

Unfortunately, even to date the national disability policy still remains in draft format!
Where did we go wrong?
Academicians with disabilities are strangely not in the scene.
To put it differently not much academic research has been conducted.
the Kenyan disability discourse need to be changed by scholars.
I observe that researchers need to establish what has worked in promoting disability right in Kenya.
What circumstances ensured change of policies or regulations?
What are lessons learnt?
The current dispensation of the disability agenda is either led by disability elitist, technocrats who are either nor committed to the realization of the disability inclusive agenda.
Other stakeholders are disabled persons who have wealth of lived experiences and who most have pursued different careers other than contributing to this discourse.
Should disabled academicians continue being at the periphery?
What’s need to be done:
As scholars with disabilities and who have lived experience of disability we need to where the academic lenses and fertilize the disability agenda in Kenya.
There exists lots of gaps which I believe can be addressed by research and can shape the public policies intended to serve persons with disabilities.
Am not surprised that Kenya has not yet understood which model of service to pursue. Either the current model of charity which has contributed to the disempowerment of disabled persons in Kenya or the social model which empowers and enables the disabled persons to make their choices and live in dignity.
Additionally, the definition of and understanding the path to pursue on it her disability inclusion or special needs is an area yet to be resolved.
As a disabled person who is a Blind and also a scholar, I wouldn’t like the notion of imagining that a certain entity or institution owns any disabled person.
The truth of the matter we us disabled person were born free it’s the society which has chained us. I am a believer in disability inclusion therefore I do not expect disabled to be directed or lamped into a single source of service delivery.
Best practise:
I assert with the new executive order by the interior ministry on issuance of passport, national identity card and birth certificate of ensuring Kenyans get within one day model,
This offers a rare of hope and should spread to all government entities for effective service delivery.
More importantly, disabled Kenyans have been marginalized in many fronts more especially in getting relevant documentation.
Are we expecting change?
The Kenyan society needs to affirm that all services need to be inclusive as much as possible.
In other words, the different stakeholders need to acclimatize with the reality that Kenyans want effective, easy and accessible service delivery.
This will aid towards meeting realization of vision 2030, sustainable development goals and the global commitments 2018.
Through search processes we can have lots of contribution in having a new dispensation of disability in Kenya.
Nevertheless, with achievement of great strides, the best practises which might arose from implementation of the new directive by the ministry of interior can facilitate the improved versions of regulations targeting disabled persons.
On the other hand, As I had said in my previous articles the reappealing the 2003 act will take place in 2021 and it seems my words will pass.
All in all, academicians with disabilities need to rise up and contribute to the direction and shape the opinions of transforming Kenya.
This can be done in different models and mediums.
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Should the disabled Kenyans stop be being in Automobile state? Author Mugambi Paul

Majority of Kenyans still see disabled persons as objects of pity. I believe with a collective paradigm shift of mindset we can do it [UNDP 2018]. With the new decade we can stand up and say no to discrimination and harassment of disabled persons. [UN enable 2019]
needless to say, as a totally blind person myself, I am all too familiar with such dehumanizing treatment. Often disabled individuals are treated differently, simply because we look, act, move or communicate differently. But should our differences, stemming from disabilities that we did not choose, be an excuse or justification for others to treat us as lesser individuals?
Unfortunately, many of us, the disabled Africans keep silent as this evil is perpetuated.
This is done by either family members, friends, employers and even in the public spaces.
In liberal democracies, citizens have the right to equal treatment under the law, which means that governments should not differentiate among people without good reason to do so. This is known as the principle of non-discrimination.
That’s because true equality requires a government to actually dismantle structures that perpetuate group disadvantage, either by providing preferential treatment or special protection to those on the wrong side of invisible barriers.
During my tenure as a student leader at Kenyatta university we pushed the policy agenda for affirmative action in university admissions for students with disabilities.
although we din’t get to enjoy the fruits of our advocacy.
Am grateful that the future generation of students with disabilities from 2010 din’t have to pay the price. there were great lessons.
Search as not everyone understand the journey for social justice.
Secondly as a leader you have to sacrifice for the people you lead.
camping at Professor Jude Ong’ong’a and professor Katana DVC academics and registrar academics respectively, was the order of the day.
This was to ensure no disabled person misses the exam card.
With this not withstanding the employers in both public and private sectors in Kenya need to borrow a leaf.
None of these preferential treatment policies are a magic solution for ending group discrimination and segregation, but without affirmative action policy the number of students with disabilities in both public and private universities would be far less than they are today.

On the other hand, In Kenya we have lots of disability awareness campaigns which have highly been of great improvement in the area of advocacy.
In other words, at list the mainstreaming media and social media in Kenya has highly contributed to the improved changes not like when we were starting fighting for disability space.
Additionally, we used to be chased like wild dogs when we approached media gates and other public spaces as we sort for services.
It seemed all along Blind persons were associated with begging thus the maltreatment.
Thanks to the UNCRPD the tide has really changed though we still have a long way to realize the dreams of our forefathers like EDDY Robert of the famous quote “Disability is a club.”
The reality check on Kenya is that we have adopted a more contemporary position on disabilities with accompanying policies and legislation, the general population remains rooted in the medical/charity model of disability.
I can site many examples of how Kenyans see the disabled as objects of pity who require sympathy, help or fixing. These interactions dehumanize and segregate PWDs. When one lives solely in a world of handouts and tokenistic gestures of goodwill promoted by corporate social responsibility initiatives, no dignity is earned, nor will any respect be gained.
For instance,
as a Blind artist and also a professional diversity and inclusion expert many a times people want to pay less for my works in comparison with non-disabled persons [Riayan 2019].
Sometimes with out blinking they demand to be offered service for free.
You really wonder if a blind artist and consultant uses free energy and free provision of his or her needs in his or her life.
Another example is the corporate who allege to organize support for assistive devices or marathons. Do these events actually sustain the disabled persons? Do the activities benefit a few individuals with disabilities and then sing Hosana?
I vividly remember how a vision impaired was almost being lynched at a Muhindi shop in town. This incident happens when he was checking the prices of bags and shoes.
The owner thought the vision impaired individual was a thief.
As long as the disabled are viewed as lesser or alien, dehumanizing incidents like the one we experienced at the media gates, will continue to be a common occurrence. Many incidences of disability-related harassment and discrimination have gone, and will continue to go, unchallenged. Despite protective legislation, sadly, little can be done to address the dignity that has been willfully trampled upon.
As a public policy scholar, this leaves me to conclude that decency and respect for a fellow human being cannot be regulated through legislation alone.
I recognize and appreciate that my views on such matters are not
widely shared by everyone in disability movement nor in our society. I acknowledge
that there are many traditions in our society which reflect different
experiences and perspectives than my own. All the same, I am proud to be
guided by a strong code of conduct that embraces diversity with respect for
divergent differences of opinion, beliefs, identities, and other
characteristics. What I stand for demonstrates that as a blind person am from a diverse cross section of society.
As a global citizen who happens to be blind, I have had the privilege of travelling to many different countries. Of the many that I have visited, Australia and Israel stood out the most. Perhaps due to their experiences and effective implementation of the disability policies.
. In my many visits, I have yet to be discriminated against. I have been treated not only with dignity but have always been offered help respectfully
when needed.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

A letter to Louis Braille from Blind compatriot and Author Mugambi Paul.

Lon post alert.
Happy birthday Louis Braille. You are 210 years.
I celebrate your courage and hope that you bestowed upon the Blind, vision impaired, Deaf Blind and other interested sighted counterparts.
You invented a language which has ensured that we aren’t beggars on the Kenyan streets.
You ensured am not a Cobra a story for another day when underestimation was the order of the day.
#Soyinka Lempaa
Imagine am your cobra would you bring your shoes?
# Tshrooh Benz Mamake Ozil would you cofee me?
Or you shall be the best and enjoy my company like #njeri Kinuthia Hinga?

I pay tribute to you for ensuring we the “Blind” do not become illiterate.
It took 200 years for the United nations to have this commemoration. World Braille Day is observed to raise awareness of the importance of Braille as a means of communication as a full realization of the human rights of the blind and vision impaired persons.
More importantly, Sighted crusaders in this era of digitalization would like to see “Braille” become extinct but as for me and by “Tribe mates” we won’t allow.
We shall continue to demand for alternative mode of communication as enshrined in the article 7 of the Kenyan constitution and article 9 of the UNCRPD.
Even if we receive 2030 vision braille copy in May 2019 while the rest of the country read for themselves in 2008.
We shall not relent.
Article 21 of the UN Convention on the Rights of persons with disabilities obligates member states to ensure that information intended for the general public is in
accessible formats such as braille, and as per article 24 of the CRPD countries are to ensure that in the education system, students who are blind receive
their education in the modes that are most appropriate to their needs, such as braille from educators who are fluent in braille.
Why should the sighted dictate what the Blind and vision impaired language should be?
Imagine if the whole country would be Blind.
All of us would use braille! Big 4 agenda will reach the blind 2025.
Just like you back in our compass days we had to memorize what was being taught or read by Mighty volunteers at Kenyatta university.
Am grateful for those heroes and heroines who were our volunteers.
In other words, am yet to understand how we the “Blind” survived the hardship of the Kenyan education system.”.
Am not being proud here
Many blind and vision impaired persons passed with flying colors and defeated the sighted counterparts who had all access to information.
Imagine if we had equal opportunities what can the Blind and vision impaired persons do?
to say the truth sir Louise Braille many of Blind and vision impaired persons are either teachers or beggars in Africa.
It’s sad to say as the sighted teachers get free teaching aid the blind and vision impaired teachers have to buy braille copies. For those who decided teaching is not their cup of coffee like me this is one of our daily struggles.
No wonder most Blind and vision impaired persons are poor than our counterparts.
This electronic braille device am using today costed arm and a leg while you the sighted counterpart bought a kabloti somewhere in Juja.
Shall we be equal really?
Back to history, the braille system began to spread worldwide in 1868 when a British group, now known as the Royal National Institute for the Blind, promoted braille’s
acceptance. Eventually braille swept the world and brought literacy to the blind in every language.
Although in Kenya not many blind and vision impaired have access to braille or even information.
Marking the centennial of Braille’s death in 1952, the French government proposed relocating your grave from your hometown of Coupvray to The Pantheon in
Paris, where many of France’s most important historical figures are interred. Braille, however, you had requested that you be buried in Coupvray, and the town’s
officials were reluctant to let your body be taken away. So an unusual compromise was struck. Most of your earthly remains were entombed at The Pantheon,
but your hands remain buried at the Church Cemetery in Coupvray.

I promise to visit your historical site so that I will cool my nerves.

Unfortunately, many of Blind and visually impaired persons globally are currently facing
several great problems specially for survival of their existence in
society due to adopting highly negative attitude by concerned
Government authorities in Kenya at national and county levels.
But, in the end, all of us will surely win this battel for survival
for our existence. We shall never forget you. Your legacy on this language lives on.
I hope and trust the newly blinded and vision impaired persons present, and future will join this battle.
What is Braille? Braille is a tactile representation of alphabetical and numerical symbols using six dots to represent
each letter, number and even symbols. Braille is essential in the context of education, freedom of expression and opinion as well as social inclusion as
reflected in article 2 of the Convention on the Rights of Persons with Disabilities.
My dream as public policy scholar and braille consumer is well articulated by my friend #Christine Simpson, “Braille is now more widely appreciated and understood across the community. We see braille included on street signs in many cities; on lift buttons; on
directional signage at transport hubs and in many larger buildings; on pharmaceutical product labels; and increasingly at tourist attractions, museums
and other places of public interest. The portability of braille available thanks to braille enabled devices has also made braille usage more appealing
to students and those who need to access information while on the move.”
At list for the reader today know that in braille language A is written as dot 1.
B is written as dots 1 and 2.
C is written as dots 1 and 4.
The comment box is open.
Join me in opening and shaking the Blind concoction to celebrate this special day.

Why the disabled Kenyans should stop word romancing in quest for inclusivity. Author Mugambi Paul

Image

Over the past few months, Kenya social media sites within the disability sector has been filled with romantic words of how we us disabled persons should be defined.
Many of the social media users argued for or against the statement “persons living with disability”
Putting my scholarly lenses, I will fall into the trap of using legal instrument.
This is evidently best settled by the clear definition which is quite elaborate in the UNCRPD.
It begs the question whether I live with my impairment or not. Does this really matter?
The pertinent response should be if as and individual or group we are receiving efficient, timely service delivery.
This matter of romantic wording should stop instantly and let focus the energies towards demanding for more improved service delivery in both public and private sectors.
As a matter of fact, the disabled in Kenya are too euphemistic and this clearly waters down the advocacy agenda.
As a public scholar and also a consumer of disability services have put the shoes and thus found to jot my reflections.
This is well informed by the virtue of Some discriminatory experiences
I have encountered within the Kenyan public and private service provision.
I observe there are allot of grey areas we need to focus.
For instance, accessible communication and information, transport provision for disabled persons, inclusive education, demand for employment opportunism etc.
I opine that the Kenyan disability sector has lost its way by being caught
up in politics and the self-interest of higher-ups. As [Peter 2019] affirms the disability sector can redeem itself.
Several reforms need to take place in order to assure and uphold the rightful place and a just society for the disabled in Kenya.
There is a plausible and workable solution
within reach to overcome many of the failures and inefficiencies of disability service provision, and these solutions should be grasped with two hands so that we
can turn this around.
For example, if a follow up response for last year’s open letter on my blog would have changed the narrative.

“Open letter to the Newly NCPWD chair” Mugambi Paul


to put it differently, disabled persons have solutions to the obstacles they face on a daily basis.
“we are the drivers of our destiny”
More importantly, Kenya made several global commitments in 2018.
This has seen several initiatives being pursued by government, international non-governmental organizations, private business sectors and disabled persons organizations.
According to my web-based research most entities in Kenya performed well in meeting their obligations but is this impact felt on the ground?
needless to say, the disabled persons in Kenya have a responsibility of accountability by asking.
Are these global commitments being implemented to achieve the said target population?
Are the global commitments made by Kenya in line with the Complies with its Obligations Under the CRPD?
Are tangible outcomes being experienced by disabled persons at the grassroots?
Success story
Moreover, beyond individual organizations’ progress against their commitments, there is evidence by ministry of labor in Kenya that Global disability commitments has had a wider impact in raising awareness, and increasing
prioritization, in relation to disability inclusion. For sure, disability inclusion as key to achieving the Sustainable Development Goals.
some of the ministry of labor success story include:
Launch of the National Action Plan on the implementation of the Global Disability Summit Commitments 2018
Development and an advocacy toolkit that will be used to strengthen dignity and respect for all.
Lastly, Establishment and launch of the Inter Agency Coordinating Committee to coordinate and monitor the implementation of the National Action Plan on the
implementation of the Global Disability Summit Commitments 2018. On the other hand, much needs to be done
by the consortiums in the non-governmental organizations.
most of them are still grappling with teething issues and set ups.
We hope in 2020 more research and global commitments outcomes will be felt on the ground.

According to June 2019 Kenya investment report and state social enterprise reports they do not have any reference to inclusivity aspect of disabled persons.
The report just mentions the term disability only in the reference of the social protection aspect of the Uwezo program.
This literally shows Kenya still has a long way towards getting proper participation of persons with disabilities and inclusive reporting.
All in all, the disabled a person and their organizations need to enhance the collaborative accountability mechanisms which will aid towards the realization of achieving the global commitments.
The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

Untold success story of the Cash transfer programme in Kenya Author Mugambi Paul

Rising inequality isn’t a new concern. Many countries in the global are facing this phenomenon.
Oliver Stone’s movie “Wall Street,”
with its portrayal of a rising plutocracy insisting that greed is good, was released in 1987. But politicians, intimidated by cries of “class warfare,”
have shied away from making a major issue out of the ever-growing gap between the rich and the rest.
The best argument for putting inequality on the back burner is the depressed state of the economy. Isn’t it
more important
to restore economic growth than to worry about how the gains from growth are distributed?
I will look at the social protection aspects in Kenya and how it has contributed to changing the lives of most vulnerable persons in the society.
Secondly, I will strive to highlight the misgivings of the global commitments.
To begin, the 2019 to 2020 Kenyan Budget raised the issue of implementing a Single Registry for all social protection programmes. This will improve the coordination of social
protection programmes, which have been highly fragmented leading to numerous inefficiencies. According to the social assistance project the ministry of labour and social services will highly improve the outcomes of the social protection programme by having the 3 cash transfer programmes in one registry. This is a great move which will reduce the flows experienced in the systems.
However, the Registry should not only create a data base of
beneficiaries from all programmes but should also track beneficiaries until they are able to graduate. As a public scholar I recommend the Ministry of labour and social services and its partners should develop A strategy for non-labour
constrained households who have the potential to graduate to entrepreneurship and gainful employment. This will help in eliminating increased dependency
on social safety nets.
Secondly, the government of Kenya has scaled up the uptake of the universal health cover though not much has been discussed on the inclusivity of disabled persons to this well intended programme.
However, Today, the risk of childbearing related deaths has become rare among Kenyans mothers. Infant deaths have also declined significantly, while more children
can now live beyond their fifth birthdays than before. Although non-communicable diseases are emerging and threatening the health of many people, the health
system has grown stronger and more resilient to be able to eliminate this threat. The county and national government need to enhance the human resource capacity in the health sector and reduce the cost of health by also adapting a single registry in both public and private hospitals which all the medics can access under privacy laws of the clients with out incurring extra charges as in the current situation. another aspect of promoting well being of citizens is the availability of water supply.
Scaling up urban projects to improve water and sanitation
The state of water and sanitation in Kenya is worryingly poor. Urban areas are prone to water borne diseases that break out almost every year. Recently,
Kenya experienced a Cholera outbreak that claimed more than 56 people, with the majority being Zin Nairobi.
is December 2019 Kirinyaga county is adding to the statistics.
Accordingly, the allocation to water and sanitation in the 2019 budget allocation was increased. in 2019. This is the highest level in five years, and though the nation has fiscal limitations, the allocation is justifiable to address water issues and
prevent disease outbreaks in the country. Despite the usual concerns on disbursements from the national treasury to the counties, the 2019 budget shows improvements, as 45% of the approved budget
was disbursed as of October 2019, compared to 2018 financial year. With such improvements, Kenya will be able to address its water and sanitation
problems in 2020.
On the other hand, the floods experienced in Kenya in November 2019 could have saved Kenyan millions of shillings if the ministry of water and irrigation had proper mechanism of conserving the rainwater.
Instead of the havoc caused and 152 lives lost we would have seen more water reservoirs being put in place.
The more challenging factor on this is that a dry spell will be kicking off and more request for food donation will take place as evidenced by the support by United states of America
https://www.nation.co.ke/news/Kenya-receives-Sh340m-food-aid-from-US/1056-5396952-egea2j/index.html

additionally, Social protection programmes have led to Kenyan households being able to afford more than one meal a day, achieve more diet diversity, afford more shoes
and clothes for their children, attain some level of education, and empower small scale farmers. However, recently there have been concerns among stakeholders
regarding the administration of these programmes, which the Government should aim to adequately address. These efforts should help reinstate donor confidence
in the administration of these programmes.
All in all, the government of Kenya has highly enhanced the development of well-crafted legal frameworks which now need to be executed for the benefit of the most marginalized and vulnerable members of our society.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

What the Blind and vision impaired Kenyans can learn from south Africa. Author Mugambi Paul

Blind SA (South Africa) is an organization of blinds for the blinds in
South Africa
as most of top functionaries are visually changed persons. Launched as the South African Blind Workers Organization in 1946 to help the blind in finding
careers of their choice, it was renamed as the
Blind SA
in 2004.

According to an estimate of the
World Health Organization
(WHO) about 15 percent of people in
South Africa
are living with disability out of which 60 percent are visually impaired. In absolute terms about 250,000 children in
South Africa
are blind or visually impaired for whom only about two dozen schools are available. The
Blind SA
is dedicated in developing
braille pages
to facilitate visually challenged persons particularly children and youths to learn and live a meaningful and productive life. Besides, it also conducts
sensitization programmes, skill training and placement facilities for the visually challenged persons.

In an interaction with Devdiscoruse, the CEO of
Blind SA,
Mr. Jace Nair tells us about the challenges for the blind people and his organization’s efforts to make their lives easier.

Q.1. What are the main areas of operation of your organization?

Nair: Empowering blind and partially sighted persons to live a meaningful and economic productive lifestyle is the main objective of Blind SA. We are primarily
engaged in advocacy which involves commenting on policy and legislation, access to ICT, access to financial services and banking, access to Education &
ECD, access to employment and
Economic Empowerment
(EE), access to government services such as health, social security, housing and public transport.

To achieve our objectives, we conduct self-representation, production of accessible publications in braille script, daisy and audio, training in braille
and orientation and mobility, entrepreneurial and small business development, placement, skills program and employment in the public and private sector.

Q.2. How, according to you, your organization is contributing to achieving any one or more SDGs?

Nair: The visually challenged people are among the most vulnerable groups in society across classes, genders and communities. We are dedicated for their
overall empowerment. In this way we are contributing to the achievement of several
sustainable development goals
(SDGs). They are No Poverty (SDG1), Zero Hunger (SDG2), Good Health and Well Being (SDG3), Quality Education (SDG 4), Gender Equality (SDG 5), Decent
Work and Economic Growth (SDG8), Reduced Inequalities (SDG 10), Peace, Justice and Strong Institutions (SDG16) and Partnerships for the Goals (SDG17).
This is achieved by the programmatic and advocacy initiatives.

Q.3. So far, what are the main achievements of your organization in line to the
SDGs
set up by the United Nations for the year 2030?

Nair: We have produced over 1.4 million
braille pages,
trained over 400 facilitators in braille, trained over 100 persons in orientation and mobility and trained 14 persons in small business development. Besides,
we also held 4 events for accessible, safe, affordable and integrated public transport for blinds in association with the SA’s national Department of transport,
four municipalities and Gauteng Province to create awareness for blind commuters and the use of the white cane.

Q.4. What are the recent initiatives of your organization has made in line to the SDGs?

Nair: Empowering blind and partially sighted people through programmatic initiatives are our prime focus. In the year 2018-19, we made a presentation and
conducted sensitization programs in 56 companies and four job placements. The beneficiaries of various categories include NSF project (88), Braille Training
(149), ETDP SETA (50), CoJ Projects (30), Study Bursary Project (55), World Read Aloud Day (14) and 645 learners.

Q.5. What is your strategy for further expansion of your organization?

Nair: We aspire to re-affiliate with the
African Union of the Blind,
World Blind Union
and Internal Council of the visually impaired. Besides, we are also working for a greater role in
SA Disability Alliance
and SA Braille Authority.

Q.6. Where do you want to see your organization by 2030?

Nair: By 20130, we aspire to emerge as a leading national disabled people organization in
South Africa
leading the mainstreaming of disability for blind and partially sighted persons.

The views expressed here are for the author and do not represent any agency or organization.
Mugambi Paul is a public policy, diversity, inclusion and sustainability expert.

The future of poverty policy Five years of momentum must not go to waste Guest Author SHARON BESSELL

New ways of measuring and tackling poverty are making crucial progress, but the scale of the problem is large, and many challenges and negative trends remain. Addressing these will be crucial to ending poverty, Sharon Bessell writes.

In 2015, world leaders agreed to the Sustainable Development Goals. Goal 1 is to end poverty in all its forms everywhere. This marked a significant shift in global policy, refocusing poverty alleviation strategies from income alone to a far broader set of issues.

So how far have things come in the past five years as policymakers, service deliverers, and activists grapple with the challenge of ending poverty in all its forms everywhere? Three trends are worth considering as the new decade dawns.

First, in terms of global priorities, Goal 1 signals a welcome shift. There is no doubt that increasing incomes among the poor is critically important, and must remain a priority – both globally and within countries.

Equally, it is important to recognise that low income is not the only characteristic of poverty. The structural barriers that prevent individuals and social groups from moving out of poverty reflect deep-seated inequality and discrimination that are unlikely to be dismantled by a marginal increase in incomes.

Similarly, poor quality of health care, education, and other essential services available to many are the product of insufficient and unequal public spending and investment. Individuals need very large increases in their income to be able to buy higher quality services – and such purchases may never be possible for those who are excluded due to discrimination and stigma.

More on this:Mapping deprivation across lives
As the global definition of poverty has broadened to include dimensions beyond income, an important development, policymakers have improved their ability to measure multidimensional poverty.

The Individual Deprivation Measure is a powerful example of how poverty measurement is being rethought.

It allows decision-makers to include in their understanding of poverty access to and quality of essential services, its non-material dimensions, like voice and social relationships, and intersectional analysis that reveals which social groups are being left behind.

Central to new approaches is a recognition that poverty cannot continue to be measured at the level of the household. An important step forward came in 2016 when the World Bank initiated the Global Commission on Poverty, which stated that decomposition of household-level data is simply insufficient – poverty must be measured on an individual basis.

Debates about how to measure poverty are not simply a theoretical exercise with little practical relevance, they matter deeply and determine a response. When the multidimensional nature of poverty is in the picture, policymakers are better able to identify and respond to structural barriers, deeply entrenched discrimination, and services that continually fail the poor.

When poverty is measured at the individual level, policy can move beyond the already discredited idea that resources are shared equally within a household. Decision-makers can better identify which social groups are most disadvantaged and why. Governments and service providers are able to respond on the basis of evidence.

The second trend occurring globally is a steady decline in extreme poverty – measured as those living on less than $1.25 prior to 2015, now revised upwards to those living on less than $1.90.

In 1990, 36 per cent of the world’s population lived in extreme poverty. By 2010, that figure decreased to 16 per cent, and by 2015 was at 10 per cent. At the end of 2018, the World Bank observed that extreme poverty was at its lowest level ever.

More on this:Poverty, homelessness, and welfare
This is a remarkable achievement. However, two issues must be kept in mind. First, the international cut-off for extreme poverty is very low. If it were increased to just $3.20, one-quarter of the world’s population would be living in poverty. A little further – to $5.50 – and 46 per cent of the world’s population would be defined as poor.

While great progress has been made, we cannot afford to be sanguine – the misery of poverty still affects half of all people around the globe.

In many countries, those who remain in poverty are those who are hardest to reach. For example, in Indonesia, poverty based on the national poverty line dropped below 10 per cent in 2019.

While the significance of this milestone should not be underestimated, in terms of numbers, 26 million people remain below the very low national poverty line.

For Indonesia, the greatest challenge remains. The most severely marginalised people – those hardest to identify and hardest to reach – are yet to move out of poverty. This is reflected across the region and the world.

The third global trend provides a less optimistic story – and one likely to undermine the achievements of recent years. It is a story in two parts.

First, the record of some of the wealthiest countries in addressing poverty in all its forms over the past five years is dismal.

In Australia for example, one in six children live in income poverty. In the United Kingdom, where government spending on children has fallen dramatically in recent years, child poverty is at 30 per cent. The apparent preparedness of wealthy countries to abandon efforts to end poverty is alarming.

It is even more so considering the apathy of these countries towards the global shift to assessing multidimensional poverty, rather than income alone, a change that has generally resulted in poverty measurements moving up to reflect reality. If the multidimensional nature of poverty in these countries was measured and included the stigma and shame that is created by unjust policies, these figures would be far worse.

The second part of this story is the failure of leaders to seriously address the climate emergency. Without action, new groups will be plunged into poverty and achievements in reducing global poverty could go into reverse.

Over the past five years, there have been positive trends in addressing poverty around the world. The adoption of ending poverty as a global goal, the shift towards multidimensionality in both assessments of and responses to poverty, the recognition that poverty must be assessed at the individual level, and the continuing downward trend in extreme income poverty globally are all great achievements.

However, they are countered by deeply disturbing trends, especially in wealthy countries, and the link between the climate emergency and poverty. These challenges must be addressed, or the last five years of progress may go to waste. If they are not addressed, it will amount to simply abandoning the most vulnerable to their fates, and settling for a world that is divided and deeply unjust.

Sharon Bessell
Dr Sharon Bessell is the Director of the Children’s Policy Centre in Crawford School of Public Policy, and the ANU lead on the Individual Deprivation Measure Project.

Blind girl banned from using cane at school due to Health & Safety

A blind girl has been banned from using her walking cane at school because of “health and safety issues” – in case she TRIPS up teachers and fellow pupils.
Lily-Grace Hooper, seven, suffered a stroke when she was just four days old, which left her virtually blind. But earlier this year a charity donated her a fibre-glass walking cane after her confidence soared when she started using cardboard tubes to help guide her way at home. But her mum Kristy, 38, has been left “absolutely livid” after a risk assessment done on behalf of the school said the cane caused high risk to people around Lily-Grace. Hambrook Primary School in Bristol told her not to use it in school, and the report suggested she have full adult support at all times, and she was told to “walk carefully”.The move by the school and the Sensory Support Service – which does assessments for schools – has been slammed by charities.Furious mum Kristy, from Bristol, said: “It is a disability, but I want to celebrate it and make sure she can become independent. “When the school told me she can no longer bring her cane into school, I just thought this must be health and safety gone mad.


In Africa Blind and vision impaired children are denied the opportunity to access education.
The most approprieate solution is to send the vision impaired and blind kids to what people call special schools.
This is a great violation of the inclusive education aspects as per the article 24 of the convention on the rights of persons with disabilities and goal 4 of the SDG’s.
I observe that much needs to be done in order to achive the said tarets.

A new treatment promises to make little people taller. Is it an insult to ‘dwarf pride’? Guest author Damian Garde

Scientists have come up with a drug, injected once a day, that appears to make children’s bones grow. To many, it’s a wondrous invention that could improve
the lives of thousands of people with dwarfism. To others, it’s a profit-driven solution in search of a problem, one that could unravel decades of hard-won
respect for an entire community.

In the middle are families, doctors, and a pharmaceutical company, all dealing with a philosophically fraught question: Is it ethical to make a little
person taller?

The most common cause of dwarfism is known as achondroplasia. People with the condition, caused by a rare genetic mutation, have shorter limbs and shorter
stature than those without it, and they deal with a lifetime of skeletal issues that often require a battery of corrective surgeries. For years a U.S. company called BioMarin Pharmaceutical (
BMRN)
has been developing a drug that targets the genetic roots of achondroplasia, a mutation that stops cartilage from turning into bone. The goal, according
to the company, is to prevent the medical complications associated with achondroplasia, which include sleep apnea, hearing loss, and spinal problems.

But proving the drug’s long-term skeletal benefits would require a decades-long study, which is an expensive and, to BioMarin, impractical proposition.
Instead, the company is measuring the the most immediate byproduct of bone growth: height.

And that’s where the philosophical schism begins.

For thousands of little people, the short stature that comes with achondroplasia is not a disability in need of treatment but a difference to be celebrated.
Organizations like Little People of America have spent years dispelling stereotypes, advocating for fairness, and pointing out that having achondroplasia
doesn’t preclude anyone from a fulfilling life. Dwarf pride means flourishing because of one’s body, not in spite of it.

Through that lens, the drug looks to some like a threat of erasure, a so-called cure for people who are not sick. Furthermore, about 80% of babies with
achondroplasia are born to parents of average height. That means, if the drug goes on to win Food and Drug Administration approval, the decision of whether
to give it to a child would often be made by people with no exposure to little people culture, who know nothing of dwarf pride.

“People feel like this is an effort to eliminate the dwarfism community,” said Becky Curran Kekula, a disability advocate and motivational speaker who
was born with achondroplasia. “Some say this is going to help things get better, but how could someone know?”

There is no consensus. Where some little people see the drug, called vosoritide, as an affront to their identity, others wish it had existed when they
were children. Parents, too, speak of it either as a source of hope or a danger to their child’s sense of self-worth. Online discussions of the issue often
grow heated. Some people contacted by STAT declined to speak on the record for fear of inciting a backlash.

There is, however, little dispute over what the future holds. Vosoritide is on track to win FDA approval, leaving all parties to prepare for a world in
which height is a matter of choice.

BioMarin’s work in dwarfism starts with the genetics.

In 1994, scientists at the University of California in Irvine traced achondroplasia to
a gene called FGFR3,
which regulates bone growth. In people with the condition, they discovered, that gene is mutated, impairing the natural process of turning cartilage into
bone.

About seven years later, researchers at Kyoto University in Japan demonstrated that a protein in the body, long studied for its role in heart function,

seemed to reverse the effects
of that broken gene. The natural version of that protein, called C-type natriuretic peptide, gets cleared out of the body in about a minute, making it
useless as a medicine. But, over about a decade of scientific trial and error, BioMarin came up with an analog called CNP39, a longer-lasting version that
it believed could counteract the genetic mutation and restore healthy bone growth. The result was vosoritide.

Trending Now:

Do large pharma companies provide drug development innovation? Our analysis says no

So far, the drug looks like it works. In a clinical trial enrolling 35 children with achondroplasia, the highest doses of vosoritide helped kids reach
growth milestones 50% faster than they did without treatment. Compared to baseline, those children grew roughly two extra centimeters each year, bringing
them nearly in line with their average-heighted peers. The side effects were mostly mild, including irritation at the injection site, low blood pressure,
and fever. The results were published
in the New England Journal of Medicine
last summer.

BioMarin started a larger, placebo-controlled study in 2016, enrolling more than 100 children between 5 and 14 in a trial expected to conclude later this
year. If it’s positive, the company will submit the results to the FDA in hopes of winning approval. As before, the primary goal is increasing growth.

“But aspirationally, what we’re all hoping to see is not only do we increase height but we improve the quality of life and the clinical morbidities that
these patients suffer from,” said Dr. Jonathan Day, BioMarin’s executive medical director.

Achondroplasia affects the growth of all but a few bones in the body, not just the ones associated with height. That means vosoritide’s benefits, while
most observable in terms of height, would in theory translate to the spine, where achondroplasia’s most dangerous side effects take root.

That will take years to prove, Day acknowledged. He has heard the concerns about the emphasis on height, about the existential implications for adult little
people. But vosoritide, he argued, presents the best chance of a better future for children with achondroplasia.

“We can’t make a drug that enhances skeletal growth but doesn’t make you taller,” Day said. “It just doesn’t work that way.”

“People feel like this is an effort to eliminate the dwarfism community. Some say this is going to help things get better, but how could someone know?”

BECKY CURRAN KEKULA, DISABILITY ADVOCATE AND MOTIVATIONAL SPEAKER WHO WAS BORN WITH ACHONDROPLASIA

Little People of America, with a membership of around 8,000, spent years keeping BioMarin at a distance. Founded in 1957, the group’s stated mission is
to provide a safe, welcoming community for all little people, no matter their opinions on controversial issues like dwarf tossing and limb-lengthening
surgery. When the group learned about vosoritide in 2012, it seemed like yet another matter of personal choice, something on which members could disagree
but from which the group would officially abstain.

But LPA’s commitment to neutrality came dramatically into question earlier this year, when the group’s board invited representatives from BioMarin to the
organization’s annual conference and, most alarming to some members, accepted a $130,000 donation from the company.

Many members only learned of the arrangement when they saw the drug company’s logo on a list of LPA sponsors on conference collateral. That led to an outpouring
of concern and condemnation on
LPA’s Facebook (
FB)
page. At the conference, held in San Francisco in July, the group convened an emergency town hall meeting, where the board sat in a hotel ballroom and
listened to outrage and confusion from its members. Footage of that meeting was also posted to the Facebook page.

“Seeing that sponsorship on the conference booklet was like a slap in my face,” LPA member Monique Conley told the board. “We didn’t need their money,”
she said to applause. “We’re not these poor charity cases. We have lives. We love our lives.”

Regardless of LPA’s intentions, its acceptance of money from BioMarin sent the message to some members that the group had co-signed the development of
vosoritide, a notion many find abhorrent, said Olga Marohnic, chairwoman of the organization’s Hispanic affairs committee.

“There’s millions of other companies that we can get money from that will not tie us to a pharmaceutical company that in my view is trying to tell my family,
tell my son, and my friends that they’re not OK the way they are,” Marohnic said at the town hall. Her teenage son, Matthew, has achondroplasia.

2 disability experts paints a grim picture on the BBI report “why the disabled Kenyans always fall into cracks” Authors: DR Siyat Abdi and Mugambi Paul.

According to the World Bank, WHO and the United Nations One billion people, or 15% o

f the world’s population, experience some form of disability.
Persons with disabilities, on average as a group, are more likely to experience adverse socioeconomic outcomes than persons without disabilities. Such as less education, poorer health outcomes, lower levels of employment, and higher poverty rates.

Barriers to full social and economic inclusion of Kenyans with disabilities include inaccessible communication, navigating the physical environments, inaccessible transportation, the unavailability of assistive devices and technologies, non-adapted means of communication, gaps in service delivery, utter unemployment inequality and generally discriminatory prejudice and stigma in Kenyan society.

From our professional lenses and in-depth analysis, we observe that the voice of this largest minority was never hard on the BBI 156-page report.
Notwithstanding, understanding the influence of different stakeholders in public policy making is very Critical “Carolyne 2016].
Although the BBI Taskforce had lots of public network in executing some of the insisted public approaches [Carolyne 2017], the task force did a total disservice and provided just a window dressing of Kenyans with disabilities.

In our collective opinion, the first omission and a major setback was the lack of representation of persons with disability in the BBI task force for persons living with disabilities.
This affirms the incessant notion of the government of Kenya of not ensuring article 54 of the 2010 Kenyan Constitution is realized.
Our expectations were high, and therefore, we expected the Taskforce would provide a clear direction on accessible representation that responds to the needs of persons with disability.

Secondly, on behalf of all Kenyans with disabilities who are the largest minority, we affirm the term “Disability” appeared 9 times in the BBI Report.
This was not in reference to any commitments to the 9-point agenda in their Terms of Reference but giving basic information of the experiential circumstances people with disability find themselves in Kenya.
In other words, the task force deliberated on the historical background on issues regarding persons living with disabilities without offering any commitment on how the nation will address the historical and traditional social injustices encountered by person with disabilities in Kenya.
Instead, the Taskforce echoed the common cliché we are used to by outlining traditional principles which clinically failed to work in the past.
No doubt, the BBI task force affirms what Paul Mugambi said in one of his articles, emphasising why the disability movement in Kenya must change tact once and for all!
http://www.mugambipaul.com/2019/11/17/why-the-disability-movement-in-kenya-should-stop-crying-faw/.
Increasing inclusivity on a political, economic, social, religious, cultural, youth, and gender basis is not Inclusivity devoid of disability.
How long are we going to continue being marginalised both in the national government and in the Counties?

It is worth noting the reflective theoretical commitment of Kenya to the 2030 Agenda for Sustainable Development goals.
It affirms clearly that disability cannot be a reason or criteria for lack of access to development programming and the realization of human rights.
Additionally, the SDGS framework have already been integrated in both short- and long-term Kenyan plan strategies, but limited wheels of implementations are in actions.
Its significant, to pronounce that the SDG framework has seven targets, which explicitly refer to persons with disabilities, and six further targets on persons in vulnerable situations, which again include persons with disabilities.
The SDGs address essential development domains such as education, employment and decent work, social protection, resilience to and mitigation of disasters, sanitation, transport, and non-discrimination – all of which are important obligations for the Kenyan government.

Unfortunately, the BBI task force team clearly seem to have been communicating to persons with disabilities in the charity model.
This is to mean the expressions reference to persons living with disabilities seem to be a separate group from Kenyans and this shows that there was exclusion in addressing persons with disabilities in the BBI report.
Thirdly, the term inclusion appeared 24 times.
The only relevant was the 22nd mention.
The cruel irony is that Article 174(e) of the Constitution provides that one of the objectives of devolution in Kenya is ‘to protect and promote the interests and rights of minorities and underserved or discriminated-against communities.’
It is for this reason that the Taskforce strongly feels that measures leading to greater inclusion, equality, equity, and basic fairness at the National level should be mirrored in the Counties, both in law, policy and administration.”
Do you think people with disability will enjoy this commitment?

Fourthly, the term Physical access has been mentioned twice and the 2nd one is relevant to persons with disabilities.
Increase physical access for people with disabilities into buildings, particularly public ones, and transport.
This shows the limitation of the BBI report since it’s not just enough to talk of physical access of built environment and transport only.
Kenyans living with disabilities still need more in area of universal and accessible housing, employment opportunity, and access to building (public and social facilities), communication and access to adaptive technology among many other disability services.
Fifthly, the term “has access” has been mentioned 42 times in the report.
The only relevant area is the 2nd mention. “
The aim should be for all Kenyans to have to cover the same distances to access public services.”
The access to information seems to be one of the major recommendations for the BBI task force but they avoided to demand for alternative accessible formats which could have ensured those with vision loss (blind), those with cognitive disability and other print disabled access information.
The BBI task force would have well utilized the Marrakesh treaty as a benchmark on access to information with excellent literature support from the United Nation Convention for the Rights of Persons with Disability (UNCRPD).

The BBI report missed opportunities to present across several mechanisms on enhancement of rights of people with disability in Kenya:
For instance, we anticipated that they would have an opportunity to present a structured Social protection systems that would be barrier-free and inclusive, and in a manner which ensures that everyone has equal opportunities to access social protection schemes, which may require special measures for particular categories of the population who may face additional barriers, such as persons with disability and the elderly Kenyans.
They missed to articulate the structure and design implementation of social protection, taking into account Human rights principles and standards at every stage of the schemes in the context of the level of marginalisation experiences of persons with disability both in the national government and in the Counties.
We welcome the Taskforce proposal to change the County Executive, including, but not limited to, the running mate of every candidate for the position of Governor.
While it is commendable to suggest consideration of the opposite gender, window of opportunity should have been given for any governor to decide their running mate, and if possible opportunity to make informed decision to pick a person with a disability as a Deputy Governor.
Another missed opportunity was to empower the National council for People with Disability NCPWD to be elevated a disability commission instead of a semiautonomous body incapable of servicing people with disability.
This could be either through a referendum or by legislation which could have subsequently ensured that the disability commission is well resourced and has the capacity to provide appropriate disability services based on social model and ensure the realization of disability rights.

On a positive note, the beauty of the BBI report is the importance of public participation and engagements. We hope people with disability will be fully engaged in decisions that matter to them.

In conclusion, the BBI report seem to have nailed the coffin for persons with disabilities by claiming that people with disabilities in Kenya are bunch of winchers, always complaining of injustices.
It seems the task force doesn’t understand that people with disabilities in Kenya are tired of the prolonged injustices experienced.
Yes, we must complain and continuously complain because we don’t expect civil and political elections of representatives in Party primaries and nominations to be fair; free and transparent elections in the context of persons with disability.
We must raise our voice because we are severely marginalised both in the national government and in the Counties in terms of employment and social services.
We cannot be satisfied with the BBI solution of just using reputable private recruitment companies to help, but to put in place recruitment legislations that give Kenyan people with disability opportunity to exercise their skills and talents to maintain their livelihood.
What the Kenyan people with disabilities need is real tangible implementation of legal and policy frameworks and ensuring persons living with disabilities actually access all government and private services just like any other Kenyan.

The views expressed here are for the authors and do not represent any agency or organization.

DR Siyat Abdi
Is a independent disability consultant.
Mugambi Paul is a
Public policy diversity and inclusion expert.

Public participation event

address to the public on importance of engaging disabled persons